Pity Party at My House...

[lisadc1]

So, since the middle of June I have been bleeding...after 6 weeks, it was determined to be C-Diff. CT also showed flare. C-Diff cleared up after two weeks of vanco and bleeding stopped...for a whole week. C-Diff still cleared up but bleeding has reared its ugly head to the point where I have to wear protection for "bleeding accidents"...this is a first at this extent. Meds just don't seem to be cutting it. I feel like I am poisoning my body with no relief with all these meds. Exhausted, feeling like my intestines are dying, frustrated...

 

[DJW]

Sorry you're going through this. I know how frustrating it is.
What meds are you currently taking?

 

[lisadc1]

I am still taking Humira every two weeks, Lialda 4x daily, Lomotil, Bentyl, Entocort 9 mg, Nexium 2x daily, Potassium 2x daily, folic acid...

 

[lisadc1]

Also, have been taking cortiosteriod enemas.

 

[Lam123]

Has your Dr mentioned maybe you need humira weekly?

 

[lisadc1]

He did months ago, but nothing ever happened with that.

 

[Lam123]

Might be something to consider. My last flare went on for awhile until I switched to weekly injections.

 

[lisadc1]

I go back to the GI on the 27th, so I will discuss that option to him. Could you tell a quick difference? I don't mind the injections if they will work, just feel like I am taking them with very little benefit. I am up for almost anything that will tame this thing.

 

[Lam123]

I noticed a small difference at first, and then as time went on I noticed big difference. I think in total it took 2 months to feel back to normal after starting weekly injections. Good luck.

 

[lisadc1]

Thank you! It has been a rough day healthwise. I am so ready to feel and be healthy.

 

[Lam123]

I know what you mean. I'm going through a mild flare right now too. Just not sure when I'm gonna learn not to eat certain foods and low sleep doesn't work.

 

[lisadc1]

I just read your post about that and it sounds like me. Back to school with my firsties and little sleep didn't help things out much. I am so run down, got news of abnormal test results. I won't get those until tomorrow.

Do you have specific trigger foods?

 

[Lam123]

For me I have had blockages, so raw veggies and certain fruits trigger problems. I'm usually ok with those foods if I get good sleep, but I don't get good sleep, so it all catches up with me, and here I am with a flare. I do my injection Friday morning and that will help a lot.