Side effects

[seb]

side effects

Hi, I am new to this forum, but hoping to have some answers to some questions. I was diagnosed in 1995 with crohns and went on to have a bowel resection, I was in hosp for 8days appr, but when I came out, I was healthy for about 14 yrs. in this time I have had 2 children, a lot of problems falling preg, but then I had great pregnancies. Anyhow the last few mnths I have had irregular bowel movements, bouts of constipation, gas, bloatiness. I have had a colonoscopy on Monday and my dr, advised me that where my resection was many yrs ago, that is all now inflamed. he has put me on predisilone, which I have read terrible side effects about

The dosage is 20 mg for 10days, then 15mg, slowly reducing it over a 5weeks period, I need to see him again in 6weeks, he has also told me to go on a low fibre diet.. Can anyone let me know if they were on this steroid drug for appr 5 weeks, did they get all the side effects, puffiness, weight gain, hairy face etc, this I am dreading, also the mood swings, wow so many.. I am not sure what the nxt step is at this stage after the dose of predisilone. Also unsure how long its been re inflamed for as I have really only had symptons for the last few mnths

 

[Jeff D.]

I've had mixed side effects on pred. The first time I had pretty bad mood swings but then again I was a teenager so it could have been the mix added to the fact I just got dx'd with Crohn's. The second time was a few years ago where I gained 20 pounds as I was constantly hungry and I couldn't sleep to save my life. Sometimes I'd be up until 7am go to sleep and be up by 8am. The third time I had only the mildest side effects and most of those were to a lack of sleep. I was on a much higher dosage then you are as I was on 50mg. I had about the same taper schedule as you are on now. I can recommend taking in as much calcium and Vitamin D as possible so you can maintain bone integrity. Due to my intake of pred I now have osteopenia because I didn't drink enough milk.

Listen to the doctors and remember that the side effects go away after you stop taking it. Don't go off of it on your own as that can cause serious problems if you are not tapered properly.

 

[Crohns08]

On Thursday I will have been on prednisone for a week. I've been taking 60 mg and each week I taper down. The side effects I've experienced are awful mood swings, constantly feeling hungry, a bit depressed, nausea and sleep deprivation. I can't get to sleep until like 5 am and then I'll be lucky to get a few hours.

I definitely reccomend getting some vitamin D. If you can sit at the park for a little while in the sun, I'd reccomend getting it that way. It makes me feel a lot better. If you can't, then definitely supplement