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dana625
Guest
Hello all! I just joined the forum today and would like to introduce myself. I am a 29-year old mother of 1 son age 4. I was diagnosed in October of 2003 4 months after he was born. At that time I was diagnosed with crohns during a week long hospitalization, landed back in the hospital in 3 weeks with a high temp and there was undiagnosed by a totally different doc and taken off of all meds (including Pred) and was snt home after 8 days in the hospital, finally four weeks later I flared within my esophagus causing me not able to eat or drink anything and causing a 15 pound weight loss in 2 wks. During that hospitalization I was rediagnosed by a completely different doc with CD and snt home this time after another week but probably too early because I am also a RN and didn't like my hospital care.
I have been through 5 different GI docs mainly because when I get sick I want to be able to see my doctor and not have to wait for an appt and end up getting admitted because my probs weren't treated in a timely manner. I have developed fistulizing issues and was on remicaide for 1 year 3 years ago and life was great until I had lupus-like reaction to the med causing my joints to swell 3 times their size. They stripped me off and slapped me on prednisone for the remainder of the year. This has not helped the fistulas forming and last fall I had to have a fistulectomy which has turned out to be a failure. I have tried all 5-ASA meds, imuran, entecort,remicade and prednisone has been the only med that has helped me. It is my wonder drug but I also gain up to 30 pounds each time and hate the insomnia, moon face, hot flashes, and mood swings that come with it. I am hoping to try to get on the Humira that was just approved because although I have not had extreme signs and symptoms as I did when I was newly diagnosed, my last scans have shown narrowing and I want to avoid major surgery as much as possible.
This is the first "support type" thing that I have joined in 4 years of suffering so hopefully you all can help me as I hope to help you.
I have been through 5 different GI docs mainly because when I get sick I want to be able to see my doctor and not have to wait for an appt and end up getting admitted because my probs weren't treated in a timely manner. I have developed fistulizing issues and was on remicaide for 1 year 3 years ago and life was great until I had lupus-like reaction to the med causing my joints to swell 3 times their size. They stripped me off and slapped me on prednisone for the remainder of the year. This has not helped the fistulas forming and last fall I had to have a fistulectomy which has turned out to be a failure. I have tried all 5-ASA meds, imuran, entecort,remicade and prednisone has been the only med that has helped me. It is my wonder drug but I also gain up to 30 pounds each time and hate the insomnia, moon face, hot flashes, and mood swings that come with it. I am hoping to try to get on the Humira that was just approved because although I have not had extreme signs and symptoms as I did when I was newly diagnosed, my last scans have shown narrowing and I want to avoid major surgery as much as possible.
This is the first "support type" thing that I have joined in 4 years of suffering so hopefully you all can help me as I hope to help you.
