Rough Patch

[Joleen23]

Hey guy's ,
Just feel like a need a bit of a moan.
Just got out of hospital , been in for 2 weeks with a flare up and c-dif.
Am now under a new GI amd have had my meds changed.
Am blown up from 2 weeks of iv steroids, have a moustashe and a hump now.
I ended up with critically low potassium, so had muscle fatigue. Also needed a blood transfusion this year. As i've been off work for 6 months in total due to my crohns i am now on half pay which in 3 months will go to nil pay. I am due to get married in August and we were already on a budget but we were coping, now i really don't now how im going to afford it. Im terrified that im going to end up back in hospital again, This is the 4th time this year. I just really am struggling to see any positives at the moment. I was diagnosed in Nov and my condition seems to be getting worse, People keep saying that you have to hit rock bottom before going back up , but ive been at rock bottom for months now.
I just am not the same person anymore. I have no confidence , i have never felt so worthless/fat/ugly in my whole life. I just want to be me again :yfrown:

 

[bruscar]

Oh Joleen,

BIIIIGGGGGGG HUGS to you !!

For what its worth i used to tell myself that if this is how bad things are, and that they have never been so bad then they can only get better !!

Keep the chin up and hang in there, it will all be worth it in the end !! . . . i promise.

i bet i have got ten stone more than you to carry !! . . . and your way better looking than me too. . .

Take care



Bruscar

 

[margie]

Joleen,
I know how you feel for sure, I feel so fat with this distended abdomen that makes me look like I am about 9 months pregnant and people look at me like I am nuts, like I am pregnant at my age. Not good. Been like this for 2 months now with still no answers as to why.

Hang in there, I keep telling myself that they will find the answers soon. Sure hope you start to feel better too.

You will be in my thoughts and prayers.

Bruscar, not so bad looking yourself.....

Big Hug

 

[Joleen23]

Feeling a bit better today , my fiance took me out and it was really sunny. So things aint so bad , am home and have lots to look forward to this year.
I should be off the pred soon , and my new GI told me that he will get me fighting fit for my wedding (he seemed quite confident in this) so guess i just need to stop stressing as it's just going to make me worse. Just sometimes feel like i need a good moan and know that the people here know what im going through.
Started my new meds (azathiprine) a few days ago so hopefully they will make a difference. So far only really tried asacol and pred.
Gonna try stay positive , not going to let this beat me!
Big hugs back

 

[Terriernut]

Thats the spirit Joleen! When everything looks at it's worse, you may have to search far and wide for a positive, but it's out there somewhere! For instance, have you seen trees and daffs? You did, and they were AMAZING!

This disease goes in cycles, and so does all of life. We go down, we get back up. Winter...then spring. We just have to keep looking forward. Things could always get worse, and just when we think we have it bad, someone else has it worse! Only way I keep myself sane is to see what else is going on and count my blessings. You young lady have a wedding to look forward to, so you are going to get better posthaste! Go on then!!!! Whooot!!!! You're gonna loook gooooooooooood!!!
Misty

 

[margie]

I agree with Misty, you have a lot to look forward too and yes you are going to be an absolutely beautiful bride.

 

[xJillx]

How are you feeling, Joleen? I hope even better! And I agree, try not to stress too much. It is certainly not good for the Crohn's. And you need to get in tip top shape both mentally and physically for your big day! When is it?

 

[Joleen23]

Feeling good today, still getting some pains but not too bad, My fiance and his dad decorated my room fo me as a supprise, really cheered me up.
Im getting married 27th August , so got a little time yet , start tapering the pred next week so hopefully will be looking a bit more like myself by then.
Thanks for all the support guys , everyone's so nice on here , really does help :0)

 

[bruscar]

Ah margie you will make me all red !!

Hey Joleen,

Thats great that you have what seems like a bit of time (to a man, i mean) before your wedding.

Not that you need it, you will be in great form by august !!

Having said that, you can moan here all you want and get it off your chest.

Good luck with it all

Bruscar

 

[margie]

Bruscar
Oh so you are the blushing type.....lol

Glad that you are feeling better Joleen

 

[ameslouise]

Joleen - Glad things are starting to improve for you.

- Amy