Severe Rectal Spasms

[Peterson01]

Does anyone else suffer from very severe Rectal spasms during pain?
These are starting to kill me!!!

 

[carrollco]

Um, yes. It is horrific. I swear I can feel the spasm clear to my stomach and my rectum is a mess of fissures and blown hemmies. I am currently on prednisone waiting for remicade approval. I think the prednisone is working but I am only 3 days in. My rectum hurts so bad I have to try not to cry when using the restroom which then sets off the spasm. I hope we both find comfort soon.

Louann Carroll
www.louanncarroll.com
Crohn's survivor and advocate. Humira quit on me, tried the natural route that cost me 500.00. Will stay on SCD. Currently on prednisone, waiting an approval for Remicade. 6mp is a no go as it hurt my liver and I am allergic to aspirin which rules out mesalamine. Biologics and prednisone are all I have left.

 

[Peterson01]

I have yet to be diagnosed as I am still waiting to see a specialist
I have been in and out of emergency with these anal spasms and abdominal pain
It's ridiculous.. I seem to be paralyzed when getting these spasms!

 

[Sailorluna]

Sorry to hear that you two are going through this. Has it been going on for a long time? Do you know that cause? For me it was during the formation of my fistula- a horrid twingy pain that was very sharp and quick. Hope you are able to get them under control.

 

[carrollco]

Well of course you feel paralyzed. Heck I can't even pee until they stop. You just have to wait them out. So far today, not one AND I can urinate pretty well. I hope you get diagnosed soon. They told me I had IBS for 20 years. Of course no one did any tests and I was too ashamed to ask for any since it was all in my head. Then I went septic, with tons of blood and it was discovered I had Crohn's. Keep pushing for a diagnosis.

Louann Carroll
www.louanncarroll.com
Crohn's survivor and advocate. Humira quit on me, tried the natural route that cost me 500.00. Will stay on SCD. Currently on prednisone, waiting an approval for Remicade. 6mp is a no go as it hurt my liver and I am allergic to aspirin which rules out mesalamine. Biologics and prednisone are all I have left.

 

[carrollco]

I never thought about a fistula. Saw the doc Monday and he didn't mention it. Just gave me prednisone and started the remicade process. I have never experienced pain like this before.

Louann Carroll
www.louanncarroll.com
Crohn's survivor and advocate. Humira quit on me, tried the natural route that cost me 500.00. Will stay on SCD. Currently on prednisone, waiting an approval for Remicade. 6mp is a no go as it hurt my liver and I am allergic to aspirin which rules out mesalamine. Biologics and prednisone are all I have left.

 

[Peterson01]

I've been diagnosed with ibs but haven't had the bleeding a crohns person does but definitely have the severe Anal and abdominal pain, no fistulas(that I know if) and no hemroidds

 

[carrollco]

My daughter has UC diagnosed by biopsy then one year later I am diagnosed with Crohn's. My son deals with diarrhea and abdominal pain. They did a colonoscopy, found 2 small ulcers that were undetermined, diagnosed him with IBS and sent him home. I am not hopeful for the IBS diagnosis. /sarc

Louann Carroll
www.louanncarroll.com
Crohn's survivor and advocate. Humira quit on me, tried the natural route that cost me 500.00. Will stay on SCD. Currently on prednisone, waiting an approval for Remicade. 6mp is a no go as it hurt my liver and I am allergic to aspirin which rules out mesalamine. Biologics and prednisone are all I have left.

 

[Peterson01]

So I just found out the total meaning of fissures and I do get those, for some reason I kept thinking they were like a hemroid, some type of mass.
I completely have fissures..

 

[lblair]

OMG yes just started having them I could hardly walk and then with crampping to all I could do was cry!! I did go to the ER last night couldnt take it worse pain then child birth!!!!! I was so bloated I looked like I was pregnant!!!!! I had mega a dosage of steriods through the IV stopped the Humira!!! No blockage thank God!! I will start remeciade just not sure when!!! Good luck!!!

 

[mrjohns2]

Well of course you feel paralyzed. Heck I can't even pee until they stop. You just have to wait them out.

They way I have been able to pee when having similar issues is to half squat (neither up nor down). I couldn't pee standing up or sitting down.


-Matt

 

[carrollco]

I am waiting on Remicade, too. The squatting helps, and I keep hoping the 40 mg of prednisone works. So far, nothing.

Louann Carroll
www.louanncarroll.com
Crohn's survivor and advocate. Humira quit on me, tried the natural route that cost me 500.00. Will stay on SCD. Currently on prednisone, waiting an approval for Remicade. 6mp is a no go as it hurt my liver and I am allergic to aspirin which rules out mesalamine. Biologics and prednisone are all I have left.

 

[Mistybear]

Very, very painful. I wonder, would a muscle relaxer help?

 

[Dauna]

I had those last year. I went to the ER. They're horrible. My anus felt heavy like my insides wanted to slip out. Felt like I had no control over my body and I could **** myself at any time. Inflammed anus. Horrible. I have found that peppermint oil (natural supplement) helps.

 

[Buttercup]

What a comfort to know I'm not the only one who gets this! It is soo painful I tense and have to breath through the pain as I did when delivering my children! X

 

[carrollco]

My life: In bed with trips to the potty so the diarrhea comes out, intermixed with sitz baths that hold off the agonizing Perianal disease. 40 mg prednisone so I can't sleep. Crohn's from my butt to my esophagus, pain in large and small intestine with swelling. And I am getting a cold. I need humor. Anyone got any jokes?

Louann Carroll
www.louanncarroll.com
Crohn's survivor and advocate. Humira quit on me, tried the natural route that cost me 500.00. Will stay on SCD. Currently on prednisone, waiting an approval for Remicade. 6mp is a no go as it hurt my liver and I am allergic to aspirin which rules out mesalamine. Biologics and prednisone are all I have left.