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Joined
Aug 23, 2009
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Hey people, Im stressed bad. Im newer here and can only get on line here and there. Ive had weird probs for a few years. Im at a loss and about to give up on life.

I use to have bad stomach pains as a teen from stress. As an adult I strarted seeing spots bad all the time.

Then I notice a few years ago I could no longer drink coffee, dark soda, alcohol, and more. Most either hurts me a while after I drink it, or some" alcohol" makes me EXTREMELY sick. Then about three yrs ago constant back pain, then "iritis", then major fibromyalgia that is now extreme.

Infrequent IBS and other such probs were on and off for the last few years, but about a year ago. I started having constant D or in between d and normal, difficulty going, major cramps, mucus and more. Sometime blood and dark stool.

Everything gets worse and worse w/ time. Bloodwork shows little to nothing. About a yr ago stomach scope was normal, colinoscope was normal. And that was all my GI was going to do for me.

Then I talked them into a test, see ,A rhuemy doc tested me for some things in 07. When my back first started hurting, they though I might have ankylosing spondylitis. I was neg for that but mildly posotive for "S. cerevisia IGA antibodies".

An antibody that comes along w/ crohns. Well anyways my doc retested that and other stuff end off 09. I was told the test were negative. I said Im still sick, they said well what do you expect from us.

I went and got my own results, My ibd panel was negative, barely. BUT my S cerevisia IGA was positive twice over, "negative my a$s". My Igg was midly posotive.

So I called and snapped, they put me on asacol and bentyl, it helped some, not enough. Since Ive called w/ serious probs and they never care.
So I recently found a new GI with a get it done attitude. He said, were going to look at the small intestine and tset for parasites, parasites were negative.

I was like, "YESSSS" because I though there would be something there for sure, I have for a long time thought my small intestine was the prob. So I drank this special drink, got contrast, and did the test.

It came back negative? Im in shock, I dont know what to do, Im major sick, no answers. -----He was going to give me remicade that I here is great, now prob nothing. Im at a loss and about to give up on life for sure. Any Ideas anyone????
 
Normal, colinoscope" one yr ago", normal small intestine cat scan w/ special contrast. What the hell, Im major sick every day, Ive applied for disability its so bad, Whats is going on? Neg for celiac?

Im getting sicker all the time. Ive got kids w/ no mom, " my parents help" I dont wana die, but I dont wana live either. Not like this.
 
Maximus - I don't have much experience, but lots of folks on here do, and you will get some good advice and lots of support.

Hang in there, you must for your kids, they need you. You will find answers - maybe another GI specialist with more empathy. Get yourself into Chicago if you can to see a GI at Northwestern or one of the big med centers.

Be strong. I hope you find some answers soon. - Amy
 
Maximus, I have been there. I have felt the stress and emotions you are feeling. This disease can do that to you and it makes it worse when you can't get answers.
I am here to help you and to let you know that nothing can come between you and your kids. They need you to be there for them even when you feel like you do. Thinkl of this. What will happen to them if you are gone. There is always a chance that they will blame themselves for your actions if you decide to end it. Do you really want them to feel that way. Could you leave them knowing that they are blaming themselves and that they may decide to take the same path.

If you are not getting answers, see if you can get to the Mayo Clinic. The problem with Crohns is that it can take a long time to spot and there are parts of your intestine that they cannot scope.
Hang in there, we're always here for you.
 
Hello maximus..

I'm so sorry to hear what you are going through with no relief.
Is there another GI doctor you can be referred to for another opinion..
or a teaching hospital??

You must hang on...you will get a diagnosis.
The blood and mucus and D sound like Colitis but I am no professional.

If the last scope was a year ago...maybe the next one will turn up something.

But please please hang on...
We're all here for you to lean on ...so vent away,
ask questions...someone is always around.

Welcome to the Forum.

Healing Hugs~Nancy
 
Dang, I feel for you!
I get that lack of Compassion and being Dismissed thing, Still Do sometimes , I'm on Disability and DX since 1992 or 93.
I don't know if You are seeing a Therapist / Psychiatrist of any kind but, It may help you Now and Possibly with Disability? It Helped me. The reason I mention it is Because it did in My situation.
Amy is right that u Might try another GI if that is an option.
Good Luck and keep people here posted, I see They Truly CARE!
 

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