- Joined
- May 27, 2012
- Messages
- 27
What's It Like To Live With This
Scared, isolated, confused, relief
a diagnosis; proof for people to believe.
Aches, pains, bloating, useless
disgusting, different, sore, tiredness
A range of pains that many do feel.
Exploding tummy, stabbed in the guts, its too deep to reach.
Bent over in pain, sick of everything,
you dont want to eat cause you might throw up your meal.
The sudden weight loss down to skin and bone,
some dont give a damn; some pick up the phone.
Pick up the phone to seek advice
because something just aint right.
People are willing to help
but you got to help yourself.
More and more the gut gets affected
thats Crohns disease.
A constant pain ranging from 1-10
a pain that will never cease.
Injections that hurt and make you feel different
side affects that are brutal, and almost as hard to live with!
Joint pain, bad eyesight, anaemic and lack of nutrients.
Want to crawl under your duvet and hide.
Fed up with questions
In need of a break
Getting depressed and feel like ignoring your meds
STOP!
More and more the gut is affected
More of it is cut away.
Take your tablets to help you fight
Its not a cure but taking them is right.
The more it is cut away
The more dangerous it gets.
You cant help it but you just have to live with it
Until one day there is a cure,
But that will take time for sure!
But that wont matter to the ones it attack
the ones who constantly fight back.
The ones who fight with little energy they have.
The disease eats away at their guts leaving them with a bag.
Described as unfeminine, disgusting but necessarily needed
This is a chance to socialise and to regain freedom.
The suffer and stress all lies with them
and most want to help put things together again.
Some things cannot be fixed back like that
and those who are weak and still fight
we should applaud and take off our hats.
They all are brave and never give up
some even escape that dreading bag
but that is never down to luck.
Crohns is a disease
Itll strike at any time
To any gender or age
ranging from one to ninety nine.
Give the people the love and support they need
a hand to hold, a shoulder to cry
and help them to cope and always to feel free.
Free from pain,
free from embarrassment
free from the need to be secluded
and with forever much to gain!
Susan W,
22-May-2012
Not supposed to be scared
I'm not supposed to be scared of anything
But I don't know where I am
I wish that I could move but I'm exhausted
And nobody understands how I feel
I'm trying hard to breathe now
But there's no air in my lungs
There's no one here to talk to
And the pain inside is making me numb
Trying to hold this under control,
God, I feel so frustrated lately
Feelin' weak and weary
Walkin' through the world alone
I don't think I can go on this way,
I don't know how I can face this pain
knowing that the pain will come back
what is there to do with what i have
I'm not supposed to be scared of anything
But this pain is scrapping my intestines
each day that goes by i feel worse
seems like i'm getting paranoied
"will this disease be back already"
nobody understands how I feel
This pain to me is so real
I just wish for 1 moment i was healthy
Why is everything turning black
I'm getting dizzy and the world is spinning
Each day i hunch over knowing im in pain
I'm in the bathroom more then i can count
I'm not supposed to be scared of anything
but i just can't get this off my mind
it langers on my mind knowin im not okay
wish someone could save my soul tonight
cause i don't think i can stand the fight
the battling every night
just makes me tired and not wanting to fight
it feels like i am giving up
whats worth the fight if i can't win
knowing this is uncureable
there a point in time where i'm fine
but when all the lights go out
I'm dreading the day where i sleep tonight
I'm not supposed to be scared of anything
but i'm scared of losing the fight
i take all the things im supposed to take
but i still find no comfort in my body
toss and turn each night/day
1 question linger on my brain
"What did I do wrong"
I'm not supposed to be scared of anything
but i'm scared for my life
Susan W,
14-April-2012
I just thought you guy would wan't to see what i am going thur and yeah there's only 2 poems but those are the best ones that i have so far i'm working on the rest of them to make them better. When i am done i will show them to you.:wink:
Just want to thank everyone for treating me like we are family and which to me we kinda are so thank you:heart:
Scared, isolated, confused, relief
a diagnosis; proof for people to believe.
Aches, pains, bloating, useless
disgusting, different, sore, tiredness
A range of pains that many do feel.
Exploding tummy, stabbed in the guts, its too deep to reach.
Bent over in pain, sick of everything,
you dont want to eat cause you might throw up your meal.
The sudden weight loss down to skin and bone,
some dont give a damn; some pick up the phone.
Pick up the phone to seek advice
because something just aint right.
People are willing to help
but you got to help yourself.
More and more the gut gets affected
thats Crohns disease.
A constant pain ranging from 1-10
a pain that will never cease.
Injections that hurt and make you feel different
side affects that are brutal, and almost as hard to live with!
Joint pain, bad eyesight, anaemic and lack of nutrients.
Want to crawl under your duvet and hide.
Fed up with questions
In need of a break
Getting depressed and feel like ignoring your meds
STOP!
More and more the gut is affected
More of it is cut away.
Take your tablets to help you fight
Its not a cure but taking them is right.
The more it is cut away
The more dangerous it gets.
You cant help it but you just have to live with it
Until one day there is a cure,
But that will take time for sure!
But that wont matter to the ones it attack
the ones who constantly fight back.
The ones who fight with little energy they have.
The disease eats away at their guts leaving them with a bag.
Described as unfeminine, disgusting but necessarily needed
This is a chance to socialise and to regain freedom.
The suffer and stress all lies with them
and most want to help put things together again.
Some things cannot be fixed back like that
and those who are weak and still fight
we should applaud and take off our hats.
They all are brave and never give up
some even escape that dreading bag
but that is never down to luck.
Crohns is a disease
Itll strike at any time
To any gender or age
ranging from one to ninety nine.
Give the people the love and support they need
a hand to hold, a shoulder to cry
and help them to cope and always to feel free.
Free from pain,
free from embarrassment
free from the need to be secluded
and with forever much to gain!
Susan W,
22-May-2012
Not supposed to be scared
I'm not supposed to be scared of anything
But I don't know where I am
I wish that I could move but I'm exhausted
And nobody understands how I feel
I'm trying hard to breathe now
But there's no air in my lungs
There's no one here to talk to
And the pain inside is making me numb
Trying to hold this under control,
God, I feel so frustrated lately
Feelin' weak and weary
Walkin' through the world alone
I don't think I can go on this way,
I don't know how I can face this pain
knowing that the pain will come back
what is there to do with what i have
I'm not supposed to be scared of anything
But this pain is scrapping my intestines
each day that goes by i feel worse
seems like i'm getting paranoied
"will this disease be back already"
nobody understands how I feel
This pain to me is so real
I just wish for 1 moment i was healthy
Why is everything turning black
I'm getting dizzy and the world is spinning
Each day i hunch over knowing im in pain
I'm in the bathroom more then i can count
I'm not supposed to be scared of anything
but i just can't get this off my mind
it langers on my mind knowin im not okay
wish someone could save my soul tonight
cause i don't think i can stand the fight
the battling every night
just makes me tired and not wanting to fight
it feels like i am giving up
whats worth the fight if i can't win
knowing this is uncureable
there a point in time where i'm fine
but when all the lights go out
I'm dreading the day where i sleep tonight
I'm not supposed to be scared of anything
but i'm scared of losing the fight
i take all the things im supposed to take
but i still find no comfort in my body
toss and turn each night/day
1 question linger on my brain
"What did I do wrong"
I'm not supposed to be scared of anything
but i'm scared for my life
Susan W,
14-April-2012
I just thought you guy would wan't to see what i am going thur and yeah there's only 2 poems but those are the best ones that i have so far i'm working on the rest of them to make them better. When i am done i will show them to you.:wink:
Just want to thank everyone for treating me like we are family and which to me we kinda are so thank you:heart:
