Probiotics, crohn’s disease, and tumor necrosis factor (TNF)

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Good to hear that scientists are starting to recognize things we already knew about. Heres to hoping they finally move on with this proof.
 
Boy, am I a gloomy gus today. I read that, and instead of focusing on the positive, I see the downside. First, I see the 'negative' side of the whole scientific research as a hope of getting cured scenario.. to whit, their conclusion.. that it merits a further study... c'mon, for cripes sake. Go out on a limb and advise health practictioners to give it to their patients.. Second, why is a study like this coming out of a website for SCD? Why isn't it front N centre in spots like the CCFA, or the GI's medical journal? I wonder why there isn't a central clearing house so that info like this isn't lost on us. Hmm, think I'm turning this into another daily rant. time to go off and chill out.. maybe go shopping for some extra L casei or L bulgaricus too
 
Thanks for posting that, Mazen! I did not know of the study at all.

And I sure do year you, Kev. It seems like there is so much we have to do/find out for ourselves with this dd, and all the while our doctors chide us for doing so because wea re "not qualified" (to quote a Monty Python skit).

As I read this it just so happens I am gulping down a yogurt smoothie (SCD yogurt, that is) made with the required L. Bulgaricus, S. Thermophilus, and L. Casei yogurt starter cultures. http://www.giprohealth.com/starter.html Feeling pretty good these days, intestinally, at least. But check this out: my GI doc habitually gives out samples of "Align", a probiotic containing only Bifidobacterium Infantis, a bacteria that is specifically prohibited on the SCD. I'm not saying she's wrong in doing so; this bacteria is in most yogurt we buy and she claims her patients report benefit from taking it. I'm just agreeing that this area needs so much transparent study.
 
Well I asked my doctor about probiotics, and he said he doesn't advise taking any supplement as nothing is proven yet, but if I want I can eat all the yoghurt I can.... I also asked him about VSL#3 and he said it's not proven for Crohn's but only for pouchitis... I read somewhere that they are trying to test VSL#3 for Crohn's. I hope they just do more tests on probiotics and recommend doctors to give them to patients, instead of all these toxic meds.........

By the way, Killerzoey, as you are on the SCD diet, and you seem to have the same symptoms as me (I have my Crohn's in the terminal ileum, no D, but sometimes constipation, and mainly pain in my LRQ, and I also have some narrowing in the ileum, so I have problems with fiber), did you ever try the probiotic they sell on SCD sites, the LYO-SAN Acidophilus Yogurt capsules?

http://scdiet.com/store/page5.html
 
Last edited:
Not proven. This is where I get confused about the whole concept of medicine.
If there is some chance of an adverse reaction, I understand the arguement or at least know the risk has to be weighed.

Probiotics, have no known negative side effects, so who gives a hoot if the utmost in studies have not been done. If it helps won't you be the first one to know? If it works for you and a later study denies any effectiveness, would you quit taking it?

I had little effect from probiotics, but there are enough people here that have had a good result to reasonably expect that it would work for a certain percentage of other people also.

How do others veiw this example of fairly typical medical logic? Maybe I am missing some important element.

Dan Bergman
 
Well, lets look at it. He didn't veto it, just didn't advise it because no studies have been done to prove it is effective. obviously a very cautious, by the book approach. Maybe its a case of professional C.Y.A., or maybe his personal agenda it that he does not offer professional opinion on something w/o sufficient supporting medical evidence to back it up. Who knows? A naturopath, or a nutritionist would most likely be better positioned to advise using it... A less cautious doc might say that, since the jury is out, and there's no evidence of it causing harm, to go ahead and use it.. But, between voracious lawsuit lawyers; and the topsy turvy world of what's in today is out tomorrow, I can understand a doc who prefers to go just by the book. I'd seek a more agressive approach in a doc if my disease was agressive, but if the disease wasn't, then IF the doc suggested a treatment that wasn't backed up by serious studies, then my question would be where he trained

I mean, some very innocent looking things can play havoc with our lives/treatment

St John's Wart, grapefruit juice, milk, orange juice.. those are just some that come to mind as having some pretty nasty consequences when taken with medications.

My background is IT. Over the years, I've seen some hotshots who shoot from the hip AND asked questions later. I've also seen some who opted for the methodical approach, never taking any risks, always knew what the outcome would be before they acted. Totally different approachs, each has it's merit, and its weaknesses. I see a role for each of these approaches in the IT world, neither is a sole 'method'
 

Latest posts

Back
Top