Can I ask if anyone else has contact with the specialist nurses @ Salford Royal. I've been having ALOT of trouble contacting them and it looks like they've got afew major medical facts/decisions wrong. I was just wondering if anyone else has found them somewhat lacking. Not going to do anything with peoples comments, but it might make me feel abit better if I'm not the only one who's had trouble contacting/liasing/working with them. It's probably worth me mentioning that my chrons is VERY active at the moment and I need alot of support and investigations
Salford Royal Hospital IBD nurses (UK)
- Thread starter mozzie85
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Help Support Crohn's Disease Forum:
Sorry I can't help you with the info you are looking for - but I hope things get straightened out for you soon!
David
Co-Founder
No help here either but free bump so others might see it and be able to help.
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Can't really help either, sorry. Only thing I can think of is maybe getting on to the NACC website and seeing if there is a support group in or around your area?
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I go to Salford Royal, My surgeon is Mr Anderson, and him his team and the stoma nurses are brilliant, how ever there is a lot of problems with the gastro team, Im under Dr Robinson but only seen him once.. every other time I've seen a different GI which makes things difficult, It seems that there is a massive demand to see the gastro's and even getting an appointment in 10 weeks time Isn't possible.. I have also never ever been given a number for an IBD nurse. When i had some problems a few weeks ago getting hold of anyone was impossible so I ended up Phoning an ibd nurse at my local hospital in wigan but she couldnt help because all my records are at salford. I can give you the phone number for the stoma nurses who are very helpfull (although if you dont have a stoma they may not be able to help much) or you can ring Dr Robinsons secretary, the main switch board is 0161 789 7373 , if you ring them they should be able to put you through to the right person.
It might be worth a letter to the Complaints department, if you need support and you're not getting it then you need to let someone know
:ghug:
:ghug:
xX_LittleMissValentine_Xx
Moderator
I agree with stargirl, you should write a letter of complaint.
I was going to suggest calling your specialist's secratery?
I was going to suggest calling your specialist's secratery?
Robbo87. Thanks for the message. Makes me feel like it's not just me. It's so hard when your not well chasing people trying to get them to call you back. I really wouldn't wish her on anyone as she's, through misinterpretig a scan, delayed my treatment by 3 months...
Re: complaints. Going to my GP today to see what she can do; but overall there WILL be a 'complaint' highlighting how poor the service has been.
Out of interest, what are other Uk people experiences with getting appointments with GIs if you're having a flare up? How long have people waited for scans etc? If you're willing to name hospitals I'd really appreciate it. Especially if they're good and in the northwest.
Re: complaints. Going to my GP today to see what she can do; but overall there WILL be a 'complaint' highlighting how poor the service has been.
Out of interest, what are other Uk people experiences with getting appointments with GIs if you're having a flare up? How long have people waited for scans etc? If you're willing to name hospitals I'd really appreciate it. Especially if they're good and in the northwest.
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The IBD standards say that a person with ibd should have access to a GI appt within 5 days of starting with symptoms of a flare.
I have no doubt that there are not many places that will achieve this but it is usually the IBD nurse or your GP who can get an urgent appointment. I am lucky in that my local has 2 part-time IBD nurses who not only are really nice but also will ring you back within 24 hours and arrange an appointment as necessary.
There is a link on the NACC website which takes you to the IBD standards document.
I have no doubt that there are not many places that will achieve this but it is usually the IBD nurse or your GP who can get an urgent appointment. I am lucky in that my local has 2 part-time IBD nurses who not only are really nice but also will ring you back within 24 hours and arrange an appointment as necessary.
There is a link on the NACC website which takes you to the IBD standards document.
xX_LittleMissValentine_Xx
Moderator
I find that my calls and queries are usually dealt with quickly. The IBD nurse at my hospital seems to be busy and not in a lot. (I called on tuesday and the viocemail message told me my message wouldn't be picked up untill friday morning) But it did say to contact a secratery if it is urgent. I have usually found they call back the same day or the next day. If you are specific in your answer phone message they can often call you back with the answer to your query streight away. I think there has only been one occasion when I have called them and they wanted me to come in and that was within the week.
I think generally the team at the hospital I go to (Royal Berkshire Hospital in Reading) are good, though I think they are quite busy as sometimes I have had to have long waits for the usual check up appointments.
I think generally the team at the hospital I go to (Royal Berkshire Hospital in Reading) are good, though I think they are quite busy as sometimes I have had to have long waits for the usual check up appointments.
I just wanted to say my IBD nurse is fantastic, if I email her with a problem or query (even not strictly IBD related!) she usually gets back to me first thing the next day. And she will fax instructions through to my GP (like for a stool sample).
Like robbo, I have only seen my actual GI once, so it's good to know that I have continuity with my nurse!
Like robbo, I have only seen my actual GI once, so it's good to know that I have continuity with my nurse!
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