Steve here new to forum here's the story

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Mar 4, 2010
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So yeah in a nutshell :depressed: and tired.

But onto my story. I think I was diagnosed Junior year in November. Junior year as in High school Junior year, which means I've had chrones for about 4 years now. I'm not entirely sure when I got it because I was in total denial and generally tried to avoid dealing with it which in terms of my discipline in taking my medication was a bit of a crisis.

I had blood in my stool and was referred to a GI specialist David Pratt, who has a really calm demeanor quite valuable in any doctor. So he ordered a colonoscopy and the barium treatment and viola I was diagnosed with chrones disease.

They found a fistula in my lower intestine and removed it on my first colonoscopy. In my second colonoscopy a year later they didn't find quite as much.

Lots of blood tests up to the present day and a gradual increase in Asacol medication. It took me a long time to get used to taking it.

My basic chrones battle has been with constant fatigue. Not as painful as much as what other people here go through I'm sure but draining nonetheless after 4 years.

It's possible it's the Azathioprine but I really feel that that medication helps with chrones so I hesitate to stop taking it.

I'm on the SCD diet right now also, although an in proportionally meat heavy version.

Oh and I'm definitely in a flare up, and it's probably been going a couple weeks.
 
Welcome Steve, you will get great advice and answers here and will meet a lot of great people.
 
Hi Steve
and welcome

Yes you'll get lots of help and support here, just fire away with questions, there's always someone here
Are you able to digest all that meat, just wondering if it's making you worse?
I hardly eat red meat now, big no no for a Crohnie!
good luck
Joan xx
 
:welcome: Steve....The fatgue has always been the hardest for me to deal with mentally and physically.....There is a thread devoted to it on here...You are not alone.:)
 
Astra101 said:
Hi Steve
Are you able to digest all that meat, just wondering if it's making you worse?
I hardly eat red meat now, big no no for a Crohnie!
good luck
Joan xx


It probably is giving me trouble actually. Eggs and fish seem to go down much smoother. I think I'll try switching it with Pollock this week.
 
Hi Steve,

Fatigue is something that has really been hard on me too. Especially at our age, when everyone else has ton of energy- so I completely understand. Exercise helped, but didn't cure it. Same with taking vitamins. What actually helped me the most was switching from 6MP to the biologic, Cimzia- I saw my energy level go way up. I think its more so your Crohn's and not your medication. Having inflammation in your body drains it, plus you don't get many of the nutrients you need. But obviously keep doing what you're doing- hopefully it will work out. Maybe ask your dr. about different meds? Good luck.

Alex
 
Hi Steve
Hope you're feeling ok?
Yes, about meat, I'll eat a steak now and then, its delicious, but I suffer for it!
I have found that fish, especially salmon, tuna, prawns and cod, and eggs, rice and chicken and new potatoes are easy to digest.
Try it and see if it helps you (Oh and the omega3 is good for us too)
 
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