Hi there. I’m 25 and have had crohn’s sense I was a teen but lately I’ve had some trouble with it and feel a little troubled really.
Sense around 16 to early this year I had been off my meds because everything had calmed down but this year and a few months after moving house I noticed that I was having trouble with Diarrhoea. At 1st I didn’t think that it could be a flair up because how things were to when I 1st found out I had it was quite different and much less blood so I thought maybe it would blow over and get better. It never however. In the end I went to my doctor and went back into the waiting times and being unsure of being sent to different medical departments in the hope things will get done.
A few months ago now however and after being put back on Pentasa which didn’t really help much at all I had an ultrasound done and it showed that part of the small intestine where the illness is has a fistula developed and also is pretty much ruined and sometime next year I will be having the part removed. Was offered stronger medication but was told that it wouldn’t really change anything so decided not to take it.
Things have become a bit of a worry though because through all of this the last month and a bit I’ve started to have continence issues. I know it’s normal to have urges where when you feel you need to go to the toilet you have to go, but lately I’ve been finding things even when my toilet is more solid almost once a day I get no warning at all and have to go there and then. Sometimes there is a choice where I can hold it in for a little but at 1st it was too painful and now most times I don’t have the strength to do so anymore. Even though I live at home with my family I’ve not told anyone about this or the fact that I’m now in diapers because I’m both embarrassed about it and worried what they might think.
I’m told that when the operation is done I should be as good as new again and I’m looking forward to it as well because I want to be able to eat a meal again without it getting stuck and then be sick for days. I am worried about holding my toilet though. Is it possible that I am becoming or maybe even have become incontinent and that I’ll always need to wear pads or diapers? How common is that for what I have as well. I can’t help but feel the not knowing is worrying me more then the end result.
Sorry this is a long post but this is pretty much how things are now. Thanks for having such a website up though for people to come talk on because it’s not something I find easy and especially in person at all.
Sense around 16 to early this year I had been off my meds because everything had calmed down but this year and a few months after moving house I noticed that I was having trouble with Diarrhoea. At 1st I didn’t think that it could be a flair up because how things were to when I 1st found out I had it was quite different and much less blood so I thought maybe it would blow over and get better. It never however. In the end I went to my doctor and went back into the waiting times and being unsure of being sent to different medical departments in the hope things will get done.
A few months ago now however and after being put back on Pentasa which didn’t really help much at all I had an ultrasound done and it showed that part of the small intestine where the illness is has a fistula developed and also is pretty much ruined and sometime next year I will be having the part removed. Was offered stronger medication but was told that it wouldn’t really change anything so decided not to take it.
Things have become a bit of a worry though because through all of this the last month and a bit I’ve started to have continence issues. I know it’s normal to have urges where when you feel you need to go to the toilet you have to go, but lately I’ve been finding things even when my toilet is more solid almost once a day I get no warning at all and have to go there and then. Sometimes there is a choice where I can hold it in for a little but at 1st it was too painful and now most times I don’t have the strength to do so anymore. Even though I live at home with my family I’ve not told anyone about this or the fact that I’m now in diapers because I’m both embarrassed about it and worried what they might think.
I’m told that when the operation is done I should be as good as new again and I’m looking forward to it as well because I want to be able to eat a meal again without it getting stuck and then be sick for days. I am worried about holding my toilet though. Is it possible that I am becoming or maybe even have become incontinent and that I’ll always need to wear pads or diapers? How common is that for what I have as well. I can’t help but feel the not knowing is worrying me more then the end result.
Sorry this is a long post but this is pretty much how things are now. Thanks for having such a website up though for people to come talk on because it’s not something I find easy and especially in person at all.
