Special diet for Crohn's

[farfalle5]

Is there a special diet I should be following for my daughter that has crohn's?
She keeps getting flareups and she is on the 6mp. So I am thinking maybe its the way she eats!!! Any tips advice is greatly appreciated!!!

 

[crohnsinct]

Wow! You pushed a hot button! Unfortunately, diet is highly individual. What bothers one person does not bother another. Plus the docs will tell you that diet does not cause a flare ( a lot of IBD sufferers would disagree with that). However, diet during a flare will most certainly make your daughter more comfortable. Typically a low residue diet is advised...all the stuff we are told generally not to eat...white refined flour..low fiber foods. No seeds, nuts, popcorn.

This all said, I am a huge fan of diet but what works for my daughter (vegetarian/vegan) will not work for many others. Some people have good luck with FODMAP or SCD. The anti inflammation diet is quite the craze these days and may be worth checking out. For others even if they do not have celiac low or no gluten works. It is a process of finding what works...like everything else with this darn disease.

 

[farfalle5]

Thank you for your post!

 

[my little penguin]

We use en ( peptamen jr ) with food . It helps DS grow and get nutrition .
We have tried many different diets with DS ( free of corn , soy , milk , fodmap , gluten free etc...)
Nothing helped him except the right meds .
6-mp was not enough for DS .
Remicade was the only drug to get DS in a good spot .
Good luck

 

[Mehita]

Have her 6MP levels been checked recently? If she keeps flaring, it just might not be her miracle drug. Not to say that her diet might not be part of it, but flares, plural, raises red flags.

Azathioprine (sister to 6MP) wasn't strong enough for my son. He kept flaring and had to move to Remicade.

 

[Farmwife]

My kids can't eat most food so that seems to be or diet plan. Lol
Sadly it hasn't made a difference in the way of symptoms.

 

[farfalle5]

Thank you little penguin!!!

 

[kimmidwife]

It seems there are a lot of kids on here that 6mp did not seem to work well for. May not be the right medication for her. Also as others said most doctors do not seem to believe that nutrition has an effect on Crohn's. There are many mixed feelings on it.

 

[DustyKat]

This is a good read farfalle5:

Nutrition in Inflammatory Bowel Diseases.

Dusty. xxx

 

[Sudsy]

My older dd was on the Specific Carboyhdrate Diet (SCD) for five years. It was like a miracle for her. I highly recommend it. It is hard to stick to. Then again, being really sick is no picnic either....

Good luck!

 

[Jenn]

I think diet can make a big difference, but compliance in kids is a big issue. 6mp alone was not enough for my son, so I would consult with your child's GI for suggestions on options.