- Joined
- Sep 24, 2010
- Messages
- 137
Hy everyone, I'm new here, although I've been checking out posts since I was diagnosed around 7 weeks ago.
Basically, I've been having symptoms for at least 2 years, mostly D and a little pain in the lower right quadrant. I'd just come to feel like it was normal - I'm sure others of you know what I mean. I also had an anal fissure (which it took me about a year to admit to my doc), but that was treated with some cream/gel thing pretty easily.
Anyway, in Feb I went to Fiji, and after I came back had some more severe pain. Doc thought initially it might be Giardia (sp?), but tests proved negative. After a while when it was still bugging me, my doc suggested I see a GI. We all thought IBS would be most likely. Blood tests (while waiting for the colonoscopy results) showed that I have the gene for coeliac disease, and I really REALLY didn't want that - I am quite fond of gluten! Anyway, obviously the result was Crohn's. Granulomas in my terminal iliem plus a lot of scarring - so much so that he struggled to get in there at all. Even so, he said my symptoms are relatively mild.
So I started on Pentasa (with really no side effects, I was quite happy about that), but I saw him again this week after more blood tests and weekly B12 injections. Apparently the Pentasa just ain't working for me at all. I've been upgraded to Prednisone and Aza...(I can't remember how to spell the rest of it!) I was pretty upset about this, cause after reading this forum I knew I didn't want these drugs!!!
But, I guess I have to at least try them. I've been on them for only 3 days so far, and no side effects yet. Tho I was pretty cranky with hubby last night - whether that's cause of the drugs, cause I'm a little bit down or just cause he can be really annoying I'm not sure! I'm also having to take Vit D, calcium, iron and (something else, I can't remember just now), plus meds for high blood pressure, the pill, sleeping aids...so I feel like I'm rattling!!! Will go see my GP soon and see if I can't combine some of these.
But, on the plus side, I've been generally ok. We have toilets at work which practically nobody uses, so I can spend time down there without being embarrassed. I travel quite a bit (for leisure, not work), but I have noticed that a change of diet can make me feel a bit under the weather.
In the last few weeks, I've had a few cases of severe ab pain. Not sure if this is psycho-somatic or not, but it generally doesn't last too long (hit it with pain meds straight away!).
But oh my god, look how much I've written already! Anyway, this is me...I look forward to contributing more in the future, and giving and receiving support, and finding a way to take my frustrations out apart from my husband!!!
Thanks for listening!!!
Basically, I've been having symptoms for at least 2 years, mostly D and a little pain in the lower right quadrant. I'd just come to feel like it was normal - I'm sure others of you know what I mean. I also had an anal fissure (which it took me about a year to admit to my doc), but that was treated with some cream/gel thing pretty easily.
Anyway, in Feb I went to Fiji, and after I came back had some more severe pain. Doc thought initially it might be Giardia (sp?), but tests proved negative. After a while when it was still bugging me, my doc suggested I see a GI. We all thought IBS would be most likely. Blood tests (while waiting for the colonoscopy results) showed that I have the gene for coeliac disease, and I really REALLY didn't want that - I am quite fond of gluten! Anyway, obviously the result was Crohn's. Granulomas in my terminal iliem plus a lot of scarring - so much so that he struggled to get in there at all. Even so, he said my symptoms are relatively mild.
So I started on Pentasa (with really no side effects, I was quite happy about that), but I saw him again this week after more blood tests and weekly B12 injections. Apparently the Pentasa just ain't working for me at all. I've been upgraded to Prednisone and Aza...(I can't remember how to spell the rest of it!) I was pretty upset about this, cause after reading this forum I knew I didn't want these drugs!!!
But, I guess I have to at least try them. I've been on them for only 3 days so far, and no side effects yet. Tho I was pretty cranky with hubby last night - whether that's cause of the drugs, cause I'm a little bit down or just cause he can be really annoying I'm not sure! I'm also having to take Vit D, calcium, iron and (something else, I can't remember just now), plus meds for high blood pressure, the pill, sleeping aids...so I feel like I'm rattling!!! Will go see my GP soon and see if I can't combine some of these.
But, on the plus side, I've been generally ok. We have toilets at work which practically nobody uses, so I can spend time down there without being embarrassed. I travel quite a bit (for leisure, not work), but I have noticed that a change of diet can make me feel a bit under the weather.
In the last few weeks, I've had a few cases of severe ab pain. Not sure if this is psycho-somatic or not, but it generally doesn't last too long (hit it with pain meds straight away!).
But oh my god, look how much I've written already! Anyway, this is me...I look forward to contributing more in the future, and giving and receiving support, and finding a way to take my frustrations out apart from my husband!!!
Thanks for listening!!!