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Iuris

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Hey all,

I'm a 20-year-old guy from the Netherlands, and I've had to deal with Crohn's disease since I was 14. At the beginning it was quite dreadful. I frequently had to go the hospital for periods that varied from 1 week to three months. Which was awfully unpleasant since I was changing schools. Starting out in a new class whilst being on very strong meds (prednisone 40mg/day, with all its pleasant side effects) was difficult. I could hardly make any friends, and some people even made fun of me because of the way I looked at the time. But after a hard first year, my crohn's kind of eased off a little bit because of Azathioprine and it eventually even got in remission, and it sort of has been for the last six years. In those six years, I've been able to live a life like a normal teenager. My school performances didn't have to suffer and I built quite a social life. I even moved out of the house 2 years ago and went to law school.

Because of my experiences with Crohn's in the early stages, I'm trying to think about at least as possible. And because I've been in remission, I don't even talk about it with friends or other family. I'm a healthy looking guy for strangers, and to some extent it's true, but it's the uncertainty of my health that drives me crazy some times. And it also seems kind of useless to tell new friends that you're sick, because they're most likely(at least, that's the state of mind you're in when you've been on remission for quite some time) never going to notice it. At some time it even got to the point where I canceled a holiday with friends because I was afraid crohn's would get in the way, and I would be 'the sick guy' who can't even go on a holiday. I've also had trouble with getting close to girls (never had a real relationship). Usually I just don't even bother to try because I'm too scared they might be freaked out about it on the long run or it would be too much of a hassle when things(crohns) go badly.

So to put things a bit in perspective I decided to find some other life stories of people with crohn's on the internet, and that's how I got here :)
 
Welcome :) Thats great that your in remission! Hopefully it will be a long span of good health for you!
 
"welcome: Iuris. You've come to a great place to talk with others and read their life stories. I'm glad to hear you're in remission still. I know it can be hard to talk to others about your problems or concerns. Especially those that don't go through it themselves. It's not a disease a lot of people understand. Look around and have a good read and feel free to pipe in whenever.
 
:bigwave: Glad you found us Iuris! Please feel free to ask questions/comment anytime, we're here to help. And big congrats on your remission-you're where I hope to be soon!
 
Hi Iuris
and welcome

glad you found us, and well done for remission, that's encouraging for us all!
lotsa luv
Joan xxx
 
Enjoy your remission and go on with your life. During my remission I travelled, dated, started a career, got married, had a kid, learned to snowboard, hiked mountains, and bought a home. I dont regret any of it even though I am flaring now. You deserve a life just like anyone else. Dont let this disease hold you back. I know some people that have had remissions last 10-20 years. Dont live like you are going to get sick tomorrow.

Oh and dont forget to take good care of yourself. My longest remission happened when I started to take good care of myself. I really believe it makes a difference.
 

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