- Joined
- May 25, 2010
- Messages
- 462
:grumpy: Met with GI today. Told him what surgeon said about not doing surgery unless completely blocked, abcess, fistula, etc....and that it should be treated medically. GI basically told me that he's doing what he can medically, they gave me the remicade last night, my 4th dose, and that hopefully it works. Otherwise, try another hospital, maybe Tampa General or Mayo. I told him I couldn't afford Mayo and haven't checked into Tampa. Because I drink enough ensures and get enough nutrition, I'm considered healthy, so just keep doing what I've been doing. I've not had solid food in since April 7th. When I've tried to expand my diet I end up in severe pain and usually at ER or in the hospital. Today he didn't even tell me it was going to take time, but that it was as good as is going to get with medicine.
So, My next mission is see if I can get my family physicain, whom I've been with for years, try to get a Dr. to Dr. courtesy to Mayo Clinic in Jacksonville, send me to Gainesville like he mentioned last time, or check out Tampa or Miami. So, if you don't see me on much, I'm probably doing research.
I was not feeling well and had a mild panic attack before the doctor came into today and had taken some pain meds. I was so upset after he left, I ask the nurse to please give me any and everything she was allowed to at the moment for pain and anxietly. And she did. I slept from 3:00 until 7:30. So, It's time to regroup. It's Friday night, my daughter brought all my medical folders today so I have the weekend to organize them and make plans for monday.
For now, First things first, and ladies you will appreciate this, I'm going to turn off the computer and pull out my nail kit my daughter brought me this afternoon and I'm getting ready to give myself a long overdue manicure! That will make me feel better. For fun, I'll even show the before and after shots when I'm done.
Thanks for being here and letting me dump. I try to stay strong but this has been a really rough ride for me. Don't know what I'd do without all of you. I'm not happy, I'm depressed, but I'm taking a deep breath and I refuse to give up. When God closes one door, he opens another one. I don't want surgery, but I can't keep going the way I've been either. Thanks for being here for me through the good and bad.
So, My next mission is see if I can get my family physicain, whom I've been with for years, try to get a Dr. to Dr. courtesy to Mayo Clinic in Jacksonville, send me to Gainesville like he mentioned last time, or check out Tampa or Miami. So, if you don't see me on much, I'm probably doing research.
I was not feeling well and had a mild panic attack before the doctor came into today and had taken some pain meds. I was so upset after he left, I ask the nurse to please give me any and everything she was allowed to at the moment for pain and anxietly. And she did. I slept from 3:00 until 7:30. So, It's time to regroup. It's Friday night, my daughter brought all my medical folders today so I have the weekend to organize them and make plans for monday.
For now, First things first, and ladies you will appreciate this, I'm going to turn off the computer and pull out my nail kit my daughter brought me this afternoon and I'm getting ready to give myself a long overdue manicure! That will make me feel better. For fun, I'll even show the before and after shots when I'm done.
Thanks for being here and letting me dump. I try to stay strong but this has been a really rough ride for me. Don't know what I'd do without all of you. I'm not happy, I'm depressed, but I'm taking a deep breath and I refuse to give up. When God closes one door, he opens another one. I don't want surgery, but I can't keep going the way I've been either. Thanks for being here for me through the good and bad.
