Rheumy visit :(

[BlueEyes]

Well, after 2 months wait, daily unrelenting pain, I saw a rheumatologist today. And left in tears. I'm still so down its ridiculous. I don't fit the clinical picture for systemic autoimmune disease. Maybe neurological, maybe need medication for that. He took lab and x Rays. I cried. He asked if I was depressed. I said NO! I'm frustrated. I am in pain. I can't do anything. I have 2 heating pads and am considering getting a 3 rd. His answer was very technical and correct. And I am so sad I'm still near tears. I go back in 2 weeks.

 

[Lady Organic]

im sorry to read this. I had to change rheumatologist because my first one was horrible. she kept saying I didnt have arthritis and even gave me wrong diagnosis and treatment. I was literally panicked at this time. after the rhuemy decided she couldnt do anymore for me she sent me to hand surgeon with wrong diagnosis for surgery. That man with long term experience didnt belive the rhuemy and sent me to a special test to diagnose arthritis. The test showed arthrits. I changed rhuemy after and the new one admits my case is a bit unconventional because I dont exhibit visible swelling of my joints. It still didnt stop her from offering me treatments and great care. So dont give up. wishing you well.

 

[BlueEyes]

Thank you, I won't give up. I'll wait for the test results. Then I will tell the dr that referred me and my PCP. Hopefully they will refer me to another or offer some other support

 

[my little penguin]

http://www.spondylitis.org/about/ibd.aspx

Please make sure the next rheumo is familiar with spondylathritis
It is very common with Ibd
It presents differently than RA

 

[BlueEyes]

Thanks for the link. I will study it more. I did mention spondylitis. That's why he took cervical and thoracic x Rays. His whole approach and demeanor was that he only wanted answers to his direct questions. He asked me if I had any sharp pain. I told him none of my pain is sharp. And when I told him about my rashes and raynauds symptoms he asked me if they matched his textbook pictures (he really showed me pics) . He said my presentation was unconvincing. Because my pain quality is not what he thinks and because I don't match his textbook pics. I will go to the follow up and get my results. And go from there.

 

[my little penguin]

He was looking for anklyosing spondylitis which is not the same ( much more severe ) than spondyloarthritis .
Please research the difference