Oh the irony - Lymphocytic Colitis

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David

Co-Founder
Joined
Feb 13, 2006
Messages
13,360
Location
Naples, Florida
Many months ago I became the owner of crohnsforum.com but have kept in the background doing my geek work in part because I didn't have IBD. I strangely felt a very deep connection with many of you and I have been suffering from horrible abdominal issues for more than six months now and if I think about it, far longer than that. Well, the universe decided to heap some irony into my life.

Today I got the biopsy results from my colonoscopy. I have Lymphocytic Colitis, a rare form of IBD that is most present in women over 50, neither of which I am :D In my readings it says there is some link to NSAIDs which I used to take like candy in my baseball playing days and antidepressants which I took about a decade ago. Oops.

Anyone else sporting Lymphocytic Colitis in the house?

Can I come out and play more now that I have IBD? :lol2:
 
Hiya David

I had to look this up! and it says NSAIDS and Zoloft!
So buddy, you've come out in sympathy! lol
Seriously tho, bummer! hope you're ok
xxxx
 
Seriously tho, bummer! hope you're ok
I'm good, thanks for asking :) I'm one of those people that can handle just about anything once they know what it is they're handling. It was not knowing that was hard, ya know?

I look at this as a challenge. I don't just want to live with this, I want to cure myself :) It's a good excuse to meditate more at the very least. Heheh.
 
Yes I know all about the not knowing and I screamed for joy when I got a dx!!

Welcome to the Crohnies! We'll look after you, lol
We'll see you more front of house now, yeah?
xxx
 
David, there was just a thread in Your Story where a couple of people said they also have Lymphocytic Colitis (I hadn't heard of it prior to reading that thread). Here's the link:
http://www.crohnsforum.com/showthread.php?t=14134

And I definitely know that the not knowing is the worst part. I'm still undiagnosed myself - my GI has said that it could be Crohn's or possibly microscopic colitis. At any rate, I'm glad you have a name for what you're dealing with and you can now form a plan of action.
 
Wow David!! It's not only ironic...it's just plain spooky!! I hope it stays very mild for you and if you find a cure....well, can I work for you??
 
Welcome David to the forum. There are lots of nice people here. (hardy hardy hardy!)

That really sucks!! Well, at least you have a bit of an advantage over most with all of this information and support already at your fingertips.
 
Hi David, :bigwave:

Holy cow, talk about karma! That's like a story from the Twilight Zone....:eek2::eek2::eek2:

So what happens now??

Take care, :)
Dusty
 
Oh, David...please be careful which forums you purchase from now on, 'k?

I'd welcome you to the participating aspect of the forum, but you've always belonged, dx or no. Sorry about the diagnosis, but delighted to hear that you're confident in your ability to tackle it.

-Kelly
 
oh poo. :(

i was hoping you'd get a much more innocent diagnosis than IBD.

but i'm relieved that you now know what you're dealing with - and i well remember that feeling when we get told our symptoms actually have a name..

oh David - you know we're here for you 100%. sometimes things do seem to happen for a reason in life, and maybe this is one of those times - you were a silent partner in this forum from day one, and only really joined us in person recently - just at the same time you were having tummy troubles.. you've got the perfect support system here, so use us whenever you need.

did your doc recommend any meds or diet changes? or is he happy for you to try and calm things down yourself?


i had to giggle when i read Kelly's statement just now about being careful which forums you buy.... nice one, Kelly :D
 
Lmao @ be careful which forums you buy!!
Sorry about your dx David.
I just want to thank you for being the owner and keeping this forum going what would we do without it !!
Jen xx
 
The irony of it all!!! Seems what this forum and it's members are good at. At least you know what you're dealing with - and where to come for help!

But seriously, best of luck in dealing with it, you sound like a very positive person.
 
Oh, David...please be careful which forums you purchase from now on, 'k?

giggle ^

2thFairy said:
Welcome David to the forum. There are lots of nice people here. (hardy hardy hardy!)
super giggle ^

I have nothing funny to say now =(
Sorry about your diagnosis. Glad you know now, and you have a built in place of support. Is the treatment the same for regular old colitis or is it different? I've never heard of it.
Hope you're feeling okay.
 
Thank you all for your kind words and support. I was talking with Sue the other day and mentioned that you amazing people are what makes this not a forum, but a community.

David, there was just a thread in Your Story where a couple of people said they also have Lymphocytic Colitis (I hadn't heard of it prior to reading that thread). Here's the link:
http://www.crohnsforum.com/showthread.php?t=14134
Cool, thanks for the link!

And I definitely know that the not knowing is the worst part. I'm still undiagnosed myself - my GI has said that it could be Crohn's or possibly microscopic colitis. At any rate, I'm glad you have a name for what you're dealing with and you can now form a plan of action.
Have the biopsied you? That's how they diagnosed mine.

Wow David!! It's not only ironic...it's just plain spooky!! I hope it stays very mild for you and if you find a cure....well, can I work for you??
Hahahah. Keeping in mind that I'm still very much in the early stages of my research on Lymphocitic Colitis, but from what I've read, depending on the causes and other variables, people CAN clear it. So I plan to be in that group of people. :) I view this as a wake up call to change my lifestyle. I've known for awhile that I've needed to, but now the universe is like, "Dude, I've been patient with you. Get back in harmony already."
Welcome David to the forum. There are lots of nice people here. (hardy hardy hardy!)
Hahah :D
Holy cow, talk about karma! That's like a story from the Twilight Zone....:eek2::eek2::eek2:

So what happens now??
Well, I've begun forming a lifestyle changing game plan that will lead me to my cure. It's going to include everything from exercise to diet to spiritual to location to mental and emotional work and changes. I'm thinking about making a thread on here to track my changes, that way I have accountability and won't get lazy :D
Oh, David...please be careful which forums you purchase from now on, 'k?
Hahah. Hmmm...

*runs off to buy a Lotto Winners Support Forum*
i was hoping you'd get a much more innocent diagnosis than IBD.
Yeah, I was too. I was a bit stunned when I was told as the doctor told me after the colonoscopy that everything looked fine but he did a couple routine biopsies.

oh David - you know we're here for you 100%. sometimes things do seem to happen for a reason in life, and maybe this is one of those times - you were a silent partner in this forum from day one, and only really joined us in person recently - just at the same time you were having tummy troubles.. you've got the perfect support system here, so use us whenever you need.
Awww, thanks :) <3

did your doc recommend any meds or diet changes? or is he happy for you to try and calm things down yourself?
Well, I haven't actually talked to my doctor yet. I called in for the biopsy results and his assistant gave them to me and scheduled an appointment with the doctor for two weeks out to go over everything.

Thanks again everyone! <3
 
Have the biopsied you? That's how they diagnosed mine.

Yeah, I've had biopsies done during both colonoscopy and endoscopy. My GI said he did "a lot" of biopsies although I'm not sure of the exact number. And all of them came back totally normal. It's frustrating - everything's come back normal. But I know I've got something probably auto-immune/IBD, as I respond well to both prednisone and Entocort. Anyway, I'm glad you were able to get a diagnosis relatively easily - I'm jealous!
 
Anyway, I'm glad you were able to get a diagnosis relatively easily - I'm jealous!
Hahah. Well, if it makes you feel any better, it hasn't been *that* easy. I just haven't been posting about my journey here since I didn't think it was IBD. :) Let's just say I've had my fair share of CT scans, blood tests, and can use that little spoon connected to stool sampling bottles like a pro.
 
Oh yeah, I'm a pro with that little spoon too! I have had to fill about 6 of those little bottles. I've only had the one CT scan, but I've also had an MRI, the pill cam, many blood tests (including a long blood test to see if I have Addison's disease). I think the only test I haven't had is the barium meal/barium enema.
 
David

I am one of those with LC. I joined this forum because my google alert on Microscopic Colitis (MC) showed a cry of help from someone here who has it and who seemed to have a fairly clueless GI.

I spend most of my time on "The Potty People" forum, which is focused on MC (about 700 of us there). I can tell you MC is NOT a condition for women over 50. - that is based on out-of-date reports.....since incidents is a function of testing, which is now happening more. The youngest member was 2 years old when she was Dx (well mom is the member).

Another member of that forum who has Crohns and MC has also joined here. Both forums seem to be full of caring people...

IMHO people who have MC as a result of NSAID seem to go into long term remission. But if it is due to a virus or bacterium stimulated immune response, that switches to an autoimmune response to various stimuli (like Gluten and Diary peptides)......it unfortunately can get tricky....

I know how you feel about at least getting a Dx.

All the best in reaching remission

Ant
 
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Hi i was diagnosed with Lymphocytic Colitis about 2 months ago, nothing seems to work to stop it, I am just so depressed about it all.
 

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