Hello,
I’m currently trying to taper my prednisone after a Crohn’s flare in March 2018.
I was on humira, but had terrible side effects so stopped, which then caused a flare, and I’ve been on steroids since March.
I managed to get down to 15-10mg keeping the inflammation mostly under control. 3 weeks ago my docs gave me an infusion of Ustekinumab, and I tried tapering to 7.5mg and was able to! I hadn’t been able to get below 10mg without my symptoms coming back so this was great!
I did 7.5mg for 5 days and then gave 5mg a go, and I seemed fine, so after at week at 5mg, I’ve tried 2.5mg on Sunday for the last 2 days I’ve felt awful. Can’t sleep, achy and headaches.
Do I need to slow down the taper, maybe go back to 5mg or power through?
The Crohn’s symptoms have largely remained at bay, other than a few twinges, which considering I was also put on iron in the last two weeks seems like a miracle!
Any advice would be appreciated please - thank you!
Susabelle
I’m currently trying to taper my prednisone after a Crohn’s flare in March 2018.
I was on humira, but had terrible side effects so stopped, which then caused a flare, and I’ve been on steroids since March.
I managed to get down to 15-10mg keeping the inflammation mostly under control. 3 weeks ago my docs gave me an infusion of Ustekinumab, and I tried tapering to 7.5mg and was able to! I hadn’t been able to get below 10mg without my symptoms coming back so this was great!
I did 7.5mg for 5 days and then gave 5mg a go, and I seemed fine, so after at week at 5mg, I’ve tried 2.5mg on Sunday for the last 2 days I’ve felt awful. Can’t sleep, achy and headaches.
Do I need to slow down the taper, maybe go back to 5mg or power through?
The Crohn’s symptoms have largely remained at bay, other than a few twinges, which considering I was also put on iron in the last two weeks seems like a miracle!
Any advice would be appreciated please - thank you!
Susabelle
