Hiya
Im new to this site, and have been looking for a chat room, to hopefully meet people that are in the same situation as me, and to ask advice to. i havent found one yet, but feel so low, that i needed to share whats happened to me so far.
I have been suffering "cramps" for a few yaers now, and in January 09 decided enough was enough after the pain was so bad for nearly a year that at points i couldnt even walk up the stairs.
I went to my gp, and was refered to hospital. it took 5 months for me to see a consultant, who advised me to have a sygnoidoscopy. So 2 months later I went into hospital. The dr doing the sygnoidoscopy said it was a waste of time, and if he was my consultant he wouldnt have sent me for this as he said i definatly had irritable bowls ( the result of this exanimation showed i do in fact have crohns). Anyway so im sitting there feeling like im waisting his time (and my own) when i get called into have my enema (1st time). The nurse told me to lay on my side with legs pulled up and then just shoved it up my backside. i screamed and nearly fell off the bed.
I said to her it really hurts, but she said, "its up there now, we will finish the job, nearly all done" and proceeded to put the fluid into my bowls.
She then took out the pipe, told me to use the toilet when needed, and walked off.
I was too embarresed to make a fuss, and i was dreading haveing the sygnoidoscopy, and was at hospital alone. So i didnt mention anything. So in October i went to my gp as my backside was becoming extreamly sore, so she gave me steriods. I went back in Jan, and she gave me more steriods. Then in feb i had my consultants appointment, and he checked my back passage and found i had a "tear" from when the enema pipe was inserted.
I was taken into hospital within 6 weeks and have just had surgery where they have had to "open" the wound to help it to heal. So everytime i use the toilet i have to "clean" that area to stop infection, which is upto 8 times a day. Its very very sore, and my crohns is getting worse latley. To the point where i dont want to eat anything because i know when i need the toliet the cramps will be awful, and when i do pass its painful "there" too.
Im supposed to have a sygnoidoscopy/colonoscopy to check all my bowl as only 1/4 was origanly checked, but they cant until my backside is better.
Im feeling so fed up, and im so sorry i have written an essay about this, I dont know what to do or who to speak to. im in constant pain with my tummy, and my backside has been unbearble for nearly 8 months, there seems to be no end in sight. And i havent even been told yet, what i can do to make my crohns any better reguarding food etc... Im just trying to figure it all out from what ive read online. Ive asked my gp to get me in contact with a dietician, but im still waiting 5 months later.
i dont know what to do, im at my wits end.
Im new to this site, and have been looking for a chat room, to hopefully meet people that are in the same situation as me, and to ask advice to. i havent found one yet, but feel so low, that i needed to share whats happened to me so far.
I have been suffering "cramps" for a few yaers now, and in January 09 decided enough was enough after the pain was so bad for nearly a year that at points i couldnt even walk up the stairs.
I went to my gp, and was refered to hospital. it took 5 months for me to see a consultant, who advised me to have a sygnoidoscopy. So 2 months later I went into hospital. The dr doing the sygnoidoscopy said it was a waste of time, and if he was my consultant he wouldnt have sent me for this as he said i definatly had irritable bowls ( the result of this exanimation showed i do in fact have crohns). Anyway so im sitting there feeling like im waisting his time (and my own) when i get called into have my enema (1st time). The nurse told me to lay on my side with legs pulled up and then just shoved it up my backside. i screamed and nearly fell off the bed.
I said to her it really hurts, but she said, "its up there now, we will finish the job, nearly all done" and proceeded to put the fluid into my bowls.
She then took out the pipe, told me to use the toilet when needed, and walked off.
I was too embarresed to make a fuss, and i was dreading haveing the sygnoidoscopy, and was at hospital alone. So i didnt mention anything. So in October i went to my gp as my backside was becoming extreamly sore, so she gave me steriods. I went back in Jan, and she gave me more steriods. Then in feb i had my consultants appointment, and he checked my back passage and found i had a "tear" from when the enema pipe was inserted.
I was taken into hospital within 6 weeks and have just had surgery where they have had to "open" the wound to help it to heal. So everytime i use the toilet i have to "clean" that area to stop infection, which is upto 8 times a day. Its very very sore, and my crohns is getting worse latley. To the point where i dont want to eat anything because i know when i need the toliet the cramps will be awful, and when i do pass its painful "there" too.
Im supposed to have a sygnoidoscopy/colonoscopy to check all my bowl as only 1/4 was origanly checked, but they cant until my backside is better.
Im feeling so fed up, and im so sorry i have written an essay about this, I dont know what to do or who to speak to. im in constant pain with my tummy, and my backside has been unbearble for nearly 8 months, there seems to be no end in sight. And i havent even been told yet, what i can do to make my crohns any better reguarding food etc... Im just trying to figure it all out from what ive read online. Ive asked my gp to get me in contact with a dietician, but im still waiting 5 months later.
i dont know what to do, im at my wits end.
I am so sorry for what has happened to you. It really is unfortunate that there are some people in the healthcare field that have absolutely no business being there. That nurse had no right to treat you like that, ignoring you when you told her something wasn't right with the enema tip. Of course you know your body better than her, and she should have listened!!! I've never had this happen to me (thank goodness-I wouldn't want that to happen to anyone!!) but I am so sorry for what you have been going through... Hopefully the healing process will be quick so you can get your colonoscopy done. I'm still waiting for a colonoscopy myself after waiting months for a referal to the doctor who can perform the procedure, so I know how awful the waiting feels. But hang in there and hopefully things will get better soon!!!
