I was missed Diagnosed at age 14 1980 with Severe Ulcerative Colitis, Treated for 11 years before being RE-Diagnosed with Severe Crohn's, During my first 11 years, I came close to losing my life twice, I had to have Blood Transfusions both times because of my White blood cell count being extremely low,, and I was life-less...
Back then, I thought my life was over I had already missed out my Teen years of growing up,,, that alone was had enough,,, having to KNOW where every restroom in the state of California was,,,, I had to use the restroom every 30 to 45 minutes,,, I felt pathetic... embarrassed... and I had Low self Esteem...
I thought my first 11 years were a struggle,,, LOL,,, I was 25 years old with a 1 year old child,,, when I was correctly Diagnosed,,, & boy did I think It was over then,,,, I didn't want to have any part of my Intestines removed,,, But,,, Surgery was my last option to stay alive,,, I couldn't allow my son to be with out a mom,,, so I agreed to have the surgery with the knowledge of the possibility of re-connection after a 2 year healing time!
Well 2 years passed,,, went in for the Re-connection,,, after surgery and coming to,,, I was Informed the Re-connection Failed,,, and they had to take more because the Crohn's was still active... and they had no choice but to take the Rectum too,,, Now I will never have the chance again to be Normal... This past March 2011 I Celebrated 19 YEARS, HAPPY, STRONG, CAREFREE, CROHN'S FREE,,,, and LIVING WITH A COLOSTOMY!!! Happy RE-Birthday to me!!! :dance::dance::dance::dance:
Back then, I thought my life was over I had already missed out my Teen years of growing up,,, that alone was had enough,,, having to KNOW where every restroom in the state of California was,,,, I had to use the restroom every 30 to 45 minutes,,, I felt pathetic... embarrassed... and I had Low self Esteem...
I thought my first 11 years were a struggle,,, LOL,,, I was 25 years old with a 1 year old child,,, when I was correctly Diagnosed,,, & boy did I think It was over then,,,, I didn't want to have any part of my Intestines removed,,, But,,, Surgery was my last option to stay alive,,, I couldn't allow my son to be with out a mom,,, so I agreed to have the surgery with the knowledge of the possibility of re-connection after a 2 year healing time!
Well 2 years passed,,, went in for the Re-connection,,, after surgery and coming to,,, I was Informed the Re-connection Failed,,, and they had to take more because the Crohn's was still active... and they had no choice but to take the Rectum too,,, Now I will never have the chance again to be Normal... This past March 2011 I Celebrated 19 YEARS, HAPPY, STRONG, CAREFREE, CROHN'S FREE,,,, and LIVING WITH A COLOSTOMY!!! Happy RE-Birthday to me!!! :dance::dance::dance::dance:
I wish you continued happiness and successes.
