- Joined
- Aug 8, 2010
- Messages
- 10
Hello!
Ok, where to start...it's been awhile since I wrote this out.
I was symptomatic for a few years before being diagnosed. It was "all in my head". Then one morning my guy perforated, tore open, somewhere inside....and I had to be rushed to the ER. I had never heard of chrohns until I woke up and was told I had it. They took 19cm, including the appendix and ileum. After being hospitalized for a week I was sent home. I will always remember that day- the nurse went to get my discharge papers, and in the next moment, the first plane hit the World Trade Tower in NYC.
Anyway, I began the healing process, and was symptom free for a few years. Even today, my biggest enemy is time. I just don't have the time to digest complicated foods. I reply on my mouth more, for breaking things down to digest. There is a lot that can controlled through diet, and I stopped all forms of high fructose corn syrup.
I had my second child, and a few more flare ups over the years. I am 37 now, and it has been my dark passenger for 9 years. Recently I had a colonoscopy and it showed that there are new active areas. Thus I've begun taking Humira.
A life long fear of needles, and now I have to self inject every 2 weeks. I passed out from anxiety the first time. I was thankful my husband was there when I collapsed. In general my anxiety has been mounting ovee the last year. I started seeing a shrink, who put me on Buspar....which btw, has been great to help mellow the emotional roller coaster.
The first time was 4 loading shots, then the following was 2, and down to one. I hate it. There, I said it. Yes, I love the way it makes me feel. Instantly, the factory is working properly. By the very next go. But I hate hate hate the shots. When I step back, it's really not that painful. The worst is the feeling of it shooting in. Every instinct in me says to pull it out. The entire thing has become a ritual, one that emotionally swells. Room alone, kids occupied (preferably not fighting), music on, ice up the belly, rubbing alcohol, taking off the caps. Then I have to do it.
The rational part of my brain says " it's going to be over in 10 seconds and you'll be done". My husband has to remind me to breathe.
Yesterday, I flinched,....it was a beat of 2, passed the hiss of air, and yet a few drops splashed on my hand and belly. The stuff is so expensive, and here I wasted some. Then I had a big long cry.
Anyone else on humira that can offer tips?
Ok, where to start...it's been awhile since I wrote this out.
I was symptomatic for a few years before being diagnosed. It was "all in my head". Then one morning my guy perforated, tore open, somewhere inside....and I had to be rushed to the ER. I had never heard of chrohns until I woke up and was told I had it. They took 19cm, including the appendix and ileum. After being hospitalized for a week I was sent home. I will always remember that day- the nurse went to get my discharge papers, and in the next moment, the first plane hit the World Trade Tower in NYC.
Anyway, I began the healing process, and was symptom free for a few years. Even today, my biggest enemy is time. I just don't have the time to digest complicated foods. I reply on my mouth more, for breaking things down to digest. There is a lot that can controlled through diet, and I stopped all forms of high fructose corn syrup.
I had my second child, and a few more flare ups over the years. I am 37 now, and it has been my dark passenger for 9 years. Recently I had a colonoscopy and it showed that there are new active areas. Thus I've begun taking Humira.
A life long fear of needles, and now I have to self inject every 2 weeks. I passed out from anxiety the first time. I was thankful my husband was there when I collapsed. In general my anxiety has been mounting ovee the last year. I started seeing a shrink, who put me on Buspar....which btw, has been great to help mellow the emotional roller coaster.
The first time was 4 loading shots, then the following was 2, and down to one. I hate it. There, I said it. Yes, I love the way it makes me feel. Instantly, the factory is working properly. By the very next go. But I hate hate hate the shots. When I step back, it's really not that painful. The worst is the feeling of it shooting in. Every instinct in me says to pull it out. The entire thing has become a ritual, one that emotionally swells. Room alone, kids occupied (preferably not fighting), music on, ice up the belly, rubbing alcohol, taking off the caps. Then I have to do it.
The rational part of my brain says " it's going to be over in 10 seconds and you'll be done". My husband has to remind me to breathe.
Yesterday, I flinched,....it was a beat of 2, passed the hiss of air, and yet a few drops splashed on my hand and belly. The stuff is so expensive, and here I wasted some. Then I had a big long cry.
Anyone else on humira that can offer tips?
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