Poor me, poor me, poor me another

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Jun 24, 2009
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poor me, poor me, poor me another

Hi Everyone,
Its taken me a while but ive finally got round to writing my story...i've been reading some of yours and can really relate to them! two years ago i took my daughter to the GP with something or other but the doc took one look at me and forgot about poor little Rose! Commenting that i was extremely pale he took my bloods and called me two days later... my HB was 7.2 which is very low, he asked me if i was well in myself, and not been one to cause a fuss i simply said yes. He prescribed me with iron and told me to take it easy. It wasn't untill i went back some time later that things took a turn for the worst. complaining that i was always shattered, run down, and had constant upset tum and drastic weight loss (2 stone!) that i was reffered for a colonoscopy. I still didn't take things too seriously untill my appointment with the Gastro specialist finally came through and i was told they thought i was suffering with chron's! since then (cutting a very long story short) I've had 2 more colonoscopy's, a small bowel enema, a capsule endoscopy and a barium swallow!!! my GI, has confirmed chron's and prescribed me with pentassa. My stomach has now taken over my whole life! Im often doubled over with RIF pain, constantly on the toilet (gross) and suffering from a burning sensation all through my gut. I feel like im been a total hypocondriac and that i sound like im exagerating my symptoms, but of course im not.
I work as a nurse and see people in pain all of the time but sometimes feel that i would trade places with them on a frequent basis. I have become almost a recluse, just incase i need the loo! is this normal??? i'd really appreciate some feedback. Thankyou all for reading x
 
:welcome: tullybuc! I had a different and interesting way to being introduced to the life of crohns. I have yet to have the pain you are describing, but I know that several others on here talk about the same kind of pain. It sounds like what you are experiencing is normal for Crohn's patients. I'm sorry you have to be joining us here because of it ... but glad you're here! Welcome. Oh ... and there is no gross here really. :) You'll notice we all talk about poop and being on the potty all the time as if we were talking about the weather. Take a look around and get comfortable. You've come to the right place!
 
Welcome to a place that I have found, all can relate!!
I did not become a reculse, but I'm not a shy person and can, well, go anywhere if you know what I mean! A bear isn't the only thing that poops in the woods. (Great saying I got from this site.) So welcome!
 
Hi Tullybuc and welcome to the forum! I haven't needed to yet, but I do know there are LOTS of people on here that plan days around the location of bathrooms (loos)! So you are very much normal around here. There is lots of information and great people for help and support on this forum so soak it all up! Like misscriss said, there is NO gross here :).
 
thanks peeps

Thankyou for your kind words guys!
I must admit even before i was diagnosed I had a fear almost of going to the toilet in a public place...if i could over come that then maybe my condition would not seem so bad.im going away for the night with my partner tonight and instead of been able to look foward to it i'm dreading it incase i have to run...im so glad i've found you all its nice to hear that im among others (though not nice under the circumstances for you guys!).
 
By some cruel twist of fate I have an intense fear of going to the toilet in a public place! I'm very envious of those who seem to be able to breeze into a cublicle, even in a crowded public toilet, and let rip!
When I go on holiday, I can never relax until I've checked the toilet in the hotel room... does it flush properly... is the seat fixed on right... is there a healthy supply of spare rolls of TP at the side!
Don't suppoose that helps, but you're not alone!
 
Welcome Tully! I too just found this forum and it has really helped me to realize that others feel the same way as me! Now I don't feel so alone with this illness. I do not know anyone else with CD so this is my way to sharing what's going on.

Also - I pretty much stay at home or somewhere I am comfortable when I am having "episodes" because it is tough for me to go in public places. I have been getting a little bit braver in that aspect, but I still make sure I know where the closest restroom is everywhere I go!
 

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