- Joined
- Dec 26, 2010
- Messages
- 28
Hi,
Wishing everyone a happy 2011. Well, I've had persistent pain for more than a week now. My doc scheduled me for a CT enterography this Monday. He explained that the rationale for having this ct is that he suspects that something might be wrong with the intestines. He refused to repeat the colonoscopy. The last one I had was in 2009 and it was clean. My real problem with diagnosis is that I'm still in the microscopic phase and nothing has come out to the surface. So, he is basing the treatment on the results of the biopsies only which were mild infectious active ileocolitis. I don't think that it is mild anymore.
I started a flare up in september and was put on 40 mg pred which was lowered to 30 and still worked well. When i tapered the dose to 20, I flared up again and the dose was increased to 40 again. He then added azathioprine. Things were going fine until 2 weeks ago. I flared up again and as I understood, pred has become refractory and I'm not responding to it any more. Does any one have a clue why am I not responding although I did at the beginning?
A week ago, I started horrible pain and was asked to take pain killer injections which stopped the pain temporarily. I saw my doctor immediately and he increased aza to 150 mg and decided to taper pred to 30. Honestly, i did not taper the dose. Three days ago, I started screaming out of pain again, called him and he told me to take the pain killer again. I saw him again and he decided to lower the dose of pred from 40 to 30 in a week and then from 30 to 20 the week after. when i objected to his decision, he told me that pred is not working any more, so it won't make a difference. I was put on 4g Salofalk and the 150 mg azathioprine in addition to tapering pred to 35 mg (I decided that on my own). Also, he ordered an urgent CT enterography as mentiond above. The pain is horrible and only that pain killer stops it although i have problems in the esophagus, stomach and dudoneum. He mentioned that I shouldn't worry about my stomach as i take 80 mg Nexuim (but, of course, I have nausea do sometimes vomit).
The problem now is that neither aza nor salofalk have started to make any effect and still weeks to come. pred lost its effect. What shall I do?
My real problem is that I'm praying this time that they find any traces of lovely crohn's in my intestines. All my previous colonscopies were clean, all test markers: crp, esr, calprotectin negative. Only microscopic diagnosis. Is this kind of diagnosis enough to start treatment. My doc told me that all the symptoms go for crohn's. But, wouldn't it be better if we have a definite dignosis?
Wishing everyone a happy 2011. Well, I've had persistent pain for more than a week now. My doc scheduled me for a CT enterography this Monday. He explained that the rationale for having this ct is that he suspects that something might be wrong with the intestines. He refused to repeat the colonoscopy. The last one I had was in 2009 and it was clean. My real problem with diagnosis is that I'm still in the microscopic phase and nothing has come out to the surface. So, he is basing the treatment on the results of the biopsies only which were mild infectious active ileocolitis. I don't think that it is mild anymore.
I started a flare up in september and was put on 40 mg pred which was lowered to 30 and still worked well. When i tapered the dose to 20, I flared up again and the dose was increased to 40 again. He then added azathioprine. Things were going fine until 2 weeks ago. I flared up again and as I understood, pred has become refractory and I'm not responding to it any more. Does any one have a clue why am I not responding although I did at the beginning?
A week ago, I started horrible pain and was asked to take pain killer injections which stopped the pain temporarily. I saw my doctor immediately and he increased aza to 150 mg and decided to taper pred to 30. Honestly, i did not taper the dose. Three days ago, I started screaming out of pain again, called him and he told me to take the pain killer again. I saw him again and he decided to lower the dose of pred from 40 to 30 in a week and then from 30 to 20 the week after. when i objected to his decision, he told me that pred is not working any more, so it won't make a difference. I was put on 4g Salofalk and the 150 mg azathioprine in addition to tapering pred to 35 mg (I decided that on my own). Also, he ordered an urgent CT enterography as mentiond above. The pain is horrible and only that pain killer stops it although i have problems in the esophagus, stomach and dudoneum. He mentioned that I shouldn't worry about my stomach as i take 80 mg Nexuim (but, of course, I have nausea do sometimes vomit).
The problem now is that neither aza nor salofalk have started to make any effect and still weeks to come. pred lost its effect. What shall I do?
My real problem is that I'm praying this time that they find any traces of lovely crohn's in my intestines. All my previous colonscopies were clean, all test markers: crp, esr, calprotectin negative. Only microscopic diagnosis. Is this kind of diagnosis enough to start treatment. My doc told me that all the symptoms go for crohn's. But, wouldn't it be better if we have a definite dignosis?
