Parastomal hernia surgery on 13th june!

[Jimena]

I have another thread here where i write more about my hernia but i thought that new thread would be more about the surgery.

I have hernia on my stoma site. Loop colostomy made last year. Few months back i noticed i have a hernia and it's damn painful. Making my life totally miserable cos i can't do anything but lie on my back cos it's the only way i get pain free.

I met surgeon and they are going to change myloop stoma in to a end colostomy and repair hernia with some kind of mesh. I have surgery on 13th june (friday 13th.....). I meet surgeon next wednesday to hear more about the surgery. What do you think i should ask? Has anyone gone through this? I am kind on excited to have a end colostomy cos my loop is so flush that i have to use soft convex and they only make eakin pelican in on e piece. Hard convex is not good for me cos i also have/had pyoderma and my skin is very thin around stoma. So i am excited to change my pouch system in to coloplast new Mio system!

I am little concerned that my crohns is spread somewhere else too. Last year when i had my colostomy they noticed that 50cm of my ileum was inflamed too! Didn't do anything about it and after surgery ao course it is not nice to hear that... i just want to get disease free even for a one year!

 

[Jimena]

Nooooo, my surgery was cancelled yesterday because there is many emergency surgery patients in line. New date is 25th june. On more week to suffer..

 

[DustyKat]

Oh no Jimena! :ghug:

I hope it all goes ahead on the 25th and the surgery and recovery are speedy and uneventful. Good Luck!

Dusty. xxx

 

[Jimena]

Than you Dusty!! :ghug: I am bummed that the surgery got cancelled but at least i got new date right away. One more week to suffer...

 

[Jimena]

Surgery itself went well. I was at the hospital for week and now i am home. Lot of pain in that side where they put the mesh. Anyway, my new end stoma is sooooo horrible it is so flush with the skin, little skin separation, it is soooo hard to get wafers stick cos it leaks cos it's so flush.

I am soo frustrated that i just want to cry ; (

 

[vonfunk]

It took me about 6 weeks to actually get my new stoma figured out. This new one is so much different than my last one. Mine sticks out about an inch or so but whenever it is active it retracts so that it is almost flush with the skin. On occasion I've felt it pop out of the appliance. When I got out of the hospital my bags would last anywhere from 8 hours to 2 days.
I would recommend trying a few different pastes, and Hollister has an adaptor piece, that looks a little like a bowl with a hole in it that you stretch around the stoma before putting on the appliance. I'm not at home so I don't have the part number.

After constantly checking where the leas were after removing the bag, I ended up putting a ring of paste (either the formed ring or strip) directly on my stomach around the stoma, some paste from a tube to build barriers where it was leaking to built little dam, and I wear an elastic belt done up tight to make sure it stays really close to the skin. Right now I've got my wear time up to 5-7 days.

 

[Jimena]

Thanks vonfunk! Do ypu use convex?

I saw stoma nurse and surgeon today. Now my stoma is all the way separated from the skin now i have to tuck aquacel in the wounds then put paste and ring and then pelican one-piece. It hurts so bad. Surgeon said that wounds have to be clean and little better so they mayby can stitch it back together, mystoma in to my skin. Yikes! Still, my stoma supposed to be permanent (i still have my rectum though) and it is so flush and it is almost sunk in so i really can't see myself living with this for very long

I have had ALL the problems that you could have with stoma. First Pyoderma gangrenosum, then parastomal hernia and now sunk in stoma and skin separation. When will it end?!

 

[vonfunk]

I don't use a convex appliance, I need to get some samples to try them out. The closest I've used is the convex adaptor that Hollister makes.

 

[gmm]

cant they reconstruct your stoma if its separated from the skin?, if so, id be asking them to do that and leave you with a proper spout that will make things easier in future, hope your hassles all end soon and end up with a good result, keep at them

 

[DJW]

Jemima, that's awful.

I use a convex wafer. I like it. I had to use flat until things healed.

I would be looking for the surgeon to fix it. Two years ago my stoma was redone. It was flush with the skin. Last summer I had it done again. It was nothing but problems.

 

[Jimena]

Thanks guys! I am back at the hospital :/ on antibiotics and pain meds. They clean my wounds everyday and mayby do new surgery to correct my stoma. There is over 5cm deep wound right nex to my stoma where the stoma is sunken in and 'poophole' is just there where the stoma is sunken and poop is flowing just in to the wound they back it good but it is still a big challenge.

 

[gmm]

here's hoping they can make you a new spouty stoma while your in there, would save a lot of pain and discomfort in the future too