So do I have crohns or not!! I don't believe this !!!!

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Oct 15, 2010
Messages
271
So went to my gi this morning..
He had my biopsies back Which were negative!! He said that this was probably because they already had me on 40mg pred 10 days before the scope, great !!! That doesn't help me at all, so now I have to come off pred totally by reducing whether I get ill or not so I'm off everything for 1 month so they can do a pill cam !
My ct scan showed inflammation of the small and large intestines but that was done before the scope and that was the day they put me on pred in the hospital, I really don't get this y did they not do the scope first ?? Idiots now I gotta suffer till jan to get more tests.
At least he put me back on codeine for the diarrhoea that's something !!
 
Yeah I get what your saying, they should have scoped you straight away however they cant always do this.

I'd previously been DX but the time before my 2nd scope i'd been on entocort for a coupe of months and it detected only mild inflamation, so result, the meds were working but that was to be expected.

However when they did my last scope they could'nt complete it due to it being too heavily inflamed, i think they barely got into my colon, this was then treated with iv steroids so i guess it really is'nt that easy to time it right!

Hope your next month does'nt go too bad.

G
 
Last edited:
They did the same to me- gave me steroids based on the ct scan result. But in my case, the scope did show something- inflammation and ulcers, and the biopsies were positive. And it was 3 weeks before my scope! So I guess it's a bit of a gamble, if you were really suffering they probably just wanted to get you treated.
 
He had my biopsies back Which were negative!! He said that this was probably because they already had me on 40mg pred 10 days before the scope, great !!! That doesn't help me at all, so now I have to come off pred totally by reducing whether I get ill or not so I'm off everything for 1 month so they can do a pill cam !

Hmm, when I had mine done I was on a high dose of pred and the biopsies came back positive (although i had been previously diagnosed with Crohn's).

With a colonoscopy a diagnosis should be able to be made by the pattern of the ulceration (if you have any). Perhaps your Crohn's doesn't reach that far in your intestines?
 
Try not to beat yourself up over thier findings...or lack there of. Ive been really sick for many years, and to this day....NOTHING ever comes back positive in the way of biopsies. CT scans and some scopes show inflammation and scaring....but no confirmed diagnosis through biopsies. Its frustrating because many drs use biopsies as a way to confirm dx and then treatment. Ive had biopsises taken from scar tissue and severely inflammed intestines.....and still NOTHING!! Dont give up~
 
I'm so annoyed with all this yeah I was gutted I had crohns but glad I had a name for something other than bloody ibs !!
An glad the ct showed the inflammation so the gi could finally help me after 6 years of being awful to me.
But what does this all mean, if I have inflammation and if the pill cam also shows it then will they say crohns? Or could it be something else causing inflammation but what ?
 
Just to add..
I had a sigmoidoscopy 6 years ago and that showed nothing. But this time in the hosp after the ct scan my gi said the scope wouldn't of showed any problems as it was further up and mostly in my small intestines.
I was supposed to have a full colonoscopy and gastroscopy but they changed that last minute to just the colonoscopy but it was called something else really not sure what an he said they'd go as far as possible but I had to have the smaller scope they use for the throat for some reason.
When I came round I was told it showed inflammation but my gi didn't mention it just that the biopsies were fine and he was hoping for more from them.plus my blood tests still show I'm anaemic and a high white blood count and still more weight loss and malabsorbtion of nutrients. great eh!
So here I go again back to square 1 he still thinks it's crohns just gotta prove it, an I'm dreading coming off pred and ending up on hospital over Xmas !!
Oh well things are sent to try us lol
 
Back
Top