- Joined
- Jun 7, 2012
- Messages
- 290
First I want to appologise for the long post here as I felt it was better to put everything in one spot rather than repeating different parts here an there. Secondly, If my story helps others to avoid going through what I did, than I feel I have done somethinto benefit others in a good way.
Currently I live in NJ, It is where I am from.
Last year I moved out to Texas .
My experience in Texas was awesome! It was something that I had been lead to do for about 7 years and just one of those things that would always eat at me till I did it.
Well, after having went out there for a family reunion in 2010, my cousins let me stay with them and I was able to pay them each week to help them with rent and bills.. SO in January of last year, I loaded up the SUV and headed out. I was able to find a job within three months and everything was working out just fine.
I even had decent medical ins to where I could get back on track with my Chron's disease treatments as well as keep up with my Psych meds... for me, being unemployed for so long and not having insurance meant I had to decide between my GI issues or my Psych meds... I was able to afford going to my psych DR and was able to pay cash for the visits and my meds.
I decided that it was more important for me to remain compliant with my psych meds because having worked in a hospital, and a nursing home, I was well aware that if I was off my meds it meant that I could possibly affect others not to mention myself,
from working in the ER I saw first hand someone who was off his meds and how he was put in a holding cell and then shipped down to psych....
So, I wanted to avoid that and felt I made the right choice, unfortunately, my choice caused my Chron's disease to progress to the point where I knew I needed to get it looked at.
Then in October of last year, 2011, My mother had told me that she had been sick and I knew that I needed to get back home ASAP because my sister has her family and can only do so much. So I moved back here in Oct and was able to find a job in Feb, so I figured ok, once I hit my 90 days I can get back on track with the chrons treatments......
I was working, no call outs, on time and everything but It got to the point where I was spending more time in the bathroom than doing my job.... then came the day I just couldnt go into work because of severe constipation and wht I thought was just a boil on my bottom....
so I started to call out but then my mom said I should go to the ER.... I called work and just told them I was going to the hospital and woud update them when I knew something....
When I got to the ER, and told them about my symptoms and what meds I took.... they wanted to know why I had been so long since going to the GI DR for my chrons.... well I explained why and how I made what I thought was the right decision. My last Colonoscopy was in 1994.
The Dr's and even the Nurses understood why and even told me that was a brave thing to do... however, what I had thought was a Boil was not, it was an indication tht my chron's had been to the point where surgery was a possibility....
They could not even do the colonoscopy because of a stricture, they call it rectal stenosis an so I had a CT Scan which showed I deffinately needed Surgery and then an Upper GI was done so the Surgeons had xrays to go by...
Add to this, I had been taking Adderall for years for my ADHD. Celexa and Kolonopin for the Depression/Anxiety.
I had informed the ER Dr what meds I was taking and he informed me their policy with adderall, they do not give it. I could have brought my own but had not been able to get to the psych dr to get a script. I can understand their policy with the adderall... but the thing is, the attending physician did not bother to call and verify with my psych dr reguarding my meds, nor did he consult with the psych team.. he took it upon himself to give me ritalin instead... somthing that resulted in me having horrible experiences that I would not wish on anyone.
I was admitted on April 18th I believe, and Discharged on May 3rd.
Having no insurance, I applied for Charity care and the social worker helped me apply for medicaid.
my surgery was on April 26th
I had the colon disconnected and given the stoma/bag etc.
When they woke me up in recovery, they informed me that I needed to sit up and that they had problems waking me up due to mucus in my stomach and fluid in my lung. I figured something was up because when they administered the anesthesia, i remember hearing a celestial tone and going in what appeared to be a tunnel...
when I told my surgeon what I experienced, he just looked at me and said that I had one hell of a journey and welcome back.
since then, I feel as tho my life is different, im living in a different reality but in this one, things are better...
I am now home from what I consider a lifechanging experience and doing well. And now going through the process of getting on Disabilty...
Physically I am able to get out and do things but am now disabled due to both the Mental and the GI Issues....
I look forward to learning from everyone and shareing .
Currently I live in NJ, It is where I am from.
Last year I moved out to Texas .
My experience in Texas was awesome! It was something that I had been lead to do for about 7 years and just one of those things that would always eat at me till I did it.
Well, after having went out there for a family reunion in 2010, my cousins let me stay with them and I was able to pay them each week to help them with rent and bills.. SO in January of last year, I loaded up the SUV and headed out. I was able to find a job within three months and everything was working out just fine.
I even had decent medical ins to where I could get back on track with my Chron's disease treatments as well as keep up with my Psych meds... for me, being unemployed for so long and not having insurance meant I had to decide between my GI issues or my Psych meds... I was able to afford going to my psych DR and was able to pay cash for the visits and my meds.
I decided that it was more important for me to remain compliant with my psych meds because having worked in a hospital, and a nursing home, I was well aware that if I was off my meds it meant that I could possibly affect others not to mention myself,
from working in the ER I saw first hand someone who was off his meds and how he was put in a holding cell and then shipped down to psych....
So, I wanted to avoid that and felt I made the right choice, unfortunately, my choice caused my Chron's disease to progress to the point where I knew I needed to get it looked at.
Then in October of last year, 2011, My mother had told me that she had been sick and I knew that I needed to get back home ASAP because my sister has her family and can only do so much. So I moved back here in Oct and was able to find a job in Feb, so I figured ok, once I hit my 90 days I can get back on track with the chrons treatments......
I was working, no call outs, on time and everything but It got to the point where I was spending more time in the bathroom than doing my job.... then came the day I just couldnt go into work because of severe constipation and wht I thought was just a boil on my bottom....
so I started to call out but then my mom said I should go to the ER.... I called work and just told them I was going to the hospital and woud update them when I knew something....
When I got to the ER, and told them about my symptoms and what meds I took.... they wanted to know why I had been so long since going to the GI DR for my chrons.... well I explained why and how I made what I thought was the right decision. My last Colonoscopy was in 1994.
The Dr's and even the Nurses understood why and even told me that was a brave thing to do... however, what I had thought was a Boil was not, it was an indication tht my chron's had been to the point where surgery was a possibility....
They could not even do the colonoscopy because of a stricture, they call it rectal stenosis an so I had a CT Scan which showed I deffinately needed Surgery and then an Upper GI was done so the Surgeons had xrays to go by...
Add to this, I had been taking Adderall for years for my ADHD. Celexa and Kolonopin for the Depression/Anxiety.
I had informed the ER Dr what meds I was taking and he informed me their policy with adderall, they do not give it. I could have brought my own but had not been able to get to the psych dr to get a script. I can understand their policy with the adderall... but the thing is, the attending physician did not bother to call and verify with my psych dr reguarding my meds, nor did he consult with the psych team.. he took it upon himself to give me ritalin instead... somthing that resulted in me having horrible experiences that I would not wish on anyone.
I was admitted on April 18th I believe, and Discharged on May 3rd.
Having no insurance, I applied for Charity care and the social worker helped me apply for medicaid.
my surgery was on April 26th
I had the colon disconnected and given the stoma/bag etc.
When they woke me up in recovery, they informed me that I needed to sit up and that they had problems waking me up due to mucus in my stomach and fluid in my lung. I figured something was up because when they administered the anesthesia, i remember hearing a celestial tone and going in what appeared to be a tunnel...
when I told my surgeon what I experienced, he just looked at me and said that I had one hell of a journey and welcome back.
since then, I feel as tho my life is different, im living in a different reality but in this one, things are better...
I am now home from what I consider a lifechanging experience and doing well. And now going through the process of getting on Disabilty...
Physically I am able to get out and do things but am now disabled due to both the Mental and the GI Issues....
I look forward to learning from everyone and shareing .
