Rediagnosed from Crohns to UC

[ABJane526]

So I've already done the whole intro post and explained about my Crohn's disease and everyone was really helpful. Unfortunately after changing to a more competent Doctor it's been recently discovered that there is no sign of Crohns that it is ulcerative colitis. I haven't done too much research as googling any health problem for me usually leaves me anxious after self diagnosig with every disease imaginable. (Webmd is not safe for anxiety/OCD sufferers) so basically I've been bleeding on and off but mostly on an sometimes a whole lot for more than a year. The bleeding started April of 2012 and is still going. I've started canasa suppositories that do less than nothing and mesalamine liquid suppositories which actually work fairly well. My frustration is that he has me doing the liquid once a week when it clearly works better and says on the bottle it's safe for everyday use. Aside from trying to control the bleeding I've developed pain on the front and back of my sides (sort of where you'd place your hands on your hips naturally.) That pains been like a dull throb unless I sneeze or cough or stretch then it's sharp. If I had to guess if say its mostly on my left side and the dr told me the inflammation is almost all rectal. Is there any questions I should be asking him at my follow up appointment? Is there anything I should be doing at home diet wise or otherwise?

 

[Jennifer]

Hi ABJane526 I'm really sorry you haven't had any responses yet. I moved your thread into the UC section in hopes that you'll get more responses here.

I don't have UC myself but Prednisone may help get the inflammation under control and help stop the bleeding (it also come in foam/enema form) assuming you haven't tried it yet. Aside from that talk to your GI about using the mesalamine liquid more frequently since you feel that it clearly helps. If they aren't interested in hearing you out and dismiss your symptoms then you may have to find another GI.

Here's general info on UC: http://www.crohnsforum.com/wiki/Ulcerative-Colitis
You may also find this helpful: http://www.crohnsforum.com/showthread.php?t=51898

How are you doing now? Did you already have your followup appointment? Keep us posted on how you're doing.

 

[Cross-stitch gal]

Sorry that I haven't seen this sooner. I too have gone through the same thing. I was first diagnosed with UC, later with Crohn's and then this year when I found a more competent doctor he changed my diagnosis back to UC and Ulcerative Proctitis.

I'm sorry to hear that you're still dealing with pain and blood. I would make sure and mention this to your doctor! This is something that my new GI has told me that he'd want me to keep him updated on. I'd also mention about the liquid working better than the canasa.

Another thing that could help is to keep a watch on what you eat. I can admit that I too need to do my series of trial and error in this. But, it might make things easier if you can find what foods you do well with along with those to stay away from! Please keep us updated on how you're doing and feel free to contact me if you need to talk. Xxxx