Slightly cross and want to vent! Stupid Doctors!!!

[xX_LittleMissValentine_Xx]

OMG! I'm cross! I just rang home to talk to my sister but she wasn't in so i spoke to my Dad instead. He said there was a letter there for me and from the description I thought it sounded like it was from the hospital so he opened it for me. He read it out and it was about the colonoscopy saying that they found 'Slight inflammation in the terminal ilium' When they told me they didn't find any! So I walked out of the hospital that day thinking I had no inflammation and was slightly confused coz from how I was feeling I thought I had a bit of inflammation in my ilium. I knew it was nothing major but I was sort of hoping that would be what I found so I had an answer to why I'm so tired. They told me to come off my Pantasa and they didnt mention that in the letter either.
This has just rly annoyed and confused me. Why would they tell me to come off it if there was some inflammation there? I walked out thinking ok, atm im normal, this is how normal people must feel then. But it wasnt, because I was right all along and I was inflamed! I'm so confused! Would everyone else be feeling angry if they were in this situation?
Now I dont know what to think. I was feeling so much better knowing there was nothing there. But now there was. :ybatty:
x x x x x

 

[Crohn's 35]

Wow someone got their wires crossed! Slight isnt alot to worry about, maybe the doc was saying no narrowing... some doctors have a lousy bed side manner. So if you are going off Pentasa as told by the doc, what are you staying on? Anything? I see AZA on your sig. This is confusing, I would call the docs office first chance to get to tell them of your findings in your letter. Some where someone made an error. Hope you get it straightened out!!!

 

[RAW]

I would ask the physician to review the findings with you in detail and then ask him/her what the plan is and don't leave out any of your concerns. Often if you don't ask they don't tell.

 

[Binxybop]

OMG! I'm cross! I just rang home to talk to my sister but she wasn't in so i spoke to my Dad instead. He said there was a letter there for me and from the description I thought it sounded like it was from the hospital so he opened it for me. He read it out and it was about the colonoscopy saying that they found 'Slight inflammation in the terminal ilium' When they told me they didn't find any! So I walked out of the hospital that day thinking I had no inflammation and was slightly confused coz from how I was feeling I thought I had a bit of inflammation in my ilium. I knew it was nothing major but I was sort of hoping that would be what I found so I had an answer to why I'm so tired. They told me to come off my Pantasa and they didnt mention that in the letter either.
This has just rly annoyed and confused me. Why would they tell me to come off it if there was some inflammation there? I walked out thinking ok, atm im normal, this is how normal people must feel then. But it wasnt, because I was right all along and I was inflamed! I'm so confused! Would everyone else be feeling angry if they were in this situation?
Now I dont know what to think. I was feeling so much better knowing there was nothing there. But now there was. :ybatty:
x x x x x

Yes, very angry, I have had a letter this morning (Sat 6th Feb) saying I had a normal barium result, when the doctor himself told me there was narrowing in my terminal-whatsit. I totally understand how you feel even though our situation is a bit vice-versa!

They leave us dangling not knowing what to think, then we have to wait weeks to see the doc again :angry-banghead:

 

[Jennjenn]

Possibly there was nothing visible when they did the scope but when the biopsy came back there was probably inflamation seen from that. Maybe also they told you to stop taking the pentasa because there was not a lot of visible inflamation and if its slight when it comes back from a biopsy you might not need to take it. I believe that it can happen that the biopsy results that show inflamation ( when it is not visible during a colonoscopy) can still cause you to have a lot of symptoms. I would still discuss it with the doctor and ask.

 

[imisspopcorn]

Can you shoot him with a rubberband gun when you see him next??? I feel like doing it for you.....Sorry girlie.

 

[Fog Ducker]

Yeah that sucks!! But on the plus side maybe it was such minor inflimation that they didnt see it till they had a second look.

 

[Peaches]

I would ask the physician to review the findings with you in detail and then ask him/her what the plan is and don't leave out any of your concerns. Often if you don't ask they don't tell.

YES Holly - I'd be pissed!!! Do what RAW says...this is the right thing to do and ask all the questions to you aren't left with any doubt.

I'll say it again people - if they don't automatically give you copies of your procedures - get them. They removed a foot of my bowel and my doc said it was only 6 inches. I would have never known if I didn't read my medical records (and this wasn't the only thing that was wrong). AND....I trust my doctor explicitly. People make mistakes.

 

[RAW]

You shouldn't have to sit at home saying I thought he said one thing and now I'm finding out another, there should be no guessing from your point of view. They write reports and document everything for a reason. This is your health, you need to look out for number 1....you!

I'll give them a call for you. haha

 

[xX_LittleMissValentine_Xx]

Hey thanks for all the input and advice everyone I appreciate it.
However I broke up with my boyfriend yesterday after I wrote this and now I dont particularly care about it all that much!
x x x x

 

[RAW]

I'm sorry!

 

[Rob]

Two bouts of bad news for ya holly

hope ya get all sorted
I'd stil be talkin too ya dr one less thing too stress over

chin up hun

 

[rygon]

Sorry to hear about the bad news on both accounts.

I know how you feel bout the docs tho, Quite a bit of the time I think they expect you to read their mind, which is totally different to what they are saying.

Hope you get the correct info soon. I guess you can ring the hospital and ask rather than having to make another appointment.

In the meantime get your mates to buy you a big box of chocolates and wine to cheer you up a bit