Scopes today

[Benourer83]

So after still no improvement with miralax we had an egd and a colonoscopy today. Results were not what I expected. We also had a rectal suction biopsies and a dissachrides assay. Obviously no results on biopsies yet, but when the GI came to share findings he was impressed with no ulcers in colon but she had furrowing in her esophagus. They (discharging nurse) sent us home with a info packet on eosinphillic esophagitis or EoE. I was honestly surprised as we went in for a rule out for Hirschprungs which is still on the table until biopsies come back. Follow up in 2 weeks ...... still scratching my head on this one

 

[my little penguin]

Good place for eoe advice
http://community.kidswithfoodallergies.org/forum/gastrointestinal-disorders

 

[Benourer83]

Thanks

 

[my little penguin]

http://apfed.org

Another site

More later

 

[kimmidwife]

Glad it went well. And at least you have one answer for now. Hopefully the biopsies will give you more answers.

 

[Benourer83]

Glad it went well. And at least you have one answer for now. Hopefully the biopsies will give you more answers.

Thank you

 

[Farmwife]

Mlp gave a good website for eoe.
They thought Grace had a version of that but it wasn't.
Keep us posted!

 

[Benourer83]

Mlp gave a good website for eoe.
They thought Grace had a version of that but it wasn't.
Keep us posted!

Thanks I've been reading in my free time with a 2 year old lol. What did they end up finding with Grace sorry I tried to find some of your back story really quick but didn't come up with much.

 

[Farmwife]

Lol, Grace had to much of a back story.
Her Eosinphils were raised thru out her GI track. However she never got better in full EEN.
Once the GI realized this, she was switched to an unofficial ibd dx. Meaning, we can't pinpoint crohn's over UC and or UC over crohn's.
All we know is we want to hold it back as long as possible.
I could care less what they call it but even now dx's still might be changing.
Grace is one of a kind. Lol

Do you have any ideas yet what might be the foods that trigger the eoe?