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- Dec 1, 2012
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- 5
my 13 yr old son was just diagnosed with crohns and perianal disease. He currently has a fistula and is on remicade. We are looking for support adivice help with recipes
Son with crohns
- Thread starter princezkristal
- Start date
Help Support Crohn's Disease Forum:
SarahBear
Moderator
Welcome to the forum!
I'm sorry your son is having a tough time. What kind of recipes are you looking for? Is he following any specific diet? Do any foods seem to upset his stomach? You might want to check out the Diet, Fitness, and Supplements section of the forum.
The Fistulas, Fissures and Abscesses section might help you with the fistula. You might be interested in the Remicade section as well, if you're having any questions or problems with that. I'm also going to link you to the
Parents of Kids with IBD section, where there are many extremely knowledgable and helpful parents who might be able to better comfort and advise you than I.
I hope things improve for him soon!
I'm sorry your son is having a tough time. What kind of recipes are you looking for? Is he following any specific diet? Do any foods seem to upset his stomach? You might want to check out the Diet, Fitness, and Supplements section of the forum.
The Fistulas, Fissures and Abscesses section might help you with the fistula. You might be interested in the Remicade section as well, if you're having any questions or problems with that. I'm also going to link you to the
Parents of Kids with IBD section, where there are many extremely knowledgable and helpful parents who might be able to better comfort and advise you than I.
I hope things improve for him soon!
- Joined
- Apr 15, 2012
- Messages
- 14,728
Welcome glad you found us.
There is a good group over in the parents section.
So sorry you needed us .
My son who is 9 is on remicade as well.
He was dx at age 7.
Hope remicade does wonderful things and works for you as well as it has worked for DS .
There is a good group over in the parents section.
So sorry you needed us .
My son who is 9 is on remicade as well.
He was dx at age 7.
Hope remicade does wonderful things and works for you as well as it has worked for DS .
- Joined
- Apr 26, 2012
- Messages
- 6,292
Welcome to the forum though I'm sorry you found a need for it. My son is 16 and on Remicade as well. Hope that your son is able to find remission soon.
As sarahbear said I would browse through the diet forum as there are a number of members on various diets with loads of experience.
As sarahbear said I would browse through the diet forum as there are a number of members on various diets with loads of experience.
Couple of my opinions:
-Maybe completely eliminate dairy and red meat for a couple weeks to see if there is improvement by reintroducing them and monitoring effects. These don't have to be done all at once just consider these common "intolerances" that could otherwise go unnoticed and wreak havoc.
-Maybe stick with a higher protein (as opposed to vege/fruit/grain), whole food (no sugar--or fake sugar--sauces) based diet. Like hard boiled eggs or natural nut butters without hydrogenated oils--identify and always avoid transfats. Avoid refined, white flours and maybe substitute breads/pastas for sprouted grains when grains must be eaten.
-Do eat plenty of good fats. Use extra virgin coconut oil for cooking and for lower temps e.v. olive oil. Avocados, walnuts, fish oil, flax and real grass fed butter are really good.
-Find 100% vege/fruit juices--no sugar--like bolthouse farms or naked etc. I think carrot juice helps, as does the "green goodness" bolthouse drink.
-Do eat good fibers with prebiotics like steamed broccoli or plantain recipes or apples or squashes.
-Find a quality probiotic supplement that noticeably ameliorates stools and take enteric coated fish oils.
-Stay super hydrated.
Nourishing Traditions is an interesting book for recipes. The author (Jordan Rubin--I agree with many of his opinions and some of his products, like Primal Defense Ultra) of The Makers Diet has good recipes in the back of all his books, probably online too. Whole foods has a good app to cook with real food. See my rantings and pointers at the Success Stories section: "MY Supps for MY Dis-ease".
-Maybe completely eliminate dairy and red meat for a couple weeks to see if there is improvement by reintroducing them and monitoring effects. These don't have to be done all at once just consider these common "intolerances" that could otherwise go unnoticed and wreak havoc.
-Maybe stick with a higher protein (as opposed to vege/fruit/grain), whole food (no sugar--or fake sugar--sauces) based diet. Like hard boiled eggs or natural nut butters without hydrogenated oils--identify and always avoid transfats. Avoid refined, white flours and maybe substitute breads/pastas for sprouted grains when grains must be eaten.
-Do eat plenty of good fats. Use extra virgin coconut oil for cooking and for lower temps e.v. olive oil. Avocados, walnuts, fish oil, flax and real grass fed butter are really good.
-Find 100% vege/fruit juices--no sugar--like bolthouse farms or naked etc. I think carrot juice helps, as does the "green goodness" bolthouse drink.
-Do eat good fibers with prebiotics like steamed broccoli or plantain recipes or apples or squashes.
-Find a quality probiotic supplement that noticeably ameliorates stools and take enteric coated fish oils.
-Stay super hydrated.
Nourishing Traditions is an interesting book for recipes. The author (Jordan Rubin--I agree with many of his opinions and some of his products, like Primal Defense Ultra) of The Makers Diet has good recipes in the back of all his books, probably online too. Whole foods has a good app to cook with real food. See my rantings and pointers at the Success Stories section: "MY Supps for MY Dis-ease".
