Off Humira for 3 weeks, remission is fading away

[tonimacaroni]

So I've been on Humira since March. Last month my doctor wanted to up me to every 10 days instead of 14, and also added entocort. I was having breakthrough symptoms. So he updates my prescription.

Problem #1, my copay assistance won't cover it the way he's written (2 pens every 20 days) So I call and ask him to update it to at least a 28 day supply. So he changes it (3 pens every 30 days) The pharmacy (and several other's I've called) won't break up the sets of 2 they come in. So I ask if he can write it for 4 pens every 30 days, and I'll just fill it less often. I get told by his nurse he doesn't like doing that, but I insist that he at least call me and tell my why. Now, silence. I can't get him to fix it or even to return my calls.

I'm now 3 weeks out from my last dose and my symptoms are returning. The entocort isn't enough to keep it down. Bad diarrhea, keytone breath in the morning, body aches, and now I just threw up my lunch.

I'm losing hope. And I'm scared I'll create antibodies if I don't get back on it soon. Anyone been off it for a month and got back on with success?? I have an appointment with him in 3 weeks, that might be the soonest I can actually talk to him.

Also any suggestions to get my meds?

 

[BiancaM]

Reach out to the Abbvie Patient Assistance Program. If you qualify (no insurance cover for doctor's prescription - but you'll need his signature), they will consider you for up to a year's free supply of Humira. They have been my god send.

 

[my little penguin]

There is an override you have to ask for through the copay assistance my humira program.
It takes a bit but they do cover it .
Ds takes his every tens days
His script is written one dose every 10 days.
I then order it every 20 days.
The regular my humira card doesn't cover it unless you ask for it to be raised up the chain .

It can be done .
You have to call the number on the back of the my humira card
They can help
Good luck

 

[MikeinBklyn]

My doc writes it for once a week even though I take it every ten days. It should not be a problem for him to do this for you. Break his chops!

Good Luck!