Newbie recent crohn's diagnosis

[Momto3]

I was just diagnosed with Chrohns a few weeks ago and have been put on Lialda (4 pills a day). Its been a week and a half and i have developed excruciating joint pain. Especially down my spine and neck. Also, woke up with bruises all over my legs. I phoned by Gastro dr and am waiting for a call back. Also, I am very nauseous, have lots of diarreah and a horrible headache. I have since stopped the meds. Any advice? Before the meds, i only had the diarrhea. Thanks for your help.

 

[Bld]

Joint pain and bruises could be erythema nodosum. It is really painful!

 

[Angrybird]

It could be that you are having an allergic reaction to the Lialda so it may have been a good thing that you have stopped this. I hope you have now heard back from your doc, pls let us know when you can on how you are doing.

AB
xx

By the way - welcome to the forum!

 

[Lindz]

I was diagnosed a few weeks ago too, and I am going to be put on meds this week, However mine started with just diarrhea and abdominal pain, but as the weeks have gone by, i have gotten much worse( only taking tylenol). I have had severe joint pain in my spine, elbows and ankles. I was throwing up bile last night, and today i feel like someone punched me in the rib cage. I dont know if this is the just the crohn's for you? but it seems to be the case for me! I hope you get relief soon! Keep us updated!

 

[David]

Welcome to the forum You poor thing, I'm so sorry that things have gotten worse for you. Please keep us updated on how you're doing and let us know if there's anything we can do for you.

*hugs*

 

[Momto3]

Well I went to see my specialist and I am off of the lialda. Now all those symptoms have gone away except the bruises. It is the condition mentioned above. Thanks for your support. Now we have to find new meds that will work for me, not looking forward to this process.

 

[David]

I'm so glad those symptoms are gone. Has your GI mentioned what the new treatment regimen might be?

 

[Momto3]

No he said we can discuss it at my next appt next week.

 

[David]

Sounds good. In the meantime, you may want to spend some time in our treatment section so you can educate yourself about some of the potential suggestions he might make and maybe even make some yourself if you like the idea of them. Become an advocate for yourself