S
Spring Sun
Guest
Hello everyone,
Since I am online a lot (I work online), I thought it would be good to come here for support. I will tell you a little about myself.
My sister, Nikki, was diagnosed when she was 18 in 1989. At the time they didn't know much about crohn's, and she was down to 89lbs before they were able to start treating her. My other sister, Amy, was diagnosed two years later when she was 18. I was diagnosed 7 years after that when I was 18. Then my father was diagnosed a few years later at the age of 55. Crazy, huh? We all have it.
Mine was always the mildest. I would have a flareup, easily controlled by predizone for a monthw hile I got on Imuran and asocal. I had onl,y had a few flare ups and my intestines did not look so bad (I have it is both large and small).
The only time I was hospitalized was 5 years ago when my doc tried entrocort without realizing that I had it in both intestines (entrocort only works for the small). So I needed high-dose predizone and tube feeding for a few days, but that was all. I got better witht he predizone and imuran after that.
Well, I got married and had a baby,, went off everything for two years. Then my husband left us suddenly four days before Christmas. A week later I found out he cheated on my on our honeymoon and while I was pregnant. I could not sleep and just cried all the time. And of course got very sick. I have been very sick every since (almost six months now). I have been on predizone for six months, it is not helping. I am on the full does of imuran, but it is not doing it this time. Three months ago I went to the er bc my stools were so bloody and painful. They did nothing but give me some vicodin and send me on my way.
My doctor thought the imuran would kick in and I would be fine, but I am still sick. I came off the vicodin memorial day weekend and realized that the vicodin had been 1) hardening up my stools to mask the diarhea symptom, and 2)masking the pain. So...with the messy divorce, I did not want to go on remicade bc I am going to lose my husbands insurance soon (I am self employeed so insurance would be soooo expensive-if you are intertested in learning about me at all you can see my business at karmababy.com - it is something that I created that is very successful but really stressful to run with a toddler -there is an "about us" page with photos and such
Anyways, I have come to terms with the fact that my intestines are not in good shape, and it will cause me a lot of damage if I don't do what I can to fix it now. So, I talkted to a lawyer and I am going to get a legal speration, that way my husband can't take my business but I can keep his insurance. Cross your fingers that it works out!
So on Thursday I am getting a colonoscopy (havn't had one since I was 22 and am now 27), and then I will go on the remicade.
I would love to hear more about humana to if you all think that is a good option.
At this point I am just scared, my anxiety level is through the roof, I am sick, and weak and so sick of not having energy or a normal life.
I just want to get better. I live in beautiful Boulder where everyone is healthy and young, and I feel like I am diseased and infected, kwim?
Thanks for reading this, I know it was long. I welcome any support or feedback or suggestions you all might have to offer. Especially about the axiety. It seems the worse my crohn's gets the higher my anxiety level. It is really affecting me.
Thanks so much, I am glad I found these forums!
Since I am online a lot (I work online), I thought it would be good to come here for support. I will tell you a little about myself.
My sister, Nikki, was diagnosed when she was 18 in 1989. At the time they didn't know much about crohn's, and she was down to 89lbs before they were able to start treating her. My other sister, Amy, was diagnosed two years later when she was 18. I was diagnosed 7 years after that when I was 18. Then my father was diagnosed a few years later at the age of 55. Crazy, huh? We all have it.
Mine was always the mildest. I would have a flareup, easily controlled by predizone for a monthw hile I got on Imuran and asocal. I had onl,y had a few flare ups and my intestines did not look so bad (I have it is both large and small).
The only time I was hospitalized was 5 years ago when my doc tried entrocort without realizing that I had it in both intestines (entrocort only works for the small). So I needed high-dose predizone and tube feeding for a few days, but that was all. I got better witht he predizone and imuran after that.
Well, I got married and had a baby,, went off everything for two years. Then my husband left us suddenly four days before Christmas. A week later I found out he cheated on my on our honeymoon and while I was pregnant. I could not sleep and just cried all the time. And of course got very sick. I have been very sick every since (almost six months now). I have been on predizone for six months, it is not helping. I am on the full does of imuran, but it is not doing it this time. Three months ago I went to the er bc my stools were so bloody and painful. They did nothing but give me some vicodin and send me on my way.
My doctor thought the imuran would kick in and I would be fine, but I am still sick. I came off the vicodin memorial day weekend and realized that the vicodin had been 1) hardening up my stools to mask the diarhea symptom, and 2)masking the pain. So...with the messy divorce, I did not want to go on remicade bc I am going to lose my husbands insurance soon (I am self employeed so insurance would be soooo expensive-if you are intertested in learning about me at all you can see my business at karmababy.com - it is something that I created that is very successful but really stressful to run with a toddler -there is an "about us" page with photos and such
Anyways, I have come to terms with the fact that my intestines are not in good shape, and it will cause me a lot of damage if I don't do what I can to fix it now. So, I talkted to a lawyer and I am going to get a legal speration, that way my husband can't take my business but I can keep his insurance. Cross your fingers that it works out!
So on Thursday I am getting a colonoscopy (havn't had one since I was 22 and am now 27), and then I will go on the remicade.
I would love to hear more about humana to if you all think that is a good option.
At this point I am just scared, my anxiety level is through the roof, I am sick, and weak and so sick of not having energy or a normal life.
I just want to get better. I live in beautiful Boulder where everyone is healthy and young, and I feel like I am diseased and infected, kwim?
Thanks for reading this, I know it was long. I welcome any support or feedback or suggestions you all might have to offer. Especially about the axiety. It seems the worse my crohn's gets the higher my anxiety level. It is really affecting me.
Thanks so much, I am glad I found these forums!
