Son dx dec 2016. Now I have the same issues?I might be nuts?

[pooksmom]

My 11 year old son was DX crohns 12/16/16

He had been sick with gastro issues from 11/24/16

After he was DX his sister age 25 started having almost the same issues but less serve. Her issues have improved however this last week, I ended up having the same issues. Just as serve as the ones that lead to my son's rapid DX'S. PRIOR TO THIS ...No one has had any issues. I am on day 8 . severe pain ,blood stool , cant poop ,have to poop so bad I think I am going to poop my pants. (thankfuly I have not been more than 1,000 feet from a potty ,but then I get there in the hurry and cant go).When I did it was slimy blood fecal matter. (as best i could tell).

So then I remember way back in july of 2016 my middle daughter saying their was blood in her poop.

I am only here because my son has been DX'ED with crohns .. yet.. I mean we didnt all get it at the same time. BTW none of the meds have cleared his issues. Not pentasa ,not steriods, or laxitives or diet changes . nothihng . the only thing different in his life was a case of ring worm ...in 8/16 when his middle sister had her issues .


However once I took my dog to the vet because he shit blood , which looked about the same as when I scooped up my sons bloody poops.

Should I trust the doctors and he does have crohns or should we examine other issues?
Both sisters cleared up kinda.. one not fully but better than he is and since I am in my first week of those issues , when I know his older sisters had issues longer should I wait
my issues out and see if I get worse or better or should I make preform test ,that I dont know to ask for but you guys would?

 

[my little penguin]

Have you seen a doctor for your issues ?
I strongly recommend you seeing a doc
Crohns kids can get GI bugs but they tend to have them longer
Crohns is hard to get as a dx
The doctors tend to rule out a long list of other things first and there is microscopic evidence plus imaging evidence and scopes themselves

So while we have all been there wishing kiddo didn't have Crohns

(Did I mention we had Ds get not one but TWO second opinions )
At different hospitals and different pathology
They all agreed it was Crohns

 

[Maya142]

You could get a second opinion. When my daughter was diagnosed, I initially joined this site hoping everyone would tell me that there was NO way it could be Crohn's (even though she had already been diagnosed by a GI and her biopsies very clearly indicated Crohn's). I was just hoping somehow, we were wrong.

Anyway, we eventually got a second opinion, who confirmed our GI's diagnosis and treatment, and that helped me accept it.

Remember that Crohn's is genetic so if your son has it, your other children's are slightly more likely to have it too. If they continue to have bleeding on and off, I would make sure they see his GI.

The same goes for you - you should see a GI.

 

[pooksmom]

Have you seen a doctor for your issues ?
I strongly recommend you seeing a doc
Crohns kids can get GI bugs but they tend to have them longer
Crohns is hard to get as a dx
The doctors tend to rule out a long list of other things first and there is microscopic evidence plus imaging evidence and scopes themselves

So while we have all been there wishing kiddo didn't have Crohns

(Did I mention we had Ds get not one but TWO-second opinions )
At different hospitals and different pathology
They all agreed it was Crohn's

I have not seen a doctor. I do plan to and I am currently waiting on a call back to set up a colonoscopy

In my son's case, he was dx's with Crohn's within a month of onset of symptoms. I don't think they had time to rule out anything.From the first appointment to confirmed dx's was very fast.(11/26 to 12/15. It' his follow-up care I am having a hard time with, his doctor seems to be completely okay with not seeing my son in person yet upping doses and giving meds on my word of what is going on. I am torn because in some very absolute ways this- is a blessing in doctors. They trust you and you trust them . I have not got to that part of the trust with her. Plus the meds do not seem to be helping much.
My oldest daughter who is 25 is adamant of a second opinion. I excepted the Crohn's DX's until I presented the same bloody scary poop and all the issues first reported by my son.

My Grandmother had 9 children. Those children have between 2 and 8 children of their own ..and onward to a city full of DNA.None of them have Crohn's, I can accept he has Crohn's and it may genetic. However , CrohnsI knows myCrohn's is not genetic, because it just is not there in the history of both his lines of genetic's. So all these sudden issues all of us are having, along with the other 3 people on the same block who had already been DX's
Even if Crohn's goes way into recessive genes. My family has traced themselves to the mayflower on one side and .. on the other side back to the revolutionary war. So I am leaning towards environmental.

BTW he did have biopsies and I believe he has Crohn's, however, I feel the onset of all our issues should be looked at for a cause. I mean everyone is crapping blood in the same few months?It just seems unreal to me that all the sudden everyone is having GI issues.

 

[my little penguin]

There is no family history of Crohns in our family and
Ds was dx at age 7

Your son is the only one dx with Crohns so what is going on with you or your other children may not have anything to do with it
Crohns is not a rule out dx
They use imaging and biopsy results to determine it
Sorry that this is hard for you

 

[pooksmom]

There is no family history of Crohns in our family and
Ds was dx at age 7

Your son is the only one dx with Crohns so what is going on with you or your other children may not have anything to do with it
Crohns is not a rule out dx
They use imaging and biopsy results to determine it
Sorry that this is hard for you

Thanks. Our babies should not have to have these issues.

 

[Clash]

It really isn't about the time it takes to get the dx that rules out everything else. It's more the testing ie blood work, fecal studies, imaging scopes.

The meds your son has been on so far are at the bottom end of the pyramid for CD treatments. Pentasa is even off label for CD. It affects the top layer of intestine whereas CD is transmural, it affects all layers of the intestine. So, often pentasa is not enough to achieve and maintain remission. Laxatives only treat symptoms and won't fix the source of the problem. Steroids are like rescue meds (think inhalers for asthma) they are supposed to dampen the inflammation so that the maintenance meds can take over. Steroids work for most people but not all they aren't effective for my son.

Since the 3 of you have the symptoms occurring that are similar it could be that on top of CD your son has an infection, one yall have all passed around (this would affect his treatmemt).

I would mention to his GI that yall have all had bouts of these symptoms and that the similarity to your son's ongoing symptoms concerns you. She may want to run some stool tests to ensure he doesn't have Cdiff or some other infection as well.

A second opinion is always a good call even if only for peace of mind. Often large children's IBD centers will allow record reviews where you send the records and they review and give opinion. This doesn't require the child to be present.

Hope your scope goes well. Before scoping you did the GI run stool tests to ensure you didn't have some type of infection? Did your daughters have any testing or stool tests why they were exhibiting symptoms?