Profesional Patient

[KathleenFoxPolizzi]

My story is very long, and I am quite I'll at this time.
In a nutshell. Had around 50, surgical procedures.
Been on and off steroids for 30yrs. Also almost every medication for Crohn's.
At this point, I have been told by my GI,to find a Crohn's specialist.
Which will mean 100mile drive to either Chicago or University of Madison.
I was told to try Remicade but that costs $3500. I am on Medicare/Disability
coverage, which means, they won't approve it.
I have tried several other avenues to try to get assistance, to no avail.
Also have advanced bone loss and osteoporosis. So I also need Boniva
iV. Which was attempted last wk. This one is covered because it's administered
at a clinic. I was so dehydrated no one could get IV started, next to ER
13 needles later, just to hydrate me, never got the Boniva in. 3 more
needles for blood work. Done it all, an essex, fistula X 4yrs.
If I can't improve by Friday I will have to get my, lost count, central line.

 

[can't take it any more]

sound like u should have a port a cath. i got one in my chest about a year a go now and what a help it has been you can give ur self fluids at home when u get dehydrated. they could aslso do your boniva threw it. the best part is you only have to get stuck with a needle every once and a while into the port witch really doesnt hurt after a while. i wish u all the luck ask ur doc about cimzia its a biologic like remicade. im on medicade and they cover it. hope u feel better soon

 

[AndiGirl]

I just wanted to say, "Welcome to the forum." This is a great place for information and to make some new friends along the way. Even if you just want to vent, we're hear to listen.

 

[HeatherMN]

Have you looked on the Humira website for info? They have a patient financial assistance program.

Go to www.myhumira.com and get signed up, it's pretty easy. They have all kinds of help on there, syringe disposal program, information, forums, shot reminders, etc.

I have insurance, but I only pay a $5 copay using the plan, my copay without the plan is $700...

 

[KathleenFoxPolizzi]

Thank you, I will check out the Humira site.