Small Bowel Crohns with strictures but no diarrhea

[Bo*24]

Hi Everyone

New Member Here

I will just start from the begining. Sorry its a long one!

I was diagnosed in March this year after nearly 2 years of pain. I had no diarrhia just kept getting sore stomach so i went to doctor and they said i had IBS the stomach pains were getting worse so i went back they said it was ulcer in my stomach. Then i started losing alot of weight and starting being sick. The pain by January this year was really bad and losing 3 stone and continuing to be sick the doctor decided to put me into hospital for a camera down my throat everything came back fine and they put me home. In March i was rushed into hospital and started getting tests which included camera up my back passage, everything was clear and then i got white cell scan and barium meal which revealed inflamination in the small bowel. I then started on IV steriods for 5 days and was put home 2 days later on oral predisolne (steriods) 40mg and 100mg of azathioprine. I came down 30mg and was put back into hospital in pain, so they put back up the steriods to 40mg and i was sent home again. I was on regular tramadol (painkillers) and managed to come of steriods a few month later. Then i was put back on them in June for a month. In July i was put for a MRI Scan which revealed i had 4 strictures in my small bowel and a month later was seen by a surgeon and my IBD consultant to discuss surgery. Completely confused by the whole situation as i was now of my steriods was only taking azathioprine. I felt OK, had pain in my stomach and loud noises with maybe once in a month being sick but i felt like everything was a million times better. So why was surgery being discussed?!
They said surgery would be a last resort and they'd try a few things before that would happen. So now i have started Infixamab. I had my 1st one in Sept and felt ok just the same really but 2 weeks later was put into hospital with severe stomach pain and constant vomiting which stopped the following day so they put me back on steriods again. I came off them last month and 2 weeks ago was put for my 2nd Inflixmab infusion. I feel ok haven't been sick since Sept but still have constant loud noises and movements in my stomach with bouts of feeling sick and little cramps but feel fine apart from that.
I just feel so confused thats why i have decided to join this site to try to learn about Crohns Disease and for understanding.
I have alot of questions and feel so unsure about the whole disease.
Does anyone else have Small Bowel Crohns with strictures? And have no diarhhia? I keep thinking they have got it wrong because i am not presenting the no1 symptom. I have never had ulcers in mouth or blood out back passage. I pass a stool once a day.
I have been told the strictures are dotted apart along my small bowel and nothing in the large bowel. Will it spread into the large bowel eventually? And whats the chances of inflixmab working and how will i know when it has worked?
Sorry for all the questions am a confused newly diagnosed 22 year old who never even heard of Crohns Disease until 9 month ago.
Thank you all for taking the time to read my thread and i will be grateful for any advice or experiences you can share with me.

xx

 

[Rebecca85]

Diarrhoea is more associated with large bowel disease, as it is the colon which absorbs the water out of the stool. My disease is also in the small bowel, (though no strictures) and I never have diarrhoea as such. As for the noises etc, that will be matter moving through the narrow parts. There is no way of knowing if your Crohn's will spread or not, I'm afraid. Taking meds will reduce the chances. I guess you will know if the infliximab has worked by whether the noises calm down, and the cramps and sickness lessen.

And don't worry about asking questions! We have all been there at some point. Why not check out our wiki: www.crohnsforum.com/wiki/crohns-disease

 

[robbo87]

Welcome to the site! Sorry to hear about your troubles and hope youre on the mend soon. Either way you've definatley come to the right place for info.

One thing i've found by reading peoples storys on here is that people's symptoms can vary so much from one person to the next, It's just one big pick and mix! But no doubt there will be people with similar experiences to you.

 

[Bo*24]

Thank you for reading and replying. I haven't noticed a difference with the noises and movements in my stomach sometimes i actually think there getting worse. Feeling sick comes and goes but nothing that stops me from eating, so i am not complaining about that. Overall i do feel bettter than i did 9 month ago but whether or not the inflixmab is working is really going to be a waiting game. Which is not my strongest point, i am very unpatient.
On a brighter note i am very pleased i joined this forum i have read alot of threads posted and some have made me more aware of the disease. Its a very strange and unpredictable disease.

 

[Mountaingem]

:bigwave:Welcome Bo! I have had Crohn's attack my small bowel, but after about 6 years it redirected it's attention elsewhere.

I didn't have alot of diarrhea when it was in the small bowel, but alot of dark blood in stool, a quick transit time everytime I ate, ALOT of pain and bloating. And if that wasn't enough, alot of nausea, vomitting and dry heaves.

I've had great sucess with Remicade, wishing you the same!