Overwhelmed and have questions about pred suppositories

[rainbowcloud]

My symptoms have gotten bad after the flex sig I had on monday, its making life hard. I'm exhausted and I don't see the GI doc for 8 weeks (I guess it takes that long for the biopsy results? Will they send them to me in the post? I don't know how it works)

The surgeon gave me prednisolone suppositories and I don't know if I should take them or not. I don't really want to have steroids. Is it bad if I just have one and see if it helps? Will it help with the fatigue and all the other symptoms or only the bleeding? What if I have a problem higher up, could it somehow make it worse? I'm sorry to ask so many questions. I haven't been able to speak with the IBD nurse yet and it is getting overwhelming.

Also, if I don't take them, will the GI doc be mad at me?? I feel so silly worrying about this, but it is playing on my mind!

 

[Womble]

My symptoms have gotten bad after the flex sig I had on monday, its making life hard. I'm exhausted and I don't see the GI doc for 8 weeks (I guess it takes that long for the biopsy results? Will they send them to me in the post? I don't know how it works)

The surgeon gave me prednisolone suppositories and I don't know if I should take them or not. I don't really want to have steroids. Is it bad if I just have one and see if it helps? Will it help with the fatigue and all the other symptoms or only the bleeding? What if I have a problem higher up, could it somehow make it worse? I'm sorry to ask so many questions. I haven't been able to speak with the IBD nurse yet and it is getting overwhelming.

Also, if I don't take them, will the GI doc be mad at me?? I feel so silly worrying about this, but it is playing on my mind!

You shouldn’t absorb much of them as they are topical rather than systemic.
It’s worth a go, and they shouldn’t hurt you further up,.

 

[erk]

Hey, for my biopsy results I received a letter in the post from the GI. With blood/stool tests I had to call my GP to get them, so I guess it would be one or the other.
I would take what the surgeon prescribed you, but if you're really worried maybe you can call the GI?

 

[scottsma]

I agree with the above posts.I was prescribed supps.after my sigmoidoscopy twelve years ago.They are a bit of a nuisance,but they stopped the bleeding.If your problem is in the rectum area (proctitis) they will be of benefit,but I doubt if they'll help with your fatigue.If you're in the UK.you'll get a letter from your G.I.s office with the results of your test, and a follow up appointment, and your G.P.will get a copy of same.I understand you being overwhelmed,we all are at first.Also the waiting time between appts.doesn't help.But that's what this forum is for.You'll get all the advice and support you ask for,nothing's taboo.Be patient,you've started the ball rolling.

 

[rainbowcloud]

Thanks Womble for the reassurance. When I got home, I realised the pharmacist gave me oral pred by mistake, so I have to go back and get it switched. I think it will take a few days for me to be brave enough to try it as well.

Erk, that is good to know I should get them in the post. It's weird waiting for the results, I want to know but at the same time I don't.

Thank you so much for the kind words and support scottsma. It's so reassuring to have people to talk to.

 

[Womble]

Good grief that’s really bad!!!!

 

[curlywurly]

Hi Rainbowcloud
I too have had prednisolone supps it wont do any harm but to give you a lighthearted tale when I tried them I fell about laughing as I had to be a gymnast to insert them, I used them for a few days but gave up as it was hard work.
I hope you get your results soon everyone on this forum is in the IBD club and are here to support you. x

 

[rainbowcloud]

Thank you curlywurly!

When I went to the pharmacist, they showed me the prescription and it actually said oral tablets! So they didn't get it wrong after all.

But the surgeon's report said he prescribed suppositories so I was a bit lost as to what was really going on.

IBD nurse didn't have any answers, so I'm just waiting for my biopsy results before I start taking any medication. Will speak to my GP about it all when the results come through, as I know I can at least rely on her to be straight with me!

 

[curlywurly]

Hi Rainbowcloud.
I really feel for you it is bad enough getting your head round the procedure that you have had without this confusion.
I think you may have to go back to your GP and ask her if she can find out for you what is happening I am assuming that she was the one who referred you in the first instance.
I hope you can sort it quickly and hopefully start some treatment.

 

[rainbowcloud]

Thank you curlywurly I will definitely see my GP when the biopsy results come through. I didn't think there's any point seeing her before then, since I know I'll have questions about the results too. I'm finding it *so* hard to wait for the results. I wish they had come already but it hasn't been two weeks yet.

 

[curlywurly]

Hi Rainbowcloud
The results do take a while I think it is because of the tests they do on the biopsies.
I hope you don't have to wait too long for the results that is the worse part as all sorts of things go through your head, hang on in there.