Safe foods

[Babe123]

safe foods

i have jsut been diagnosed with crohns but no one has explained to me what kind of food i should be avoiding and what is safe

i also get cramps after i eat.. could this be related to what i eat?
x

 

[amor151]

crohns seems to affect everyone differently but soom foods i would recomend staying away from are hot and spicy things e.g spicy curries, pepperoni etc... Also milk can often make alot of people with crohns feel unwell and in need of a bathroom quickly!

when i was first diagnosed i also got cramps after most meals so changed my diet so i was eating very small meals but much more often to try and ease the pain. this worked to a certain extent.

something you may want to discuss with your doctor is a low residue diet a.k.a no fruit and veg! it may seem odd but the fibre in the fruit and veg was causing me immense pain and easing off it seemed to help alot. even today 6 months on im very cautious about eating fruit and have supplements and other things to try and make up for this.

everyones body is different and these are just things that have affected me and things that i have done to try and counter them. try and discover what foods seem to cause the worst pains and try to aviod them

something that really helped me discover what foods to aviod was applied kinesiology. applied kinesiology is a method that detects what foods cause discomfort in the body. i found i was weak when tested with glucose,milk,orange juice and chocolate. I avoided those foods for a while and found my stomach cramps eased. have a read of the article ive posted a link to below and see what you think. the chiropractor from derby mentioned, Ian Reed, is actually the very man i went to see about my crohns and would strongly recomend a visit to crohns sufferers. http://news.independent.co.uk/health/article228603.ece

all the very best and sorry that youve been diagnosed

 

[amor151]

also i know in the article Ian Reed talks about IBS but he also knows alot about crohns and is a really easy going person who can relate to us as he suffers from IBS himself which, although isnt as bad as crohns, is still along the same lines as our disease.

all the best

 

[Guest]

i can absolutely identify with the eating/pain reaction laura. when i was around your age, my crohns was really affecting my life, in a vicious circle.. if i ate, it hurt, if i didnt eat, i became weak and lost weight. plus, there was the emotional side - not eating the meals my mother cooked for me caused me to feel really guilty

one way to possibly look at the pain problem, after eating, is to think of the sore patches within your intestine (the ulcers), and imagine the food you're intaking having to pass these sore areas. it makes sense therefore to look at the low residue diet that amor mentions. anything which takes a lot of digesting (such as some vegetables, particularly things like baked potato skins, al-dente vegs) should be avoided. depending on whether or not you have a narrowing where the ulcers are, this diet could be taken one step further to incorporate soft foods such as mashed potato, scrambled eggs etc.. so that passage is easier. also, the "little and often" approach worked a lot better for me than large meals with long gaps in between.

i would definitely seek advice from your doctor or your specialist on diet, they may even refer you to a dietician - as, even though you will learn by trial and error, you could avoid a lot of discomfort while you're discovering what suits you and what doesn't. also there is the issue of nutrients/vitamins - going on any sort of restrictive diet can deplete you of these, so i would recommend you ask advice on that score as well.

good luck, and i hope you get on an even keel with your food very quickly.


dingbat.

 

[Babe123]

thank you


i have a narrowing/ thickening of my small intestine so i think eating more soft foods would be better for me. im trying to eat small portions but its hard cos im used to eating whatever i want to and now ive got to stop.. i suppose it wilbe easier as time goes on but im really poor at self discipline.i get hungry really quickly so ive always got to be nibbling at something. i have somedays where im not hungry at all. sorry if im babbling lol am stil trying to make sense of it all...the doctor i was seeing in hospital hasnt explained anything to me.. i think he just expected me to know it all.
x

 

[Sojourn]

im trying to eat small portions but its hard cos im used to eating whatever i want to and now ive got to stop..

This is not easy even after many years w/Crohn's. But eventually it comes down to how you want to feel. Before you eat that big meal, or something you like but know is not good, you have to realize that it's going to make you feel bad maybe for the rest of the day or the next two days. Eventually this forced me to really avoid the big meals and trigger foods. Though, have to admit, sometimes when I know I'm not going to be working or have to go anywhere I'll indulge a little and pay the price.

I agree with the posts above about the low-residue diet. It's a good starting point and still leaves you many options. If you google it you will find plenty of information. Some of the basic rules are avoid raw fruits and vegetables, nuts, corn, and tough meat.

 

[Kev]

Well, Laura, at my worst, I'd get cramps no matter what I ate... normal food, safe foods, solid foods, soft foods.. even got to the point where drinking water hurt. I don't know if that applies to everyone, as everyone reacts differently to IBD. The 'safest' thing to do is to research online, or get your hands on a crohns diet, or to see a nutritionist or dietician who specializes in IBD diets. An important thing to do is to keep a daily diary of what you eat, what meds you take (and when/how), and what effects you notice in the next 24/48 hours. it will help you fine tune your diet and regimen till you get to the combination that works best just for you. And it helps to have this with you when you see your doctor for updates or consults. Having everything written down; symptoms or questions, etc., will ensure that you don't forget to talk to your dr about them.

 

[jjs16]

Hi Laura,

Recently I had some issues with bean sprouts from an eggroll, my Dr said they are very bad for me along with raw veggies such as celery and peppers. I've also had problems with raw fruit.

j

 

[Babe123]

oh no.. i love raw peppers.. there so yummy. i think i wil have to try different foods out and see what happens. i start back college again next week i dont know what i am going to do for food because i used to jsut go to the shop for a back of crisps and now i cant do that. i dont like eating meals infront of people i dont know lol.

ive started a food diary, recording what i eat and when and if i get any problems after, im hoping it wil help me to see what foods cause me problems.

do raw carrot cause anyone problems?

did anyone else keep a food diary and if so did it help?
x

 

[D Bergy]

Carrots do not bother me at all. I can eat most any type of peppers, even the hot ones. I cannot tolerate green peppers at all. I do not like them anyway.

Dan Bergman

 

[Babe123]

green peppers taste sour to me lol. i love the red ones.

i cant eat hot food lol makes me jump around. even when i have a curry i have to add sugar to it and have it extra mild cos i cant stand hot foods.

x

 

[Kev]

I keep a food diary, it helped immensely, and I heartily recommend it to one N all.

I don't eat raw veggies (and having been extremely fond of salads, I miss them terribly). All my veggies are cooked to a mush, and I peel everything that I can, and avoid those I can't. (on the advice of nutritionist). Think one of the 'major' mistakes in the diet of people affected by IBD is equating 'noticeable' effects of food intake with whether or not the food is safe (or advisable) to consume. My take is that our GI tract suffers quite a lot, and we should treat it like a baby. I avoid food items that have an immediately noticeable bad impact on it, I also avoid/limit those foods that I've been told on good authority to watch out for. Like, people who end up with arterial hardening didn't notice it was happening day to day... Healthy people have to watch what they eat, we should be even more careful of what we eat. Doing otherwise just isn't good common sense. I don't see my personal stance on this as going overboard... like I know myself I would have an extremely hard time sticking to a regimen like the SCD diet, so I haven't gone that route (yet).. But neither do I intend to play with fire, as the risks are just too great. my goal is to behave myself to avoid (if at all possible) a colostomy... or at least delay it. Taking reasonable precautions at least lets me believe I'm working towards that goal, even if i'm only fooling myself. Better that than to end up on the OR table, facing a colostomy, KNOWING that I didn't take those precautions. I don't think I'd survive the 'arse' kicking due me when that occured. Adopting a 'more' healthy diet surely can't hurt me in the interim.

 

[Babe123]

whats a SCD diet???

i want to try and control my crohns through diet if i can

when i was in hospital they were forever poking n prodding with needles and i never ever want to go back there again lol.

im crap at self discipline when it comes to food. i love everythink i cant have.

its just like being told i cant do something, if a food is out of bounds it makes me want it more. i think im craving lucozade caffine boos tin lemon, i used to survive off them!! and now i cant have them

 

[Kev]

Well, the SCD stands for specific carbohydrate diet. Google it, or search the forum

I caution you, it isn't for the faint of heart. My understanding of it pretty much means you have to adher to the diet strictly, no slips, no compromises, for it to do its' thing.. and that commitment is supposedly for at least years before one is to try 'weaning' off it.

I believe (don't hold me to it, I briefly looked at it and decided it was too strict for me to commit to, and that; unfortunately, one has to commit to it to work)
that it proposes limiting ones intake to just those single strand form of carbs, no double or multi chain carbohydrates.. on the principle that single strand carbs are easiest for our compromised GI tracts to deal with.. and removing all others prevents the related issues from them. People who adopt it, stick to it, apparently swear by it, as it reportedly removes all/most of their symptoms. to me, this is merely avoiding the problems... but I may get to this stage if I felt it was the last recourse of avoiding a colostomy. I think for it to really work, one must be of a mind set to state that this will be their lifestyle from now on; NOT just a short term diet. but as I stated, I'm not totally versed in the SCD details.

 

[Mazen]

Hi

Maybe you can check these books; they were very helpful to me

http://www.amazon.com/What-Eat-IBD-...bs_sr_1?ie=UTF8&s=books&qid=1199433943&sr=8-1

http://www.amazon.com/New-Eating-Right-Bad-Gut/dp/0452279763/ref=pd_sim_b_title_1

 

[Babe123]

oh my deary me there is no way i could stick to the specific carbohydrate diet. i love sugar tooo much lol.

i will have a look at those books today. i am going shopping so myt see if i can find them in a book shop if i can.

thank you
x

 

[Farley]

I've never really followed a certain diet but I tend to stay away from really greasy or fatty foods because they can start my symptoms up again. Think it's different for everyone.

 

[amor151]

yeah alot of people struggle with the same foods but in the end everyones different. for example i was looking at a thread on bananas and saw that while they made some people roll around in agony others (me included) find them one of the easiests fruits to manage. find out what causes you trouble and stay away!

 

[Babe123]

i had chinese the other night, fell asleep after and woke up with a really bad tummy ache. so i might avoid that one for a while. im starting to find some foods that ive me tummy ache but it seems that latley ive got a little tummy ache all the time

greasy foods make me feel ill lol

xx

 

[num1habsfan]

I say...research, research, research!! I've self-diagnosed myself and it was thanks to a book I bought, "Crohn's and Colitis: Understanding and Managing IBD" that I could figure out whether Crohn's or Colitis suited my symptoms more. It's very simple languaged, but detailed enough to make things obvious. It also has a diet section in there where it says try an elimination diet of dairy, wheat, red meat, yeast, and refined sugars. Being gluten/lactose intolerant, it wasn't that hard to reduce my red meat intake and I found that helped enough that I'm not "on fire" everyday. I also find that if I eat enough of it, it sometimes triggers a flareup. And if I eat fish I feel almost no pains at all. i'm guessing I've had an IBD as long as I've had Celiac because thats when I starting having problems with vegetables. It was also just by trial/error I discovered which don't make me sick...the only things that don't bother me is lettuce, cucumbers, and peppers. If I do eat anything else, it can't be raw.

And like everyone says, each persons case is different. I wish it wasnt haha.

Sad thing is for me, without any treatment or diagnosis, I still feel pains on a daily basis--and its been almost 2 years since i've been able to sleep on my right side because of these constant pains .

~ Lisa ~

 

[Kev]

Well, num1habsfan, I'd urge caution. IBD is typically so hard to correctly diagnose because the symptoms aren't definitive.. they could result from a number of things

Self diagnosis, self treating... you may be off the mark. don't mean to scare you, but there are other ailments, with far worse potential outcomes, if left untreated. I'd suggest you find a GI, pursue a diagnosis, get clinical evidence (scope, bloodwork, CT, x-ray, whatever) of your illness.. then start treatment.

just a thought from someone who was mis-diagnosed, resulting in some delay in proper treatment. Leaves me wondering the occasional 'what if', you know?

 

[num1habsfan]

Well, num1habsfan, I'd urge caution. IBD is typically so hard to correctly diagnose because the symptoms aren't definitive.. they could result from a number of things

Self diagnosis, self treating... you may be off the mark. don't mean to scare you, but there are other ailments, with far worse potential outcomes, if left untreated. I'd suggest you find a GI, pursue a diagnosis, get clinical evidence (scope, bloodwork, CT, x-ray, whatever) of your illness.. then start treatment.

just a thought from someone who was mis-diagnosed, resulting in some delay in proper treatment. Leaves me wondering the occasional 'what if', you know?

Like I said in my first/newbie post, I've been treated for numerous things ranging from bacterial infections to just IBS....nothing has helped at all. I've had 2 small-bowel follow throughs, 2 colonoscopies, 2 ultrasounds, bloodwork was getting done at least once a month and often for 6+ things at once, regular xrays more times than I can count, and 2 endoscopies. This has been going on for almost 2 straight years. And believe me, the Crohn's diet is the only thing that gives me some relief. I'm not longer having 3+ horrible flareups in a month...it's back down to 2, sometimes only 1. (Speaking of flareups, I started getting one today...)

~ Lisa ~

 

[Kev]

Well, following a diet that alleviates symtoms is a blessing, but it isn't a treatment.
And, despite the battery of tests you've undergone, have you had your stool tested for bile salts, or fat content? Or seen an endrocinologist to have pancreas tested? What are your common or current pancreatic enzme levels at? There are a number of people (I don't remember the %, but your doctors would know) who do have all of the outward symptoms of IBD, but never show any conclusive inward evidence of it. It just that there could be other issues at work here, and some with very serious repercussions, if left untreated. Testing for bile salts or fat content, etc., in stool is really rather nasty, hence a lot of Drs don't order/consider it. And the role the pancreas plays in the digestive system can cause a lot of problems similar to IBS or IBD, without apparent sign.
I shouldn't be harping on this, I'm no doctor. Just that I lost my dad to pancreatic cancer, and then I was mis-diagnosed with it, so i've been on a trail that thankfully not everyone goes on, and I'd hate to see something like that occur to someone else. Pancreatic illnesses can be very unforgiving at times, OK

 

[num1habsfan]

Well, following a diet that alleviates symtoms is a blessing, but it isn't a treatment.
And, despite the battery of tests you've undergone, have you had your stool tested for bile salts, or fat content? Or seen an endrocinologist to have pancreas tested? What are your common or current pancreatic enzme levels at? There are a number of people (I don't remember the %, but your doctors would know) who do have all of the outward symptoms of IBD, but never show any conclusive inward evidence of it. It just that there could be other issues at work here, and some with very serious repercussions, if left untreated. Testing for bile salts or fat content, etc., in stool is really rather nasty, hence a lot of Drs don't order/consider it. And the role the pancreas plays in the digestive system can cause a lot of problems similar to IBS or IBD, without apparent sign.
I shouldn't be harping on this, I'm no doctor. Just that I lost my dad to pancreatic cancer, and then I was mis-diagnosed with it, so i've been on a trail that thankfully not everyone goes on, and I'd hate to see something like that occur to someone else. Pancreatic illnesses can be very unforgiving at times, OK

Yeah i dont know. I've had to give stool samples 4 times now, and all have been inconclusive. I dont even know WHAT they test for already....how exactly do they test your pancreas??

~ Lisa ~

 

[Kev]

Testing the pancreas can be done via a combo of any/all of the following: blood tests for enzyme levels, markers for infection, ultrasounds, X-rays, contrast scans via CT or MRI, needle biopsy, testing stool for elevated levels of fat, bile, sugar, etc.. urine tests for elevated sugars, prescence of excessive proteins in urine, etc.. And that's just a brief overview from a totally uneducated layman.

 

[num1habsfan]

Testing the pancreas can be done via a combo of any/all of the following: blood tests for enzyme levels, markers for infection, ultrasounds, X-rays, contrast scans via CT or MRI, needle biopsy, testing stool for elevated levels of fat, bile, sugar, etc.. urine tests for elevated sugars, prescence of excessive proteins in urine, etc.. And that's just a brief overview from a totally uneducated layman.

So almost by anything, hey? I guess next time I go see my family doc (or the specialist, or both? lol) I'll make sure to ask them if i've ever been tested there. I'm sure I have and they just never told me since I usually get 0 details of any results :ybatty:

~ Lisa ~

 

[Kev]

Well, not to be dismissive of the benefits of having a good GP, when dealing with something as complex as the pancreas, or any related part of the endocrine system, you really ought to be seen/examined/tested by an endocrinologist. They typically deal primarily with people suffering from severe diabetes, but they also do see patients where the pancreas is potentially involved. however, specialists like them are usually overbooked, so it will may be quite a wait to get into see them... but it's well worth the wait to have this checked by pros who are up to speed on any/all aspects of pancreas illnesses.

 

[Babe123]

im quite lucky cos my doctor is also a surgeon.. he does endoscopys (if that is how they are spelt).. he diagnosed me.. the hospital didnt.. hospitals are a waste of time to me.x

 

[num1habsfan]

Well, not to be dismissive of the benefits of having a good GP, when dealing with something as complex as the pancreas, or any related part of the endocrine system, you really ought to be seen/examined/tested by an endocrinologist. They typically deal primarily with people suffering from severe diabetes, but they also do see patients where the pancreas is potentially involved. however, specialists like them are usually overbooked, so it will may be quite a wait to get into see them... but it's well worth the wait to have this checked by pros who are up to speed on any/all aspects of pancreas illnesses.

All specialists are insanely backed up, and it sucks that Saskatchewan is the worst for that in Canada. Im still waiting for results of the test I had done in September!!

~ Lisa ~

 

[callypat]

I am still working on the self dicipline part, but there are a few foods that I absolutely can't go near. Onions are the biggest culprit. Also popcorn, salad (anything raw), spicy foods and peppers. Also after doing some reading on "dumping syndrome" I have started to limit my intake of liquid, especially during eating. I am finding this to be the biggest help yet. It has definately helped with the urgency.

 

[Kev]

Well, num1habsfan... I don't know the realities of dealing with specialists in Sask (my father's birthplace)... But sometime small changes in geography makes a real difference. For example, in the local Halifax area, the waiting list for orthopedic surgeons is 2 years minimum... but if one is willing to drive 2 hrs down the east coast, you can get on the 3 month waiting list to see an orthopedic surgeon there

Took me 6 months waiting to get on the list to see my current GI, took 1 year to get a bone density scan, I waited 7 months to get my G/B operation.. only it was due to a brand new surgeon, a cancellation in the O/R, and both surgeon and the OR time going to waste IF no one agreed to let unknown doc operate on them... I agreed. Met the surgeon day after op in the OR recovery ward. I don't know how long I would have waited IF I had waited for original surgeon.

 

[num1habsfan]

Well, num1habsfan... I don't know the realities of dealing with specialists in Sask (my father's birthplace)... But sometime small changes in geography makes a real difference. For example, in the local Halifax area, the waiting list for orthopedic surgeons is 2 years minimum... but if one is willing to drive 2 hrs down the east coast, you can get on the 3 month waiting list to see an orthopedic surgeon there

Took me 6 months waiting to get on the list to see my current GI, took 1 year to get a bone density scan, I waited 7 months to get my G/B operation.. only it was due to a brand new surgeon, a cancellation in the O/R, and both surgeon and the OR time going to waste IF no one agreed to let unknown doc operate on them... I agreed. Met the surgeon day after op in the OR recovery ward. I don't know how long I would have waited IF I had waited for original surgeon.

Well there's really only one specialist here in the Regina area and it happens to be a guy who thinks i'm making everything up and i have IBS and refuses to test me. Saskatoon has the good ones, MORE than one, but it takes forever. If my family doc wouldnt have screwed me over I bet something would have shown up on the scopes I went to Calgary to have! If i get really desperate I can try get to Winnipeg but that would be hard (getting the family doc to refer me)

~ Lisa ~

 

[plagueius]

well I learned to not eat any fast food. Minus sandwich places. I usually eat turkey on white lettuce and cheese only. no condiments. I stay away from most fried foods. and anything with potatoes. potatoes kill me. I almost never eat beef, never hotdogs ar any other processed meat stuffs. nothing spiced. stay away from acidic juices like orange juice or pineapple juice. I drank a pinapple smootie once while i had an ulcer in my large intestine-instant excruciating pain. energy drinks are hit and miss. and uh strange- pizza never bothers me or diet soda

 

[Mrclayto]

I am new to the forum, and I am SO glad that others seems to be dealing with the pain and cramping. I am a little different from most Crohn's patients that I have ever met, because my main symptoms are pain and constipation.

I HAVE NO CONTROL over my eating...i am almost a year into diagnosis and I have learned little self control.

The only huge "no" food that I have found is Steak...
and Rotel Cheese dip...

 

[blackbat]

I have found my biggest "no no" is preservatives. So I tend to make everything from scratch and well that helps the self control when you face how much work some things take to make at home.

 

[num1habsfan]

I have found my biggest "no no" is preservatives. So I tend to make everything from scratch and well that helps the self control when you face how much work some things take to make at home.

So could this be then why the gluten-free diet partially seems to helps? No preservatives in anything? I'm still always trying to figure out why my symptoms arent as severe as some people I know...

~ Lisa ~

 

[soupdragon69]

Hi Lisa,

I have to say as time is going on I am wondering what I will be left to eat! I am currently waiting on my dietitian coming back to me tomorrow re my latest changes...

I am of irish decent and originally my GI and GP thought I was coeliac - turned out I have severe crohns ileitis and severe IBS. The first causes me to malabsorbe my fats and fat soluble vits. The second speeds up my gut function so compounds my diahorrea.

Currently I am gluten and dairy free. Can only tolerate onions and tomatoes in minute amounts once a week max and am supposed to be low fibre and low fat too.

My derms cons, GP and Asthma cons all think I am an aspirin sensitive asthmatic and so my derms cons thinks it may be impacting on my gut. These three folk now want me to go salicylate, benzoic acid and azo dye free. Salicylates are naturally in foods and I have to say now that I am watching things more closely I can see the link with some of the foods that are high in this. As for the acids and dyes they are almost impossible. They are in colourants and foods and meds and virtually impossible to eliminate!

The result is I am to cut out as much as possible at the high end of the scale on these three aspects then we will take it from there!

My GP has said there is just no way he could do this but I am beginning to think if it truly makes a difference to my life then I am game to try as hard as I can..

Hope what I have said makes sense? What I have found so far is when I eat certain foods either my nasal passages swell, my chest gets tight or my guts kick off and my skin itches like mad then it breaks out. I have hives about 3 nights a week and cant nail why so this all might help in the end!

Draw back? May not have alot to eat in future LOL

 

[Digits]

I was 8 when i was diagnosed, and my family was wondering about that also. all my GI had to say was

"your a kid, go to the store, and pick out what you would eat if your parents had NO say over what you ate."

being a kid, i picked out applesauces, puddings, and pre packaged food that had been reallly over processed, along with nice steaks and fresh soft seafood.

and thats basically been my diet since. and when the goings get tough, your doctor can always help you figure out a regimine of diet drinks (like ensure adn the like) if you want to give your tract a rest.

Taco bell is wonderful, i bow down to it, along with ice cream and yet again all the over processed foods you can handle.

its not very healthy, but if you keep an eye on everything, as long as your comfy its fine.

 

[Babe123]

i was told to eat small meals often and eat healthy but i find it really hard. at college there isnt really any healthy food on offer and in town it is really expensive and even though they claim the food is healthy if you read the label its packed with salt etc. i dont have the time to go somewhere decent for something to eat. so i find myself snacking.. which isnt good. im quiete self concoius aswel so if i can sense people are watching me then i cant eat.i dont know why

as for small meals.. i eat a little bit but find i am still hungry so i keep eating.. im not good at teaching myself to eat small portions..

off the topic of food for a min...

does anyone find themseleves extremely tired and lacks energy?? i am finding this most days. do you find that eating anything inparticular helps with it?
x

 

[Kev]

Protein helps... But, for whatever bizarre reason (borderline anemia maybe) when I really feel weak.... 'red' meat perks me up... till it plays havoc with my GI tract.

 

[num1habsfan]

Protein helps... But, for whatever bizarre reason (borderline anemia maybe) when I really feel weak.... 'red' meat perks me up... till it plays havoc with my GI tract.

Really, thats quite interesting. I do still ocassionally eat red meat (whenever my parents feed me because they say I dont eat enough :tongue: ). But I also feel weak every single day from my hypothyroidism not being treated enough for the last 9 months (and finally i have a family doctor smart enough to realize this). If i get that improved, I may just try your idea of eating a little meat.
How much can you handle before it makes you sick?

~ Lisa ~

 

[Kev]

One serving is about it.. and I've done that maybe once/twice every 2nd or 3rd month. Now, I've tried extra, extra lean 1/4 lb burger grilled to lower the fat, and prime rib cooked to the point it was falling apart... or a homemade beef stew that was slow cooked (thoroughly, but extremely tender)... Doesn't matter, I still get a kick in the guts that takes my breath away after... but it does perk me up. now is that psychosomatic on my part.. a 'meat' placebo. I don't think I'm all that complicated. Face it, with the teeth nature gave us, we were meant to eat flesh...

 

[AbstractDonut]

I do not think red meat every gives me any trouble, though I do not eat it much. Wish there was some SCD legal sliced roast beef like Arby's serves, which I could find at the grocery store.

 

[num1habsfan]

One serving is about it.. and I've done that maybe once/twice every 2nd or 3rd month. Now, I've tried extra, extra lean 1/4 lb burger grilled to lower the fat, and prime rib cooked to the point it was falling apart... or a homemade beef stew that was slow cooked (thoroughly, but extremely tender)... Doesn't matter, I still get a kick in the guts that takes my breath away after... but it does perk me up. now is that psychosomatic on my part.. a 'meat' placebo. I don't think I'm all that complicated. Face it, with the teeth nature gave us, we were meant to eat flesh...

ughh speaking of "kick in the guts that takes my breath away". That's about how I'm feeling. If I had the time to spend all day sitting in ER, I'd go. Definitely having one of my bad flareups, which surprisingly I haven't had since beginning of december. Guess that meat I ate for 5 days in a row is what did it. A couple times today in school i almost broke out in tears from it catching me.

What do you eat though, when you get a flareup, besides the obvious option of nothing :tongue: :tongue: ??

~ Lisa ~

 

[Guest]

ughh speaking of "kick in the guts that takes my breath away". That's about how I'm feeling. If I had the time to spend all day sitting in ER, I'd go. Definitely having one of my bad flareups, which surprisingly I haven't had since beginning of december. Guess that meat I ate for 5 days in a row is what did it. A couple times today in school i almost broke out in tears from it catching me.

What do you eat though, when you get a flareup, besides the obvious option of nothing :tongue: :tongue: ??

~ Lisa ~

i made a choice when i was very young that i didnt want to eat red meat, which was quite difficult to adhere to when i was living at home. but once i had my own place, that was it - i eat chicken, fish but no red meat. every time i've tried it since, i've had horrid belly ache and a very heavy full feeling for the rest of day. its just not worth it, for me.

when i do have a bad stomach, depending on how bad it is, i might start off on liquids only but include at least one pro-biotic yoghurt drink in my day. after that i go onto really soft food such as mashed potato, cream crackers, cream cheese, soup & just take it from there, introducing 'normal' things gradually.

 

[num1habsfan]

i made a choice when i was very young that i didnt want to eat red meat, which was quite difficult to adhere to when i was living at home. but once i had my own place, that was it - i eat chicken, fish but no red meat. every time i've tried it since, i've had horrid belly ache and a very heavy full feeling for the rest of day. its just not worth it, for me.

when i do have a bad stomach, depending on how bad it is, i might start off on liquids only but include at least one pro-biotic yoghurt drink in my day. after that i go onto really soft food such as mashed potato, cream crackers, cream cheese, soup & just take it from there, introducing 'normal' things gradually.

Liquids, huh?? I could handle that I think, as long if that liquid is coffee

But come tomoorow i'll have to eat, parents are coming in to the city to help me move and they alwasy feed me. Could turn these pains to a lot worse. But i think if the flareup sticks around til next week I'll have to make a trip to the doc for sure :runaway:

~ Lisa ~

 

[Kittee]

I have narrowed down my trigger foods some what realiably although there are days when one of my safe foods "oatmeal" will set it off.


Avoid:

Coffee (Yes extremely painful for me. I am a Starbucks consumer #1.)
If I MUST Have a cup, I keep it decaf and light. Folders make a nice "easy on stomach blend."

Greasy Foods: Anything fried. FORGET IT. Ultimate pain if I eat something greasy. No exceptions.

Spicy Foods. (Le CRY! I grew up in New Orleans. This one hurts me also.)

Dairy: This is a new one for me. I used to be a milk-a-holic. Lately (Past couple months) I've noticed a real correlation with drinking/eating dairy and stomach pain and the big D.



Can Eat:

Wheat Bread: My stomach likes this. I am strange

Oatmeal

Mashed Potatoes

Brown Rice

Veggies

Chicken

Fish

Pork

Pasta



And even stranger, I function better if I take a daily dose of Benefiber.
How strange. Most of you folks report that fiber is bad, but in my case, if I don't take fiber, I will ahem "back up" and if I cannot go then I will surely get a flare. I have to go daily or I will be in pain. Then there are days like today were I was literally praying to make it to the rest room on at least 4 occasions because it was "flowing" out of me.:voodoo:

 

[num1habsfan]

How weird Kittee that our yes's and no's are so different...on your safe list the only thing that won't make me sick is rice or chicken haha.
I'm sure it varies from person to person, it's just interesting seeing someone who CAN tolerate meat!
When you said veggies exactly what sort of veggies are those?

~ Lisa ~

 

[Kittee]

Frozen mixed, peas, corn, tomatoes, lettuce, celery, etc. Any veggie BUT onions. Onions kill me.

 

[Keara07]

Update for the safe foods - it all hurts now so I am thinking, why not have some of my old favs (in some moderation) if I am going to go through it anyway. I actually had about 1/4 cup of coffee a few days ago....yum!

But for a long time though the main things that had me going owie were popcorn, raw apples (and other fruits), and overloading lactose.

In my flare right now, lactose is a no-no (or should be :>)) - and red meat as people mention, but there is a thin sliced meat (Carl Buddig here) that I have less problems with, and turkey bacon.

Popsicles work too for a sweet treat - fruit based ones.

Maybe when the flare ends, I'll have a better idea when/if something actually makes it hurt worse more, and when I hopefully taper off the pred which I am too sure is masking a whole whack of nasties right now.

Good eats all!