Seriously... nothing?? again!!

[hangingon]

seriously... nothing?? again!!

i am so sick of all my tests coming back inconclusive..... i feel like crap, i'm tired, i am bleeding from my bottom and yet my mri shows no activity or abscesses. shouldn't my 3 fistulas have shown up?? or the abscess by my front bum??? i swear to buddha this makes me feel like i am making this s#!$ up. :ymad: i am not stupid, and i've had crohn's for 15 years. i know my body, something isn't right. and right now i feel like it is working against me. like when your car leaks or makes a strange noise until you take it to the mechanic, then it sounds fine.

i'm not mad something serious didn't show up, i'm upset because if there is nothing there, why don't i feel better and why am in in pain and why am i bleeding???

it makes me want to scream!

 

[kllyeve]

Sending many HUGS your way!!! <3

 

[evansrenewed]

I am so feeling your pain......I have been diagnosed for 27 years and am fighting the worst of it now.....I know my body and I am fatigued, exhausted and down right no fun to be around. I am so ready for the GI to do something new.

 

[Jessi]

I don't think you're making this up. DYou know your body better than doctors do, so don't give up. You are really suffering, and you need treatment. You're in my prayers. :hug:

 

[suschex]

Sending you big hugs and lots of energy to keep looking for the answer! Jessi is right, you know your body! There is nothing worse than knowing there is something wrong and not being able to get help! I'm sorry you are struggling with this...you are not stupid and you are not making this up...it is very, very real!!! Hang in there!

 

[hangingon]

thank you for your replys. it is so nice to finally have people who know. and who get it. my support network is amazing and i really couldn't ask for more. it is just nice not to have to explain everything and be understood. thank you.

 

[GregGerber757]

Hey there! My name is Greg Gerber. Ive had Chrons for 5 years and have been through very similar things as you. I was actually in the hospital 2 weeks ago. You should look into changing your diet. I have been eating all natural and all organic foods and it always seems to get me out of the dumbs and it makes me feel healthy. Our bodies cant handle all the preservatives and crap thats in the foods these days. Ive had help from some educated people amd by chamging my diet I feel a whole lot better.

 

[hangingon]

Hey Greg, i came to that same realization and i went organic a while back, and am really careful with what and how much i eat. unfortunately i am allergic or resistant to most meds used to treat CD and am not currently medicated. i just get tired of having all my test results come back with no definitive course of action. i hope that organic continues to work for you and really appreciate you sharing your knowledge

 

[Haley8me]

got out of the hospital today...nothin

I've suffered with uc and cd for over 5 years now, got diagnosed while pregnant... nothing is more fun than a colonoscopy wide awake and 8 mo. pregnant! was in remission till oct... and now i've been in and out of dr's offices and hospital er's since. Today was the last straw though, i left the er with absolutely no hope of help. i felt totally at a loss, if they can't/won't help me then who can... my next course of action is oils... no more drugs... they are only making things worse, still tired, still having blood/mucus diareah, still cramping, still bloating like a cow. have high hopes that frankinsence and digestzen will do some good. what have i got to loose really. i'll let you all know how it goes..

 

[Jessi]

Hi Haley! Welcome! I'm sorry you're sick and got no help from the ER. I've never feel like the ER doctors know what they're doing. They don't specialize like my GI does. Have you tried enteral nutrition? http://www.crohnsforum.com/forumdisplay.php?f=161 It seems to help quite a bit for some. Maybe it will help you, too? Good luck on whatever course you take. :hug:

 

[Snickerdoodle]

Wow! A GI with a scope would be a great start to really know what's going on. Sending lots of good wishes your direction!