- Joined
- Oct 4, 2014
- Messages
- 1
Hello,
I will try to keep this short!
I was originally diagnosed with UC but have been living with the term 'Crohn's' for over 10 years. More recently consultants have just termed it 'IBD' for me.
I have been on the lowest medication I have ever been on for the past 6 months, 2mg loperamide twice a day, taking pentasa mesalazine suppositories if I have a flare up. Also, I came off azathioprine in March after about 10 years, due to the on-going damage to my immune system.
At my last appointment the other day, my consultant advised to stop loperamide and take 2g pentasa mesalazine orally each day. I am having bloods after a week of taking to see how I am on the medication. I have been advised not to take loperamide or the suppositories but have been given a course of prednisolone steroids in case I have a flare up. I have been on these steroids before when I have had an extremely bad flare up, more than once, so my consultant has said they trusted me to only take when needed (they are my safety net.)
I took a last loperamide on Wednesday and the first sachet of Pentasa orally on Thursday. It is now Saturday and each day of having the pentasa has made me worse. I had almost no symptoms and was as close to having 'normal' bowel movements as someone with IBD could have. I have had cramps and have been going to the loo far more with great urgency and the stool is far more unformed than it has been. It is now getting to the stage where it is affecting me at work.
Is this normal when starting this medication, as it is supposed to help me but it's actually making me poorly at the moment. I will be calling the IBD nurses I have support from on Monday but just wanted to put it out there for now.
I hope to hear from someone! x
I will try to keep this short!
I was originally diagnosed with UC but have been living with the term 'Crohn's' for over 10 years. More recently consultants have just termed it 'IBD' for me.
I have been on the lowest medication I have ever been on for the past 6 months, 2mg loperamide twice a day, taking pentasa mesalazine suppositories if I have a flare up. Also, I came off azathioprine in March after about 10 years, due to the on-going damage to my immune system.
At my last appointment the other day, my consultant advised to stop loperamide and take 2g pentasa mesalazine orally each day. I am having bloods after a week of taking to see how I am on the medication. I have been advised not to take loperamide or the suppositories but have been given a course of prednisolone steroids in case I have a flare up. I have been on these steroids before when I have had an extremely bad flare up, more than once, so my consultant has said they trusted me to only take when needed (they are my safety net.)
I took a last loperamide on Wednesday and the first sachet of Pentasa orally on Thursday. It is now Saturday and each day of having the pentasa has made me worse. I had almost no symptoms and was as close to having 'normal' bowel movements as someone with IBD could have. I have had cramps and have been going to the loo far more with great urgency and the stool is far more unformed than it has been. It is now getting to the stage where it is affecting me at work.
Is this normal when starting this medication, as it is supposed to help me but it's actually making me poorly at the moment. I will be calling the IBD nurses I have support from on Monday but just wanted to put it out there for now.
I hope to hear from someone! x
