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Joined
Oct 13, 2011
Messages
1,557
Location
Michigan, USA
My DD is flaring right now we don't know if it is c diff yet. Awaiting tests results. She has a lot of gas and loses blood when this happens. Also when having a bowel movement. I took her in for blood work and the test we have got are good so far. White count was a little high. She was being weened off predelisone when the blood started. Still waiting on cultures and c diff results. There is so much blood. I think i am doing the right thing by keeping her home. I am a train wreck though, I am not feeling good my other DD is sick. Had to make DH stay home from work. I am so scared. I hope we get some answers today. :sign0085: I didn't sleep all night long. I have so much to do. We just moved into a new house, cannot find anything. Worried about the c diff so am bleach bathroom and hand washing constantly. I just want her to be able to take her pills and be ok for christmas. I am so scared of having to go into the ER with flu season and all the bugs there. She really doesn't need the complication. My GIs nurse thought she should be in the ER but when I asked her what they would do it was all just blood work and stool samples. I requested we do that out patient. Glad hemoglobin was ok so at least I know she is not bleeding to much. I know to watch for paled face and dizziness. I don't know though how quickly things can change though. They increased her steroid back up from 3ml to 6ml. Hopefully this does the trick.
 
I'd say this is a flare rather than C-diff (Only hear americans talking about c-diff for some reason). I cant remember what glands pred takes over but when weaning off it it can take a while for these glands to kick back in.

Ive had bleeding for over 4yrs and Pred didnt really help me at all. It does look more than it really is when mixed with water, although mine was bleeding so much my iron count went down. Is it worth talking about stronger meds for her?

Also I would watch out for washing her hands too much. I know when im flaring and washing my hands after going to the toilet it does dry the skin out a lot, it gets very irritable and can start hurting. Its hard to stop this once its got to that point so try and keep them moisturised
 
Test results are in. Everything came back good. Still bleeding though. Awaiting doctors phone call to see if we adjusting the Asacol. She is only 3 so idk how much stronger the meds will get. Yeah I guess c diff is very common here in US, if your in and out of the hospital. I know a couple people that have had it in the past. My DD hasn't been anywhere though. I tend to keep her in a bubble. I bought some hand cream to put next to the sink. Thanks for the response.
 
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