Oh what a difference a day makes (or a week lol). We did not do pred. She did improve on meloxicam. EN feedings are going well and we are thrilled to see pink cheeks. Typically she ONLY has color in her face when she has a FEVER. Seriously!!!!!!!!!!!!!!!!!!!!
I'm trying to take my own advice to enjoy every good day and we've had a few. Last week Claire was doing a day drama camp. It was taxing with the arthritis pain and every day after 6 hours of camp, she literally came home and went to bed until I put the tube in and then went back to bed. Friday I wouldn't let her lay down because I was afraid she'd sleep through the performance BUT that was the day she started to perk up. Then I obsessed she'd forget her lines because she'd felt too poorly to really practice at home as they suggested.
Well, folks, have you seen Steel Magnolias? The youth drama camp was doing selected scenes and Claire was Clairee. It was the scene where M'Lynn breaks down over the death of her daughter (M'Lynn was played by Sally Field in the movie, Ouiser was played by Shirley Maclaine and Clairee by Olympia Dukakis). Clairee grabs Ouiser and starts shouting for M'Lynn to hit her. This was the scene and my little girl stole the show. First of all, the girl playing Ouiser was a good foot taller than Claire who had to hold her by the arms. Her struggle to hold her, plus her line delivery was hilarious. I'm her biased Mom but person after person told us how hilarious she was and that she was a "natural". After the summer she had, seeing that grin on her face was PRICELESS.
Hugs to all of you and your "Clairee's" tonight. :ghug:
J.
. And no, that's not a bruise - it's redder and a little more mottled (for lack of a better word) than the stupid picture appears.
