Nexium and Donnatab

[Chris25]

Hey there. I saw the GP today and she put me on Nexium for the mouth ulcers and problems with my throat and oesophagus, and donnatab for the abdomen pain. I did not get the donnatab because I could not get to the pharmacy (saw her late and its late night shopping tonight which makes it really hard for me to get to the shops even though they are open) but I am getting some tomorrow.

The nexium helped a lot actually but I don't know if I should be taking it.

I am also going to see specialist but I have no idea who I should see. I really don't want to get stuck with a bad doctor Anyone have any recommendations for dr's in Sydney around the Fairfield/Liverpool/Bankstown/Paramatta/Hills areas? I'd really appreciate that.

was reading about crohns disease some more and it said that most of the time you get pain in your lower right side of your abdomen, is that true? That is where i have so much pain but I don't want to self-diagnose myself.

I have no idea what I have but my gastro-intestinal track is so irritated. I feel really bad

I wish that my gp did not tell me to go on a high fibre diet! My gosh, that was really quite awful. Still in a lot of pain. I am not bleeding or anything like that But i started to well crap a lot of mucous and it looks disgusting. My anus is really hurting too. It is as if from my mouth to my anus it hurts. My mouth is also full of ulcers and my throat is bright red and irritated

Thanks everyone for the support and help I really appreciate it. I can't believe how much you guys suffer and yet you all live your lives really well and get by, I find this amazing. And I am not saying that those who don't get by in life that well because they are too sick are any different either. I have never met a group of people that have such an amazing outlook on life despite their illnesses. Its really great.

My parents have come around now and are being supportive so I am happy about that. I guess they were just scared.

Take care and much love,

Chris.

 

[Mazen]

Hi Chris. From what you described, I think you should see a GI asap. And then hopefully you can have a right diagnosis.

Wish you luck and if you need any support we are here to help....

 

[Kev]

Yeah, Chris, I echo those thoughts. Get to see a GI specialist or consultant ASAP. I know that for most people, fibre helps the GI tract, but for people who have IBD, it can be pure agony. I would suggest a little homegrown experimentation. Reduce the fibre and residue in your diet, see what happens. If your pain levels go down, I suggest you either see an experienced IBD nutritionist/dietician; or try library for a good IBD diet giude/cookbook. If there aren't any to be had, try some of the links on this site, Forum bookstore, etc., to see if you can find one. Or even links to excerpts from those or similar. Those of us with this disease have learned that diet does play a part in our day to day lives. Many of us keep a daily diary, modify our diets accordingly. Many doctors dismiss diet and it's role in IBD. Others give it a great deal of respect.

 

[Chris25]

Thanks. I will definitely do that. I am in quite a lot of pain at the moment. I cannot sleep. And the nexium has given me a lot of nausea

fibre is pure hell I have never been in so much pain before in my life! It kind of reminds me of when I had my appendicitis as the pain is in the same area but much worse.

My GP kept trying to tell me that I need to incease my fibre intake.

I only had a little bit of fibre, I'd hate to see what would happen if I had heaps.

I will definately try and see a good specialist. Doing some reasearch about that now.

Thanks and take care,

Chris.

 

[butt-eze]

If you have crohn's or UC fiber is an awful idea during a flare. I would certainly consult with a GI doctor and determine what course you need to take.

As for the Nexium. I take Nexium 40mg a day and absolutely love it. I asked what the long term side effects are to taking nexium. My doctor indicated that the only possibility is increased risk for C. Diff. I've already had C. Diff twice before starting Nexium so the chances are high for me already.

When was your last Abdominal Scan and colonoscopy? It sounds like if you're having that much pain that it should be addressed immediately.

 

[Chris25]

What is C.Diff?

I have not seen a specialist yet. my gp is pretty clueless. she told me to take more fibre. she wants me to take donaatab but that contains atropine and for some reason that does not sound like a good idea but I really do not know.

My abdominal xray came back normal.

In a lot of pain at the moment I was wondering if there is anything i can take that is over the counter that will help with the pain but not make things worse

I've only had 2 1/2 hours sleep because of the pain

Thanks and take care all.

 

[Chris25]

I went back to the doc today as I could not stand the pain any longer. She said my stomach is bloated and she thinks I have inflammatory bowel disorder

I am quite upset. I just went to the toilet and i had some releif from the pain though.

I am having a CT scan on monday, and seeing a gastro specialist in about 10 days. She said I will probably have to have a colonoscopy.

Still on nexium and also on buscopan and paracetemol. In a lot of pain but I am less stressed now. Parents are being supportive thank God.

Take care everyone and thanks. Sorry if I seem so self-centred when I post. I do read the other posts on the board but I don't know what to say as I know nothing about all this. I wish you all well.
Take care,
Chris.

 

[Kev]

Hey Chris... Don't worry about feeling self centred. you said it yourself, this is all new to you... and your GP just suspects that it is IBD, you'll probably not get a 'definitive' diagnosis till you see the gastro, have the scope or other tests done.

It's a life changing diagnosis (and there's a possibility that you don't have it), but even if you do, it is typically not a life threatening diagnosis. many other potential diagnosis's are. If it is IBD, then your gastro should be well versed in the treatment, and of course, all of us here have first hand experience with it.

 

[num1habsfan]

Thanks. I will definitely do that. I am in quite a lot of pain at the moment. I cannot sleep. And the nexium has given me a lot of nausea

fibre is pure hell I have never been in so much pain before in my life! It kind of reminds me of when I had my appendicitis as the pain is in the same area but much worse.

My GP kept trying to tell me that I need to incease my fibre intake.

I only had a little bit of fibre, I'd hate to see what would happen if I had heaps.

I will definately try and see a good specialist. Doing some reasearch about that now.

Thanks and take care,

Chris.

I'm just being started on Nexium too, actually from my asthma doctor!! And I COMPLETELY know how you feel about being told to "eat more fibre", when the Crohn's diet says reduce it. Now does that really make sense??

~ Lisa ~

 

[Chris25]

hey all. Just got out of hospital. Was in there for 7 days. They were convinced that I had ulcerative colitis or crohns at first but now they say I had infectous colitis and IBS.

Seeing specialist again in 2 weeks. Was taken off of Nexium in hospital and put on Somac, i guess because its cheaper lol. Was not told to take it since I have been home but I have a really sore oesophagus. I feel like I have a lot of reflux. But the flagyl and keflex antibiotics I am on are making me sick too so that might from them.

Thanks everyone for all the help.

I really do not know how you all put up with having colonoscopies all the time. I thought the prep would be bad but it was far worse than I could have imagined! It is as if the diarrhoea it gives you never ends!!!

I am also wondering is it normal to become incontinent with these problems? I have largely got my bladder control back but not fully (I wet myself yesterday and well this kind of thing has never happened to me before). In hospital i was wetting myself constantly.

Take care,

Chris.