I have been sick for two years now and i'm so sick and tired of people telling me that it's all in my head. I was finally diagnosed with crohn's disease in January of this year and although everyone knows now that it wasn't in my head..they still treat me like i'm faking it. I suffer in silence everyday. I have to ask someone to take me appintments all the time because I can't drive because of the medications i'm on and everytime I ask they just seem so annoyed and that just makes me feel even sadder. I have two kids to take care of and the doctor won't even fill out my papers for dissability because even though my test results are horrible, he seems to think that I can handle and go to work. Feels good to have somewhere to vent to people who understand how I feel. I'm am so glad to have found this forum becasue I don't feel so alone anymore Thanks!
Pooped Out!!
- Thread starter linder553
- Start date
Help Support Crohn's Disease Forum:
No, you're not alone! You can come here & post all you want; there are people that understand. Now you can tell everyone that said it was all in your head...nah, nah, nah, nah, nah! :tongue:
I am very sorry you do not have a support system around you physically though. It makes it harder, but not impossible, to deal with this disease.
I am not in Canada, so I do not know how the system works there, sorry. I know it is very difficult to receive disability in the states.
Look around the forum. Check out the treatment sub forums.
:welcome:
Michele
I am very sorry you do not have a support system around you physically though. It makes it harder, but not impossible, to deal with this disease.
I am not in Canada, so I do not know how the system works there, sorry. I know it is very difficult to receive disability in the states.
Look around the forum. Check out the treatment sub forums.
:welcome:
Michele
ameslouise
Moderator
- Joined
- Feb 11, 2010
- Messages
- 2,821
Hi Linder - ditto what Michele says above.
Ask you doctor point blank why he thinks you can handle things and work. And then tell him that you CAN'T!!!
I'm not a pill pusher (well, maybe a little) but have you thought about maybe going on an anti=depressant? It might help a lot and there is a class of antidepressants called tricyclics that have the added benefit of being good antispasmodics.
Why is it that the people around you think you are faking and get annoyed if you ask them to drive you to a doc's appt??? These are not friends if they are acting this way!
Maybe there's a local support group? Ask you GI doc or the nurse to recommend one. Or check the CCFC - Crohns and Colitis Foundation of Canada - to see if there's a chapter near you or any events you can attend to meet others locally.
Hang in there. You are NOT alone!
- Amy
Ask you doctor point blank why he thinks you can handle things and work. And then tell him that you CAN'T!!!
I'm not a pill pusher (well, maybe a little) but have you thought about maybe going on an anti=depressant? It might help a lot and there is a class of antidepressants called tricyclics that have the added benefit of being good antispasmodics.
Why is it that the people around you think you are faking and get annoyed if you ask them to drive you to a doc's appt??? These are not friends if they are acting this way!
Maybe there's a local support group? Ask you GI doc or the nurse to recommend one. Or check the CCFC - Crohns and Colitis Foundation of Canada - to see if there's a chapter near you or any events you can attend to meet others locally.
Hang in there. You are NOT alone!
- Amy
Dont feel bad,20+ years ago when I was first getting sick and didnt know what was wrong one Dr. told me I should go see a therapist,that it was all in my head.When I was diagnosed with crohns I felt like going back to that Dr. and throwing my intestines that Id had taken out on her desk and saying heres what you thought was in my head.There are always going to be people who dont believe how sick you are.they arent worth a second thought,only people that have to live with this disease know how horrible it can be and how it affects your everyday life.
You are not alone!!!!!I am so sorry that you are having some challenges finding support. I am also a mother of two and it is so difficult to meet their needs and take care of myself. I have few friends that really understand and I have learned only to discuss my issues with those people that can listen with compassion. Thankfully you have found this forum. Took me 20 + years to look for support.
I got the "in your head routine"after losing 40 pds in 2 months. At the time I was only seventeen and very weak or this small medicine man may have recieved some teenage hostility up close and personal.
In retrospect the wost part was being told that there was something wrong with my head by a proctologist. Ridiculus!!!
I got the "in your head routine"after losing 40 pds in 2 months. At the time I was only seventeen and very weak or this small medicine man may have recieved some teenage hostility up close and personal.
In retrospect the wost part was being told that there was something wrong with my head by a proctologist. Ridiculus!!!
Similar threads
