SCD and celiac

[kiny]

Many people who were diagnosed with Crohn try the diet and I assume at least a part of those people who claim they are better actually are better. It's either that or the people behind the book are doing a damn good job at hyping the diet.

But, I read some studies and Celiac disease is incredibly common amongst crohn patients (some study showed it was like 18%), much more so than healthy controls. Some have both diseases, some only have celiac and were wrongly diagnosed.

I wonder sometimes, could part of the people who claim SCD helped have celiac?

I also wonder about this in regards to enteral nutrition.

 

[mizgarnet]

kiny, I have been thinking along those lines myself. I think the success of SCD, Paleo, etc, is from the fact that it is all minimally processed foods. I also think that a number of IBDers have sensitivies to wheat (GMO!!!). I personally do best when I cook at home. Now, where did I put those pots?:shifty-t:

Seriously, I am a nutritionist. I believe in eating whole foods. I would love to rid the shelves of GMO crap and teach people it is not that hard to cook like we used to. I do not work as a nutritionist because I disagree with a lot of things we are supposed to promote as a balanced diet.

Post your views, peeps, I would love to hear your thoughts. Thanks kiny for posting this.

Wendy

 

[hugh]

Many people who were diagnosed with Crohn try the diet and I assume at least a part of those people who claim they are better actually are better. It's either that or the people behind the book are doing a damn good job at hyping the diet.

Many people ARE better and most who give up on the diet could do well with a few additional tweeks

I wonder sometimes, could part of the people who claim SCD helped have celiac?

I'm sure alot of the people who claim SCD helped them also have celiac.
Probably some of them were wrongly diagnosed and have celiac not crohns
Guess what - it works for celiacs too, better than eating over-processed 'gluten-free' crap

So the point is? That it's a great diet that will benefit most people?

 

[David]

I think what you propose is part of a much more complex scenario. Yes, I have no doubt that SCD, enteral nutrition, and paleo help some people with Crohn's due to undiagnosed Celiac disease or gluten sensitivity. Taking it one step further, both diets also greatly reduce yeast intake which is also a common allergy. Taking it a step further, mizgarnet mentions the lack of processed foods which plays a huge role as well. You're pretty much forced to cook whole foods on paleo and SCD so all kinds of terrible ingredients go along the wayside.

Going further still, potatoes are illegal on both paleo and SCD and I think potatoes play a role in many people's IBD without them realizing it. Taking it further still, the n3-n6 ratio of people on these diets is going to improve somewhat. And further still they're going to be eating much more nutritious food and I theorize nutritional deficiencies play a much greater role in disease pathogenesis than realized.

I could go on all day long like this But in the end, they work for many and as such, I'm going to keep promoting them.

 

[Snoflayk505]

Kiny
My GI tested me for Celiac and found I am not. I had severe Crohn's the past 11 years and ran to the bathroom 16 times a day + crying and vomiting at the same time because of the torturous pain I went through. I practically spent the last decade living in the hospital on tpn and fluids and pic lines and a whole lot of steroids. In the hospital for 2-3 weeks, out for 1 -3 months, back in, back out.
Had illeostomy placed, Crohns came back about a year and a half later. Tried the SCD diet and I stay COMPLETELY symptom free as long as I don't ingest any illegal foods according to SCD standards.
I can't speak for anyone else. All I can say is that this diet gave me a quality of life back that I said goodbye to a long time ago I pray every single day that someone else finds the relief that I have if they try this diet. Nobody should have to go through the torture that I have.
All I know is, It's worth a try if you haven't tried it.