Hi all,
I have had Ankylosing Spondylitis for 30 years and IBD for about 23 years. I have had two hip replacements and one revision due to the A.S. The last three years have been horrible with the IBD. I have seriously thought about suicide because it is becoming unbearable to live this way. I rarely, if ever have an appetite. Usually after a humira injection, I have a desire to eat for about 3 days and then it goes away. My tummy never rumbles or growls so I never know when I am hungry. Prednisone also helps me have an appetite but I have used it so much over the years and it has caused some nasty problems. My GI recently had a MRI done on my abdomen and the diagnosis read: CIRCUMFERENTIALLY THICKENED AND ENHANCING SEGMENT OF SMALL BOWEL IN THE RIGHT MID ABDOMEN AND PELVIS THAT DOES SUGGEST FOCAL SMALL BOWEL ENTERITIS. THIS MAY REPRESENT REGIONAL ENTERITIS SUCH AS CROHN'S ALTHOUGH THE TERMINAL ILEUM IS NOT DEFINITIVELY INVOLVED, WHICH IS SOMEWHAT UNUSUAL FOR CROHN'S WHICH TYPICALLY INVOLVES THE TERMINAL ILEUM IN 90 % OF CASES. So, my GI recently prescribed 6mp. I have to wait three more weeks to use it because I just had a hip revision. Anyhow, I am so desperate. I am so tired of drinking my meals....from protein shakes to green drinks. These drinks are sustaining me but I usually have to force them down to. Does anyone here think the 6-mp could help over the humira or with the humira. Does anyone know if taking out the thickened part of my small bowel would help me to once again be able to have an appetite. I thank all those who are reading this and any advice would be so appreciated. I just cannot imagine living this way anymore. I have found this tough battle for so long and don't have much energy left to continue. Thank you so much for any help.
I have had Ankylosing Spondylitis for 30 years and IBD for about 23 years. I have had two hip replacements and one revision due to the A.S. The last three years have been horrible with the IBD. I have seriously thought about suicide because it is becoming unbearable to live this way. I rarely, if ever have an appetite. Usually after a humira injection, I have a desire to eat for about 3 days and then it goes away. My tummy never rumbles or growls so I never know when I am hungry. Prednisone also helps me have an appetite but I have used it so much over the years and it has caused some nasty problems. My GI recently had a MRI done on my abdomen and the diagnosis read: CIRCUMFERENTIALLY THICKENED AND ENHANCING SEGMENT OF SMALL BOWEL IN THE RIGHT MID ABDOMEN AND PELVIS THAT DOES SUGGEST FOCAL SMALL BOWEL ENTERITIS. THIS MAY REPRESENT REGIONAL ENTERITIS SUCH AS CROHN'S ALTHOUGH THE TERMINAL ILEUM IS NOT DEFINITIVELY INVOLVED, WHICH IS SOMEWHAT UNUSUAL FOR CROHN'S WHICH TYPICALLY INVOLVES THE TERMINAL ILEUM IN 90 % OF CASES. So, my GI recently prescribed 6mp. I have to wait three more weeks to use it because I just had a hip revision. Anyhow, I am so desperate. I am so tired of drinking my meals....from protein shakes to green drinks. These drinks are sustaining me but I usually have to force them down to. Does anyone here think the 6-mp could help over the humira or with the humira. Does anyone know if taking out the thickened part of my small bowel would help me to once again be able to have an appetite. I thank all those who are reading this and any advice would be so appreciated. I just cannot imagine living this way anymore. I have found this tough battle for so long and don't have much energy left to continue. Thank you so much for any help.
