- Joined
- Jul 10, 2012
- Messages
- 1,231
Hi I'm a newbie too and I've been diagnosed with indeterminate colitis which means they don't know whether it's Crohns or ulcerative colitis. I had been suffering with this for 4 months before I done anything about it which I regret so much. I just got imodium from my doctor hoping that would help. It didn't ended up getting admitted in hospital was in there 4 weeks treatment wasn't working for me was on prednisone and had 1 session of infliximab. I ended up having a emergency ileostomy my large bowel could of burst at anytime and could of killed me. My question is has anyone had there rectum removed and their ileostomy made permanent. How do they do it go through stomach or bottom? Is it really painful and how long do you struggle with sitting etc? I've got to go bk in November to make my decision of whether to be joined up or get rectum removed. I feel with being diagnosed with indeterminate colitis that I have no other choice because the main reason for the internal pouch failing is undiagnosed Crohns disease. Many thanks Rachel