Share the stupid, insulting or rude things people have said to you

[Patricia56]

about CD or your child's CD or anything CD-related.

One of my favorites -

"I know exactly how it feels, I had a really bad case of the stomach flu once and spent the whole day in the bathroom. I just went on the BRAT diet and it got better in a day or two. Have you tried the BRAT diet?"

:ymad:

 

[Tesscorm]

Wasn't really rude, insulting, etc. but fairly soon after Stephen was diagnosed and, with little experience, I had 'my panic' when we were away at his hockey tournament. On the way to his first game, he told me he had some pain and had been constipated for a day or two. Unfortunately, that was honestly the one and only out-of-town tournament where I didn't have my own car and my husband hadn't attended! So, I asked the other mom that I'd driven with to take me to the store to buy prune juice, yoghurts, etc. She did but, even though she knew Stephen had crohns, I could tell she was thinking 'omg, what an overprotective mom! So what if the kid hasn't gone a day or two?!?!' And just seemed a bit inconvenienced at my request.

It certainly didn't stop me from doing what I needed to do but did disappoint me that, as the mom of one of Stephen's oldest friends, she didn't understand my concern. I know it was simply due to a lack of crohn's knowledge, awareness but still...

Ironically, almost all of Stephen's friends have seen him insert the NG tube or have slept over when he has it inserted, etc., and all have been amazingly supportive but this woman's son is the only one who's said 'oh, that's gross' when watching Stephen insert the tube and, during sleepovers, sleeps in another room because the sound of the pump bothers him.

 

[Tea]

The worst thing was when the school principal said "He has to learn to work through the pain and fatigue and suck it up."

I'd like to tell him what to suck up.

 

[Farmwife]

I'd like to tell him what to suck up.

:rof::rof::rof::rof:

Tea quotes like that make me think you belong here!!!:hug:



When Grace lost 6 lbs in 8 days, her nurse said that was fine because she was chunky anyways.:eek2:


Farmwife

 

[Tea]

:rof::rof::rof::rof:

Tea quotes like that make me think you belong here!!!:hug:



When Grace lost 6 lbs in 8 days, her nurse said that was fine because she was chunky anyways.:eek2:


Farmwife

How terrible! People don't think (and some are incapable of rational thought). We've had our share of teasing/inconsiderate behavior when ever cushings syndrom reared its ugly side. As though he could help it. :eek2:

 

[Clash]

How terrible! People don't think (and some are incapable of rational thought). We've had our share of teasing/inconsiderate behavior when ever cushings syndrom reared its ugly side. As though he could help it. :eek2:

Oh yes, even a teacher...would ask numerous times "what is up with your face?":emot-nyd: Are you kiddin' me what is with your up with your inability to be considerate!!:ymad:

 

[Tesscorm]

OMG, what you all have been told is terrible!! :ymad: What I said above, I can attribute to lack of awareness by the mother but she really had no responsibility or reason to educate herself about Crohns BUT a nurse, principal and teacher... OMG, if they are unaware, once they know it affects their patient or student, they should make a point of becoming aware! :voodoo:

 

[izzi'smom]

"If you prayed harder she wouldn't have Crohn's"
UGH!
I must say, this is the exception. Almost everyone has been super supportive and wonderful, even complete strangers! <3

 

[Tesscorm]

OMG!! Is that all I need to do!?!? :facepalm: All those hours googling...:ybatty:

 

[nikimazur]

My most recent favorite was the nurse at GI doctor who said "what happened o you? You put on quite a few pounds since I last saw you"

It's called prednisone, witch.

Or the doctor in the ER "it's not like your pain is all that bad with Crohn's, it's normally manageable without meds" haha, yeah, right. I'm in your emergency room severely dehydrated in the midst of a terrible flare, yet I have no pain according to her, and am just exaggerating.

 

[deb123]

Whilst on Azathioprine my insensitive EX Gi dr told me not too worry when my hair was falling out in handfuls, and to count myself lucky to have more than most.

The same Doctor also told me i didnt look poorly when i told him i was presenting Crohn flare symptoms after the birth of my first child - what an arse!

 

[Jmrogers4]

His elementary principal when she asked "Does he really need a 504? can't he just tell someone he has to use the bathroom?" or his PE teacher in jr. high. "He has to tell me when he is leaving to go to the bathroom, I just can't have a kid leaving the field" Excuse me what don't you understand about URGENT! I of course just told him that if it is one of those times just go and I will deal with your teacher....

 

[Blue]

"is it contagious?" that really annoyed me when someone said that..

 

[Farmwife]

Blue - you should have said YES, know give me a hug!:hug::ybiggrin:

 

[0121crohnslady]

On an appointment to the Gastro Clinic due to flare-up symptoms, one of my consultants..and we all know we see so many, told me that sometimes Crohns patients can get pain that they associate the with Crohns, but in fact its all in our head !!!....He ordered a Colonoscopy i think just to shut me up, and there it was...the Crohns had reappeared in the same sight of my surgery last time........when will these people understand that nobody knows our bodies like us....... x

 

[Tea]

Hugs to all for all that you go through! Ill hug my son extra for all of you. Wish I was smart enough to come up with a cure.

 

[Thermo]

One of the funniest comments someone said to me was my boss when i told him i had crohns he said: "Oh you have the Crohns?" Lol yes i have the crohns.

 

[Stephyjane]

A month after Ella's diagnosis, we were in the hospital with suspected appendicitis. And when they decided it was probably Crohn's related, the dr said we needed to go home and manage it as things were only going to get worse!! What do you say to that? Needless to say we are doing everything to keep away from that hospital :-(

 

[Mehita]

My neighbor called because she needed to vent about how she had to go shopping and buy her kids new clothes for this cruise that they had to go on because her father-in-law paid for the tickets, blah, blah, blah... and then she finally stopped and asked what that horrible noise in the background was.

That horrible noise was my son vomiting his guts out... and had been for the last 12 hours (partial bowel obstruction).

Her reply... "I hope no one vomits on the ship. I can't stand that sound... or the smell!"

I hung up.

 

[michaelearnest]

I am thankful that my boss has IBD, no problems at work here.

 

[polly13]

Lucy is diagnosed about 15 months at this stage and really up until now the worst thing I have heard is 'will she go out of it? until Friday..........
Routine visit with the public health nurse - new nurse ' I notice from her file she is Crohn's' I mean ffs from a health professional to describe a 4 year old as a medical condition. I was highly insulted I really thought we had moved on from describing people with disabilities and medical conditions as the disability. Anyway rant over but I expected better.. so I just said she is not Crohn's she has it! and that was it.

 

[Hobbes650]

I was diagnosed with UC at age 18 in June of 1986. Hospitalized in August 1986 for two weeks of bowel rest. Six months later had very little progress- unable to taper down from Prednisone, still in lots of pain and incontinent, etc. My doctor asks if I have ever considered surgery. Not at that moment, but that was the moment that surgery became a real possibility. So, I did what any teenager would do- I went home and tried to discuss this with my family. My father, a doctor, said I did not need surgery and asked "Do you want to sh*t in a bag the rest of your life?" Ostomy surgery wasn't being considered, the j-pouch was. But still, probably the dumbest question I've ever been asked.

 

[Hobbes650]

Since recieving our daughters diagnosis earlier this week we've had mostly positive comments. However, one person did say "at least she won't have to ever worry about her weight!". Wtf??????? We've also had several, "you should be glad it isn't cancer" remarks as well. Although I am very thankful it isn't cancer it makes me angry they seem to be discounting her illness. I've felt like saying, "I hope you get IBD, too! Then you can see what she's going through you big arse"

Yes, people can say the MOST IGNORANT things despite having the best "intentions". It's not fair to ever judge people, especially when they are sick. Cancer is something everyone talks about, but nobody talks about IBD, and many people think because it's not well known IBD cannot be serious. I feel sorry for these people, and the people that put up with them.

 

[Trysha]

Symptoms and blood values changed. GP was on the ball and said call the specialist.
Did so and the first call was unanswered----the second call response by clerical person " everyone is very busy---- they might be unable to get back to you!"They never did.
(This was not a gI problem)
I did not try again, but when I saw the GP two months later he was displeased and without telling me called them.Then I was given an urgent appointment.
What is happening in the world of medicine today?
No longer have any confidence in the system.

 

[upsetmom]

My husband had an appointment with a new physio today and we got talking about our family. We told him our daughter had crohns and her response was oh thats nothing to worry about. Well it isn't nothing to worry about it's not her or her child dealing with this.

 

[Coltyn'sfamily]

I had a mom tell me that my business was more important and should come first over my son who was in the midst of being diagnosed and we had no idea it was crohn's at the time.
Lots of "it's just a belly ache" and "aren't you glad its not cancer" Someone said the cancer thing and I replied, "Actually, some cancer is curable, crohn's isn't. He has to deal with this forever!"
I've found in our case most people are ignorant to this disease.

 

[vanilla_chai]

I've gotten

• "you're lucky to have crohn's" from a coworker who wouldn't stick to a diet.
  
• "wish I had that problem" from my husband's friend after I had dropped 10 lbs from not eating
  
• "but its not like you're dying, right?" after spending 5 days in the hospital

I understand empathy is difficult but sometimes it seems like people aren't even trying