So freakin' frustrated

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ishy

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I took amoxycillan in June for an upper respiratory infection that wouldn't go away. A month later, I had an episode on a Friday that I thought was food poisoning. Severe vomiting, nausea, pain, etc. It got a little better during the weekend, and then Monday I had another one, but this time pain was almost unbearable. I vomited blood. I couldn't lay down because it hurt worse, and in my haze I paced until I literally collapsed, and my dad came and took me to the emergency room. They treated me for 'gastritis' and dehydration, and sent me home later that morning.

I continued to have problems with bouts of nausea and vomiting, and a pain that wouldn't go away. My primary care physician referred me to a gastroenterologist, but it was two months before I could get in to see him, and I suffered that whole time with episodes. Right before I went in, I had another bad episode, and my primary care doctor went ahead and did a stool test. I went to see the GE before it came back, and he was puzzled. He thought perhaps I had an ulcer, nearing perforation, and scheduled an immediate endoscopy, which showed irritation, but nothing specific. Two days later, the stool test came back positive for c diff. He immediately put me on Flagyl and Flora-Q.

I finished the Flaygl 25 days ago, and am still taking probiotics. It got better, and then the week before last I developed a rash. One doctor thought it was a reaction to the Flagyl, the other thought it was shingles.

The second bout got worse over last weekend, and I ended up calling my GI back. He was on vacation, so his partner proscribed Cipro. After some warnings on another site, I made an appt with my primary care physician. She took me off the Cipro and put me back on Flagyl. However, she's concerned that the stool tests showed non-toxic c diff, and that with the rash perhaps it's not an infection at all, but something like Crohn's disease. She ran more blood tests, and another stool test, but wants my GI to do a colonoscopy if the Flagyl doesn't help by this week.

I went to the ER Friday, had a total jerk of an ER doctor who sent me right back home with pain & nausea meds that don't seem to help much at all, if any. I feel sick all the time, and I'm scared and frustrated, especially feeling like the doctors aren't helping a whole lot. I also have signs of yeast infections in various forms, such as my mouth has a yellow coating.

All I've been eating is maybe a cup of homemade chicken soup a day and a few types of baby food that seem the least bothersome (can't tolerate fruit at all - mostly squash and sweet potatoes with chicken). Lots and lots of probiotics, but doesn't seem to help. A lot of foods that I would try (and normally love), like bananas, have such strong smells that I get nauseous just going near them.

I'm sick, and frustrated, and unable to work, and worried about what's going to happen, and I don't know what to try anymore.
 
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Aww ishy am so sorry things are really tough for you at the minute. Keep pushing for the colonoscopy to be done whether you feel better or not with the flagyl. As whatever it is seems to reappear the minute you stop it and sounds like you need ongoing treatment rather than intermittent antibiotics.

We all understand what you are going through here including the physical, mental and emotional pain!

Very glad you found us. Keep posting and asking - we will try to support you any way we can ok? Also keep us posted on what happens for you.

Thinking of you..... Welcome!
 
I am female, and thank you for the advice. They are planning to do the colonoscopy, but were waiting for a spot to open (scheduled through January, but like with my endoscopy, spots open up often I guess). I don't understand the drug situation at all, but I think they were concerned that Cipro would upset c diff and waiting for the second stool test to show I didn't have that anymore. They did get a couple of the general autoimmune tests back, which are both positive, so Crohn's becoming more likely. The lab lost the most specific one for Crohn's, so I have to have it done again tomorrow.
 
The c diff appears to be gone, and they did an ultrasound to check my gall bladder, which was normal. Waiting on more blood tests to come back, and then they would schedule a colonoscopy. The pain has been terrible, and they won't let me take anything but Tylenol, which does nothing.
 
Hey Ishy,
I'm sorry you're having a rough time. If you read through the forums you'll find that most of us had a hard time getting a good diagnosis. It took nearly 2 years for the doctors to finally say I had Crohn's. Its not easy to diagnose and even harder to treat since we all respond differently. Cipro and Flagyl are pretty common medicines to treat it though and it sucks that it hasn't helped you out =(

Welcome, keep us in the loop and hopefully they'll get you in for a scope soon and you'll be able to start feeling better. As others have mentioned, it is very important to stay hydrated, if you find yourself losing weight, you might consider drinking things like Boost and Ensure so that you get the proper nutrition you need.
 
Sorry to hear you are going through all that Ishy. Hope all the tests help the docs to reach a diagnosis. Sucks that Tylenol is all I can take too...doesn't do much for the pain. Let us know how your colonoscopy goes. We have all had them.

Just wanted to give you some <<<<HUGS>>>>
 
The Prometheus test came back positive for Crohn's, which isn't much of a surprise. I have a colonoscopy on Oct. 30th.
 
I would strongly suspect C-Diff. I hope that is what it is since it is curable enough.

But is it is not, you have our support and you can drop in whenever needed.

I wish you luck.

Dan
 

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