Pain meds denied

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Oct 9, 2014
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So it took some time(10 months) for them to find out that I have crohn's, started on Entocort in September, not working....flare up! I ask doc last week, if there is something out there that I can take, just to keep me at work and not in horrible pain. He tells me if I looking for pain meds, I am with wrong doc! I am by no means a "pill popper", My mother on the other hand... and I told him, I just want to be able to function. WTH, any suggestions on what I can take.
BTW, He is taking me off Entocort and starting me on Remicade
 
Honestly pain pills exist to help people and it's one thing to not prescribe them like candy but sometimes it's necessary. Id have a straight convo with this doc or find someone new. If you want to stay with the doc you could also goto a pain management doctor who can prescribe.
 
I do like him, unfortunately I don't have many options because of the poopy insurance we have a work! Thank you for the advise, can I ask my gp for a pain management doc?
 
I do understand your doctor's reluctance. I never thought I'd be an addict - I've never taken an illegal drug in my life, never smoked a cigarette and have only once been drunk. I was prescribed codeine for the perfectly legitimate reason of controlling pain when recovering from surgery. I kept the codeine I had left for many months after recovering from the surgery. Later I was feeling awful and remembered I still had, took it, went to the doctor for more - now I've been taking well over the recommended dose, on and off, for over four years.

I can't say what your doctor thought of you, but is it possible he wasn't saying that you are a "pill-popper" but that he doesn't want to turn you into one? The fact that you have genuine pain and will only use the pain meds for that reason will not alter the fact that you will develop a physical intolerance to or addiction to certain pain meds if you use them, and if you use certain pain meds long-term, a physical addiction/tolerance/dependency is almost inevitable. "Tolerance" simply means that you will stop deriving the same benefits from the med and will need to take a higher dose in order to produce the pain-relief effect. A physical addiction means you will experience withdrawal symptoms if you stop taking the med. Even if you have the will-power, or whatever it is, to stop yourself taking it when you want to, and even if you have no desire to take it to alter your mood in any way, your body will become tolerant and addicted.

I'm very sorry if this sounds like a lecture! Pain relief is very tricky for doctors to get right. Effective pain meds are generally the ones that are addictive and that come with side effects. More benign painkillers (paracetamol, Ibuprofen, Aspirin) tend not to be so good at reducing pain (and Ibuprofen and Aspirin shouldn't be taken by people with Crohn's as they irritate the stomach). If your doctor was wrongfully suspicious of you, that was unfair of him, but I'm not sure he could have helped you even if he'd been willing. The best thing is of course to try to tackle the disease itself - the inflammation - rather than controlling symptoms only, but sometimes that's not possible.

I do think there is a place for pain meds - even addictive ones and even long-term - for myself, I've come off codeine many times and feel that I still derive more benefits from it than not. But if you can manage without, it's almost certainly preferable.
 
I do understand your doctor's reluctance. I never thought I'd be an addict - I've never taken an illegal drug in my life, never smoked a cigarette and have only once been drunk. I was prescribed codeine for the perfectly legitimate reason of controlling pain when recovering from surgery. I kept the codeine I had left for many months after recovering from the surgery. Later I was feeling awful and remembered I still had, took it, went to the doctor for more - now I've been taking well over the recommended dose, on and off, for over four years.

I can't say what your doctor thought of you, but is it possible he wasn't saying that you are a "pill-popper" but that he doesn't want to turn you into one? The fact that you have genuine pain and will only use the pain meds for that reason will not alter the fact that you will develop a physical tolerance to or addiction to certain pain meds if you use them, and if you use certain pain meds long-term, a physical addiction/tolerance/dependency is almost inevitable. "Tolerance" simply means that you will stop deriving the same benefits from the med and will need to take a higher dose in order to produce the pain-relief effect. A physical addiction means you will experience withdrawal symptoms if you stop taking the med. Even if you have the will-power, or whatever it is, to stop yourself taking it when you want to, and even if you have no desire to take it to alter your mood in any way, your body will become tolerant and addicted.

I'm very sorry if this sounds like a lecture! Pain relief is very tricky for doctors to get right. Effective pain meds are generally the ones that are addictive and that come with side effects. More benign painkillers (paracetamol, Ibuprofen, Aspirin) tend not to be so good at reducing pain (and Ibuprofen and Aspirin shouldn't be taken by people with Crohn's as they irritate the stomach). If your doctor was wrongfully suspicious of you, that was unfair of him, but I'm not sure he could have helped you even if he'd been willing. The best thing is of course to try to tackle the disease itself - the inflammation - rather than controlling symptoms only, but sometimes that's not possible.

I do think there is a place for pain meds - even addictive ones and even long-term - for myself, I've come off codeine many times and feel that I still derive more benefits from it than not. But if you can manage without, it's almost certainly preferable.
 
If your pain is due to cramping, hyoscyamine might help. It's not a painkiller but is relaxes the intestinal muscles and reduces pain and cramping in some people. Worked for me.
 
Thank you for the "lecture" and not offended....I just don't know anyone with this disease and all so new to me. I guess the most frustrating thing is that I have been seeing this gi doc since March and this was the first time I have asked for anything!
 
Here's the thing; if you are healthy looking and don't tend to show outward signs of illness, docs are going to be jerks about prescribing pain meds. And I get it, they can be addicting and stuff, but come on, Crohn's is a painful disease. I think doctors need a huge wakeup call!
I think it would be worth a try to ask your gp to prescribe pain meds. He may not want to prescribe anything with codeine, but even a prescription strength Tylenol or something like amitriptyline or gabapentin would be helpful. It's worth a shot. Just be real and honest with your gp and tell him exactly how much pain is influencing your quality of life.
 
I had to get my GI to prescribe morphine, it took three months. But the pain is excruciating and I nearly ended up at A&E over the weekend. But I understand that it is a band aid and do not intend to take it long term. I am still undergoing tests so hope the cause of the pain is determined and I can come off strong pain meds.
 

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